Cognitive Assessment and Rehabilitation for Pediatric-Onset Multiple Sclerosis: A Scoping Review

Lin, Wei−Sheng; Lin, Shan-Ju; Hsu, Ting-Rong

doi:10.3390/children7100183

Cited by 6 publications

(1 citation statement)

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“…Yeh, et al [45] for instance, reported that parents of CAMS perceived the school related performance of their child to be poorer as compared to parents of age-matched healthy controls. Here, mismanagement of time because of fatigue-related symptoms, the negative impact of fatigue on mental health, and lack of knowledge regarding how to manage fatigue-related symptoms were reported by caregivers as some factors leading to poorer school-related performance in CAMS [18,39,57,58]. Moreover, to add towards the burden of MS, a lack of awareness among teachers was reported in some of the studies reviewed [18,29,33,39].…”

Section: Physical and Psychological Impact Of Msmentioning

confidence: 99%

Needs and Experiences of Children and Adolescents with Pediatric Multiple Sclerosis and Their Caregivers: A Systematic Review

et al. 2021

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In the present study we conduct a systematic review to evaluate the needs and experience of people with pediatric multiple sclerosis (MS) and their caregivers. The literature search was conducted across 10 academic databases, adhering to PRISMA-P guidelines. Quality appraisal was conducted using the mixed method appraisal test for individual studies, and GRADE-CERQual to establish overall confidence of findings. Results were analyzed using a process of narrative synthesis. We identified 26 studies which included 2253 children/adolescents with MS (CAMS) and 1608 caregivers. MS was reported to negatively impact experiences for CAMS in domains such as of school performance, social relationships, mental health, and overall physical functioning. Specifically, fatigue and social support were reported as the most important barriers and facilitators for CAMS, respectively. In terms of caregiver experience, negative impacts were reported on social functioning, mental health, and quality of life. Additionally, lack of awareness concerning MS was one of the biggest challenges reported. Caregivers expressed needs for psychological and social support. This study provides the first evidence regarding the needs and experiences of CAMS and their caregivers. Findings can be used to address policy gaps for supporting families affected by pediatric MS.

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