Conceptual principles of quality of life: an empirical exploration

Bramston, Paul; Chipuer, Heather M.; Pretty, Grace

doi:10.1111/j.1365-2788.2005.00741.x

Cited by 65 publications

(48 citation statements)

References 18 publications

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“…Relationship deterioration can constitute an important stressor, which can limit a patient's ability to cope with a disease [30][31][32] . Several studies have previously found that a lack of social support and personal coping resources can affect mood and trigger depression [33][34][35][36] .…”

Section: Discussionmentioning

confidence: 99%

Mental and physical symptoms associated with lower social support for patients with hepatitis C

Blasiole¹,

Shinkunas²,

LaBrecque³

et al. 2006

WJG

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by others (19%). Nearly one fifth of the patients did not share information about their disease with others to avoid being stigmatized. Lower levels of social support were significantly associated with living alone, being unemployed, being excluded from antiviral therapy, having psychiatric comorbidities, contracting HCV through intravenous drug use, having high levels of anxiety and depression as measured by the HAD and negative mood state as measured by the SIP. Patients reporting lower levels of social support also noted more physical symptoms as measured by the SIP. CONCLUSION:Patients with hepatitis C often face significant social problems, ranging from social isolation to familial stress. The most common concerns reflect a limited insight of patients and their relatives and friends about the disease, the risk factors for its spread, and about potential consequences. Our data suggest that educational interventions targeting support persons and the stressors identified in our findings may lessen or alleviate the social strains patients with hepatitis C experience. INTRODUCTIONHepatitis C virus (HCV) infection, a common and slowly progressing liver disease, negatively affects quality of life. Most studies addressing the important impact of HCV focus on patients undergoing antiviral therapy [1][2][3][4][5][6] . However, even HCV-infected individuals outside of treatment have lower quality of life scores compared to uninfected controls [7][8][9] . Negative social interactions may play a unique role as a determinant of quality of life in patients with HCV, as they often face stigmatization in their professional and private environment [10][11][12] . Patients living with AIDS and stigmatizing diseases such as tuberculosis and leprosy Abstract AIM: To systematically examine the impact of the hepatitis C virus (HCV) diagnosis on patients' level of social support in a large-scale study. METHODS:Patients evaluated and treated for HCV in a tertiary referral center were enrolled in a cross-sectional study. Demographic data, functional and emotional status as measured by the Hospital Anxiety and Depression Scale (HAD) and the Sickness Impact Profile (SIP), severity of liver disease, mode of acquisition, and physical and psychiatric comorbidities were collected from patients or abstracted from the medical record. All participants completed a semi-structured interview, addressing questions of social support. RESULTS:A total of 342 patients (mean age 45.2 years; 37% women) were enrolled. Ninety-two (27%) patients described lower levels of support by family and friends. Nearly half of the participants (45%) noted the loss of at least one relationship due to the disease. Fears related to transmitting the disease (25%) were common and often associated with ignorance or even discrimination

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Section: Discussionmentioning

confidence: 99%

Mental and physical symptoms associated with lower social support for patients with hepatitis C

Blasiole¹,

Shinkunas²,

LaBrecque³

et al. 2006

WJG

View full text Add to dashboard Cite

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“…For instance, one study reported that the aspect that had the greatest impact on quality of life in a group of patients was the availability of parking spots when they came to a medical appointment (14). Moreover, some authors have suggested that community aspects should be given more weight when measuring quality of life (15); others consider that religiosity and spirituality are the central components of the concept (16). In addition, other studies have shown that access to healthcare systems can be a key factor in determining quality of life related to health (17).…”

Section: Introductionmentioning

confidence: 99%

Relationship between quality of life and clinical status in patients with gastrointestinal cancer

Pedraza

Alexander-Sierra

Oliveros

2012

Rev. esp. enferm. dig.

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Background: previous studies with patients having cancer have shown that quality of life scores depend on the clinical stage of the disease (the more advanced the disease, the worst quality of life).Methods: in a prospective study we studied 317 patients with gastric or colorectal cancer attending the Instituto Nacional de Cancerología between 2010 and 2011; the patients completed the EORTC QLQ-C30 before receiving treatment. This instrument measures quality of life in 15 domains. Scores of each domain were compared according to tumor stage. Differential Item Functioning was measured across neoplasm staging and tumor localization.Results: 145 patients (45.7%) were diagnosed with colorectal cancer. According to clinical staging, differences in quality of life scores were observed in 4 of 15 domains (physical and social functioning, anorexia). Most of the differences in quality of life domains depended on tumor localization (patients with colorectal cancer had the highest scores in quality of life) and sex (women reported better scores). These differences seemed to be independent of item properties. The construct was more adequately measured with items that explore the construct using a general approach.Conclusion: in this group of patients with colorectal and gastric cancer quality of life scores were more related with tumor localization than with clinical stage.

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“…19 However, the categories applied did not emerge from the data; that is, in vivo codes, typical of grounded theory studies, were not used. Instead categories based on a pre-existing theoretical framework (a priori codes) were used, 20 14,21,22 Focus groups were analyzed in Spanish and selected quotations were translated into English for inclusion in this report. Quotations that appear below are followed by FG1 for focus group 1 and FG2 for focus group 2; names and other details have been changed to maintain confidentiality.…”

Section: Methodsmentioning

confidence: 99%

View of Mexican family members on the autonomy of adolescents and adults with intellectual disability

Allen‐Leigh¹,

Katz²,

Rangel-Eudave³

et al. 2008

Salud pública Méx

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This study aims to describe the ways in which Mexican adolescents and adults with intellectual disability exercise autonomy. Two focus groups were carried out with family members who are the legal guardians of people with intellectual disability who have received independent living training at the Center for Integral Training and Development (CADI, per its abbreviation in Spansh). Focus group transcripts were analyzed with codes defined a priori, based on an existing theoretical framework on autonomy and quality of life among intellectually disabled persons. Autonomy is exercised by the intellectually disabled in the personal, social, sexual and economic spheres of life. Empowered autonomy implies that the person is taught the necessary skills and then allowed to act upon his or her own interests. Negotiated autonomy includes guidance, explanation and negotiation; it constitutes a learning process. Interpreted autonomy is the most limited type described, and implies protection, interpretation and may involve decision-making by others. These types of autonomy constitute a complex phenomenon and the divisions between them are indistinct. ResumenEste estudio busca describir las maneras en que jóvenes y adultos mexicanos con discapacidad intelectual ejercen la autonomía. Dos grupos focales se llevaron a cabo con familiares de personas con discapacidad intelectual quienes han recibido capacitación para la vida independiente en el Centro de Capacitación y Desarrollo Integral, CADI. Se analizaron las transcripciones con códigos definidos a priori, basados en un marco teórico preexistente sobre autonomía y calidad de vida entre personas con discapacidad intelectual. Las personas con discapacidad intelectual ejercen autonomía en diversos ámbitos: personal, social, sexual y económico. La autonomía empoderada se da cuando se le enseña a la persona las habilidades necesarias y luego se le permite actuar con base en sus propios intereses. La autonomía negociada implica ser guiado en las acciones, recibir explicaciones y negociar las decisiones; constituye un proceso de aprendizaje. La autonomía interpretada es el tipo más limitado que se describe, e implica protección, interpretación y puede involucrar la toma de decisiones por otros. Estos tipos de autonomía constituyen un fenómeno complejo y las divisiones entre ellas son difusas.Palabras clave: discapacidad intelectual; autonomía; empoderamiento; métodos cualitativos de investigación; México (

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Conceptual principles of quality of life: an empirical exploration

Cited by 65 publications

References 18 publications

Mental and physical symptoms associated with lower social support for patients with hepatitis C

Mental and physical symptoms associated with lower social support for patients with hepatitis C

Relationship between quality of life and clinical status in patients with gastrointestinal cancer

View of Mexican family members on the autonomy of adolescents and adults with intellectual disability

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