Conceptualizing patient-reported outcome measures for use within two Danish psychiatric clinical registries: description of an iterative co-creation process between patients and healthcare professionals

Kristensen, Solvejg; Mainz, Jan; Baandrup, Lone; Bonde, Maria; Videbech, Poul; Holmskov, Jens; Bech, Per

doi:10.1080/08039488.2018.1492017

Cited by 21 publications

(26 citation statements)

References 25 publications

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“…Mundt and colleagues’ paper ( British Journal of Psychiatry 2002) of the WSAS finds that this instrument is a reliable and valid measure of impaired functioning. Although not originally intended for non-clinical populations, the WSAS displays valid psychometric properties across different patient populations that cover both mild and more severe (psycho-)somatic [ 27 – 29 ] and mental health [ 26 , 30 – 32 ] conditions. Furthermore, the WSAS captures a dimension of impairment distinct from depression [ 32 ].…”

Section: Methodsmentioning

confidence: 99%

Risk of stress/depression and functional impairment in Denmark immediately following a COVID-19 shutdown

2021

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Background Existing estimates of the impact of the COVID-19 burden on mental wellbeing come from countries with high mortality rates. This study therefore aimed to investigate the impact of the first COVID-19 lockdown (March–April 2020) on risk for stress/depression and functional impairment in a representative sample of adult individuals in Denmark, which had lower infection rates, and whether the impact of lockdown was heterogeneous across living situation. Methods Using a representative, randomly drawn sample from the complete Danish adult population interviewed in March 2 to April 13, 2020 (n = 2836) and again in July 2020 (n = 1526, 54% retention rate), we study how the imposed lockdown announced March 11 following the onset of the first Danish wave of COVID-19 infections affected mental wellbeing. We use the World Health Organization Five Well-being Index (WHO-5) and the Work and Social Adjustment Scale (WSAS) to capture risk for stress/depression (WHO-5 < 50) and functional impairment (WSAS > 10). Using covariate adjusted ordinary least squares linear probability models and exploiting variation in the timing of responses occurring just before and just after the introduction of lockdown, we compare respondents before lockdown to respondents that answered during lockdown, as well as to answers in re-interviews in July. Results In our fully controlled models, we find reduced depressive symptoms among adults immediately after the shutdown, concentrated in adults with children living at home (−.089, p < .01 (from pre lockdown baseline .273)). Measures of functional impairment also declined immediately after the March shutdown among adults with children living at home (−.066, p < .05 (from pre lockdown baseline .150)). Impairment intensified for the entire sample between March and July (+.199, p < .001 (from pre lockdown baseline .248)), but depressive symptoms remained at lower rate in July (−.033, p < .05 (from pre lockdown baseline .332). Conclusions Findings in Denmark indicate that living with children at home may have, in the short term, buffered the potential mental health sequelae of the COVID-19 shutdown.

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Section: Methodsmentioning

confidence: 99%

Risk of stress/depression and functional impairment in Denmark immediately following a COVID-19 shutdown

2021

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“…The WSAS is a functional impairment measure designed to measure a patient’s perceived functional impairment following health problems across five items [17]. Although not originally intended for non-clinical populations, the WSAS displays valid psychometric properties across different patient populations that cover both mild and more severe (psycho-)somatic [18–20] and mental health [17, 21–23] conditions.…”

Section: Methodsmentioning

confidence: 99%

“…Furthermore, the WSAS captures a dimension of impairment distinct from depression [23]. Although not validated in a Danish version, it has previously been used both in Danish clinical and research settings [21]. WSAS measures impairment on a scale from 0 (no impairment) to 40 (most severe impairment).…”

Section: Who-5 < 50 [15 Table 2])mentioning

confidence: 99%

“…Although not originally intended for non-clinical populations, the WSAS displays valid psychometric properties across different patient populations that cover both mild and more severe (psycho-)somatic [18][19][20] and mental health [17,[21][22][23] conditions. Furthermore, the WSAS captures a dimension of impairment distinct from depression [23].…”

Section: Who-5 < 50 [15 Table 2])mentioning

confidence: 99%

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Risk of Stress/Depression and Functional Impairment in Denmark Immediately Following a COVID-19 Shutdown

Andersen

Fallesen

Bruckner

2020

Preprint

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Background This study aimed to investigate the impact of the first COVID-19 lockdown (March-April 2020) on risk for stress/depression and functional impairment in a representative sample of adult individuals in Denmark, and whether the impact of lockdown was heterogeneous across living situation. Methods: Using a representative, randomly drawn sample from the complete Danish adult population interviewed in March 2 to April 13, 2020 (n=2,836) and again in July 2020 (n=1,526, 54% retention rate), we study how the imposed lockdown announced March 11 following the onset of the first Danish wave of COVID-19 infections affected mental wellbeing. We use the World Health Organization Five Well-being Index (WHO-5) and the Work and Social Adjustment Scale (WSAS) to capture wellbeing and functioning. Using covariate adjusted ordinary least squares linear probability models and exploiting variation in the timing of responses occurring just before and just after the introduction of lockdown, we compare respondents before lockdown to respondents that answered during lockdown, as well to answers in re-interviews in July. Results: We find reduced depressive symptoms among adults immediately after the shutdown, concentrated in adults with children living at home. Measures of functional impairment also decline immediately after the March shutdown among adults with children living at home. Impairment intensified for the entire sample between March and July, but depressive symptoms remained at lower rate in July. Conclusions: Findings in Denmark indicate that living with children at home may have, in the short term, buffered the potential mental health sequelae of the COVID-19 shutdown.

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“…Clinicians' adherence to SDM was however less than optimal even in an intervention of active education and routine outcome monitoring [26]. Patients' and clinicians' co-operation has, as well, been successfully used to create outcome measures for psychiatric disorders [27].…”

Section: Shared Decision Making In Psychiatrymentioning

confidence: 99%

Clinicians’ experiences on patients’ demands and shared decision making in Finnish specialized mental health care

Hildén

Hautamäki

Korkeila

2020

Nordic Journal of Psychiatry

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Purpose: Psychiatric patients' awareness of treatments options and their possibilities to influence their care has increased. For the clinicians, the management of evidence-based care, as well as organizational and resource aspects, set different goals for the clinical encounter. In this article we are focusing on the clinicians' experiences and ask: How do the clinicians view situations in which there is a conflict between patients' individual needs and goals and other aspects in decision-making? Materials and methods: We implemented a qualitative study of 13 thematic semi-structured interviews with clinicians working in psychiatry. We used discourse analysis to investigate how the clinician view the doctor-patient interaction. Results: We identified three discources which were termed the medical standpoint, the psychodynamic standpoint and the standpoint of the patient's experience. Conclusions: In their talk, the clinicians use the three discources to make sense of the diverse expectations from both the patient and the mental health care system. The three discources also reflect different aspects in psychiatric treatment cultures, such as evidence-based medicine, the ideal of patientcenteredness, therapeutic interaction and organizational requirements.

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Conceptualizing patient-reported outcome measures for use within two Danish psychiatric clinical registries: description of an iterative co-creation process between patients and healthcare professionals

Abstract: The iterative co-creation process based upon a high degree of patient involvement resulted in a set of PROMs, a national measurement concept, and patient recommendations for implementation. The cooperation between patients and professionals was successful.

Cited by 21 publications

References 25 publications

Risk of stress/depression and functional impairment in Denmark immediately following a COVID-19 shutdown

Risk of stress/depression and functional impairment in Denmark immediately following a COVID-19 shutdown

Risk of Stress/Depression and Functional Impairment in Denmark Immediately Following a COVID-19 Shutdown

Clinicians’ experiences on patients’ demands and shared decision making in Finnish specialized mental health care

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