Consulting concepts and structures for people with dementia in Germany: a protocol for a ‘grey-shaded’ scoping review

Manietta, Christina; Rommerskirch-Manietta, Mike; Purwins, Daniel; Roes, Martina

doi:10.1136/bmjopen-2021-059771

Cited by 5 publications

(4 citation statements)

References 34 publications

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“…We published a review protocol describing our methodological approach [ 1 ] in detail. According to the publication and commentary from Pieper, Ge [ 33 ], we reused the text of our review protocol for the method section in this publication and made changes where the process differs between the planned and conducted methodological approach.…”

Section: Methodsmentioning

confidence: 99%

“…Author details 1 Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Site Witten, Witten, Germany. 2 • support for research data, including large and complex data types • gold Open Access which fosters wider collaboration and increased citations maximum visibility for your research: over 100M website views per year…”

Section: Supplementary Informationmentioning

confidence: 99%

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Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review

Rommerskirch-Manietta

Manietta

Purwins

et al. 2023

BMC Health Serv Res

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Background Care counseling is an important psychosocial intervention for people with care needs and their relatives and can contribute to maintaining and/or improving a patient’s quality of life and reducing the burden of caregivers. This is especially the case for people with dementia and their relatives, in which the methods of care counseling need to be different than those for individuals with non-dementia related care needs. Furthermore, the counseling content needs to be adjusted to the specific form and stage of dementia. In Germany, every person who receives support per the German Social Law Book XI (SBG XI) can take advantage of care counseling according to §7a SGB XI. To date, there is no systematic overview of counseling services for people with dementia and their relatives related to this specific provision in Germany. Methods We conducted a gray-shaded scoping review with a focus on the evaluation of care counseling according to §7a SGB XI for people with dementia and their relatives. For this purpose, we applied five search strategies. We researched (1) national electronic databases, (2) Google, (3) targeted websites, (4) experts, and (5) academic electronic databases. Additionally, for the included gray literature, we conducted backward citation tracking via reference lists and forward citation tracking via Google Scholar for scientific articles. Screening of the identified potentially relevant records was performed independently by two reviewers. Results We identified 985 records and included 6 studies in our review. We divided the identified studies into three themes: understanding conceptual dimensions, digitalization of counseling, and understanding the perspective of those being counseled. No studies investigated the perspective and experience of people with dementia and their relatives regarding the counseling service according to §7a SGB XI. Conclusions Our results show that further research is needed, especially regarding the experience of people with dementia and their relatives who participated in counseling according to §7a SGB XI. It seems essential to understand the perspective of people with dementia and their relatives to improve and tailor counseling services in Germany. Registration The review protocol was prospectively published (BMJ Open 12:e059771, 2022).

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Section: Methodsmentioning

confidence: 99%

Section: Supplementary Informationmentioning

confidence: 99%

Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review

Rommerskirch-Manietta

Manietta

Purwins

et al. 2023

BMC Health Serv Res

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“…The review revealed that recent literature on the governance and organisation of the eight European AMCs is limited. Since grey literature is becoming increasingly important for many types of reviews, we have incorporated it to enrich the literature review [28]. The term grey literature is defined as "that which is produced on all levels of government, academics, business and industry in print and electronic formats, but which is not controlled by commercial publishers" [29].…”

Section: Selection Of Sources Of Evidencementioning

confidence: 99%

Inventory and analysis of literature on the organisation of eight European academic medical centres—A scoping review

Cardinaal

Duighuisen²,

Jeurissen³

et al. 2023

PLoS ONE

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Academic Medical Centres (AMCs) are important organisations for shaping healthcare. The purpose of this scoping review is to understand the scope and type of evidence related to the organisation of European AMCs. We selected the study population intending to obtain a demographic cross-section of European countries: Czech Republic, Germany, Latvia, the Netherlands, Poland, Spain, Sweden and the UK. We focused our search strategy on the relationship between medical schools and AMCs, the organisation of governing bodies, and legal ownership. We searched the bibliographic databases of PubMed and Web of Science (most recent search date 17-06-2022). To enrich the search result, we used Google search engines to conduct targeted searches for relevant websites. Our search strategy yielded 4,672 records for consideration. After screening and reviewing full-text papers, 108 sources were included. Our scoping review provided insight into the scope and type of evidence related to the organisation of European AMCs. Limited literature is available on the organisation of these AMCs. Information from national-level websites complemented the literature and provided a more complete picture of the organisation of European AMCs. We found some meta-level similarities regarding the relationship between universities and AMCs, the role of the dean and the public ownership of the medical school and the AMC. In addition, we found several reasons why a particular organisational and ownership structure was chosen. There is no uniform model for AMC organisations (apart from some meta-level similarities). Based on this study, we cannot explain the diversity in these models. Therefore, further research is needed to explain these variations. For example, by generating a set of hypotheses through in-depth case studies that also focus on the context of AMCs. These hypotheses can then be tested in a larger number of countries.

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“…Finally, it should be mentioned that publication bias cannot be excluded; for example, we did not specifically and systematically search for gray literature [ 111 ].…”

Section: Limitationsmentioning

confidence: 99%

Mapping implementation strategies of evidence-based interventions for three preselected phenomena in people with dementia—a scoping review

Rommerskirch-Manietta,

Manietta,

Purwins

et al. 2023

Implement Sci Commun

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Background Caring for people with dementia is complex, and there are various evidence-based interventions. However, a gap exists between the available interventions and how to implement them. The objectives of our review are to identify implementation strategies, implementation outcomes, and influencing factors for the implementation of evidence-based interventions that focus on three preselected phenomena in people with dementia: (A) behavior that challenges supporting a person with dementia in long-term care, (B) delirium in acute care, and (C) postacute care needs. Methods We conducted a scoping review according to the description of the Joanna Briggs Institute. We searched MEDLINE, CINAHL, and PsycINFO. For the data analysis, we conducted deductive content analysis. For this analysis, we used the Expert Recommendations for Implementation Change (ERIC), implementation outcomes according to Proctor and colleagues, and the Consolidated Framework for Implementation Research (CFIR). Results We identified 362 (A), 544 (B), and 714 records (C) on the three phenomena and included 7 (A), 3 (B), and 3 (C) studies. Among the studies, nine reported on the implementation strategies they used. Clusters with the most reported strategies were adapt and tailor to context and train and educate stakeholders. We identified one study that tested the effectiveness of the applied implementation strategy, while ten studies reported implementation outcomes (mostly fidelity). Regarding factors that influence implementation, all identified studies reported between 1 and 19 factors. The most reported factors were available resources and the adaptability of the intervention. To address dementia-specific influencing factors, we enhanced the CFIR construct of patient needs and resources to include family needs and resources. Conclusions We found a high degree of homogeneity across the different dementia phenomena, the evidence-based interventions, and the care settings in terms of the implementation strategies used, implementation outcomes measured, and influencing factors identified. However, it remains unclear to what extent implementation strategies themselves are evidence-based and which intervention strategy can be used by practitioners when either the implementation outcomes are not adjusted to the implementation strategy and/or the effects of implementation strategies are mostly unknown. Future research needs to focus on investigating the effectiveness of implementation strategies for evidence-based interventions for dementia care. Trial registration The review protocol was prospectively published (Manietta et al., BMJ Open 11:e051611, 2021).

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Consulting concepts and structures for people with dementia in Germany: a protocol for a ‘grey-shaded’ scoping review

Cited by 5 publications

References 34 publications

Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review

Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review

Inventory and analysis of literature on the organisation of eight European academic medical centres—A scoping review

Mapping implementation strategies of evidence-based interventions for three preselected phenomena in people with dementia—a scoping review

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