Correction: Barriers to Service Use Among Dementia Family Caregivers in Rural Appalachia: Implications for Reducing Caregiver Overload

Vipperman, A; Savla, Jyoti; Roberto, Karen A.; Burns, Derek

doi:10.1007/s11121-023-01528-y

Cited by 2 publications

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“…Rural families are often isolated from specialty services and palliative care (Fernando et al, 2014). The rural distance from specialist providers and healthcare services might have influenced the caregivers' greater need for communication and home care information (Vipperman et al, 2023). Thus, it behooves healthcare professionals to better communicate and prepare rural-dwelling caregivers of family members with complex diseases and about palliative care needs.…”

Section: Discussionmentioning

confidence: 99%

“…Appalachia is a mountainous rural region with limited access to healthcare services and few internet and cellular services (Callaghan et al, 2023). Thus, family caregivers report a lack of access to healthcare services and information (Vipperman et al, 2023). Previous studies described the Appalachians as independent-minded, family and spiritually oriented, and not trusting outsiders (Roberto et al, 2022).…”

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confidence: 99%

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Spiritual Well-Being in Appalachian Family Caregivers

Piamjariyakul,

Young,

Shafique

et al. 2024

OJRNHC

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Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

Spiritual Well-Being in Appalachian Family Caregivers

Piamjariyakul,

Young,

Shafique

et al. 2024

OJRNHC

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Palliative care for patients with heart failure and family caregivers in rural Appalachia: a randomized controlled trial

Piamjariyakul,

Smothers,

Wang

et al. 2024

BMC Palliat Care

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Background Heart failure (HF) is a debilitating disease with worsening symptoms and family caregiving burden. HF affects more than 8 million Americans. West Virginia has the highest HF death rate in the U.S. and limited healthcare services. This study tested whether the family HF palliative and end-of-life care intervention (FamPALcare) improved patient and caregiver outcomes at 3- and 6-month study endpoints. Methods This study used a randomized controlled trial design. Patients with HF and their caregivers were randomly assigned together to the intervention (n = 21) or control (n = 18) group. The intervention included five telephone coaching sessions on the HF home, palliative, and end-of-life care. The outcome data collected at baseline and at 3 and 6 months were from the patients’ (a) HF-related health status and depression/anxiety scale scores; and from caregivers’ (b) caregiving burden and depression/anxiety scale scores; and (c) anonymous ratings on the 11-item FamPALcare helpfulness scale, completed by the intervention participants. Results The mean age of the patients was 65.66 (SD = 13.72) years, and 67% were White males. The mean age of the caregivers was 62.05 (SD = 13.14) years, and 77% were White females. Compared to the controls, patients in the intervention group had significantly greater scores for HF-related health status (p < .05) and lower depression/anxiety scores at 6 months, the study endpoint. The family caregivers in the intervention group had significantly lower scores on caregiving burden (p < .05) and depression/anxiety (p < .01) at 3 months. The mean helpfulness rating was M = 4.46 out of 5 (SD = 0.49). Conclusions The FamPALcare intervention was found to be effective at improving patient HF-related health status and reducing caregiver burden and improving both patient and caregiver depression and anxiety scores. The FamPALcare HF intervention was found feasible and consistently delivered (fidelity). The FamPALcare intervention’s cost-effectiveness and helpfulness ratings information will be used to plan for subsequent clinical trials. Trial registration ClinicalTrials.gov NCT04153890, Registered on 4 November 2019, https://clinicaltrials.gov/ct2/show/NCT04153890.

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Correction: Barriers to Service Use Among Dementia Family Caregivers in Rural Appalachia: Implications for Reducing Caregiver Overload

Cited by 2 publications

References 0 publications

Spiritual Well-Being in Appalachian Family Caregivers

Spiritual Well-Being in Appalachian Family Caregivers

Palliative care for patients with heart failure and family caregivers in rural Appalachia: a randomized controlled trial

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