COVID-19 and Open Notes: A New Method to Enhance Patient Safety and Trust

Blease, Charlotte; Salmi, Liz; Hägglund, Maria; Wachenheim, Deborah; DesRoches, Catherine M.

doi:10.2196/29314

Cited by 11 publications

(12 citation statements)

References 25 publications

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“…Recently, NHS Digital announced plans to accelerate patient access to their records through the NHS App and other online services from December 2021, 1 including plans for patients to be able to read all new entries in their health record and plans for patients to be able to request historic coded records. Relatedly, there is promising evidence that patients’ access to their notes may have a positive impact on challenges that developed, or were exacerbated by the COVID-19 pandemic, for example by addressing health disparities, strengthening clinician-patient exchanges, and supporting patient and family involvement [ 27 ].…”

Section: Introductionmentioning

confidence: 99%

What do primary care staff think about patients accessing electronic health records? A focus group study

Louch

Albutt

Smyth

et al. 2022

BMC Health Serv Res

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Background Patients have expressed a growing interest in having easy access to their personal health information, and internationally there has been increasing policy focus on patient and care records being more accessible. Limited research from the UK has qualitatively explored this topic from the primary care staff perspective. This study aimed to understand what primary care staff think about patients accessing electronic health records, highlighting errors in electronic health records, and providing feedback via online patient portals. Methods A focus group study involving 19 clinical and non-clinical primary care staff. Primary care practices were purposively sampled based on practice size and the percentage of patients using online services. Data were analysed inductively using reflexive thematic analysis. Results Three themes were generated: (1) Information – what, why and when? (2) Changing behaviours and protecting relationships, and (3) Secure access and safeguarding. The emotional considerations and consequences for staff and patients featured prominently in the data as an overarching theme. Conclusions Primary care staff described being invested and supportive of patients accessing their electronic health records, and acknowledged the numerous potential benefits for safety. Uncertainty around the parameters of access, the information available and what this might look like in the future, processes for patients highlighting errors in records, relational issues, security and safeguarding and equitable access, were key areas warranting examination in future research.

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Section: Introductionmentioning

confidence: 99%

What do primary care staff think about patients accessing electronic health records? A focus group study

Louch

Albutt

Smyth

et al. 2022

BMC Health Serv Res

View full text Add to dashboard Cite

show abstract

“… 42 Enabling patient access can also potentially address the problems that have either emerged or been exacerbated by the COVID-19 pandemic. 43 Secure messaging with healthcare providers is another longstanding issue that has only become recently addressed through the pandemic response. 44 , 45 Although chatbots and interactive voice response technologies have great potential to meet patient information needs, they were ranked last in the priorities, possibly because they are “devoid” of the human element of care.…”

Section: Discussionmentioning

confidence: 99%

Canadian perspectives of digital mental health supports: Findings from a national survey conducted during the COVID-19 pandemic

et al. 2022

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Objectives The impact of the COVID-19 pandemic on population mental health has highlighted the potential for digital mental health to support the needs of those requiring care. This study sought to understand the digital mental health experiences and priorities of Canadians affected by mental health conditions (i.e. seekers, patients, and care partners). Methods A national cross-sectional electronic survey of Canadians was administered through a market research firm's survey panel. Seekers, patients, and care partners were asked about their digital mental health experiences (e.g. uptake, barriers to access) and priorities. Survey responses were summarized using descriptive statistics. Results Overall, 1003 participants completed the survey. 70.2% of participants routinely use digital mental health supports to support themselves or those they care for; however, only 28.6% of participants are satisfied with the available digital mental health supports. Most participants (73.3%) have encountered some barriers when accessing digital mental health supports. Awareness of digital mental health supports was a top barrier identified by participants. The top digital mental health priorities consisted of digital mental health curation, navigation, and a digital mental health passport. Conclusions Most participants use digital mental health supports for themselves or others, however, many are unaware of digital mental health supports available. Efforts to improve navigating access to digital and in-person mental health services are seen as a top priority, highlighting the need to enable seekers, patients, and care partners to find the appropriate support and make decisions on how to best improve their mental health.

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“…Via the PAEHR, patients can access and read notes written by clinicians, see lab and test results, diagnoses, and prescribed medications. The new federal law 21st Century Cures Act in the US, mandated all healthcare providers since April 2021 to offer patients access to their clinical information housed in their EHR [6,7]. In Sweden, one of the studied countries here, all citizens were provided access to the PAEHR in 2018, initially implemented in one healthcare region in 2012, and stepwise disseminated to all other 20 regions [7].…”

Section: Introductionmentioning

confidence: 99%

Patients’ Access to Their Psychiatric Records – A Comparison of Four Countries

Bärkås

Hägglund

Moll

et al. 2022

Studies in Health Technology and Informatics

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Several Nordic and Baltic countries are forerunners in the digitalization of patient ehealth services and have since long implemented psychiatric records as parts of the ehealth services. There are country-specific differences in what clinical information is offered to patients concerning their online patient accessible psychiatric records. This study explores national differences in Sweden, Norway, Finland, and Estonia in patient access to their psychiatric records. Data was collected through a socio-technical data collection template developed during a workshop series and then analyzed in a cross-country comparison focusing on items related to psychiatry records online. The results show that psychiatric records online are offered to patients in all four countries, and provide the same functionality and similar psychiatry information. Overall, the conclusion is that experiences of various functionalities should be scrutinized to promote transparency of psychiatric records as part of the national eHealth services to increase equality of care and patient empowerment.

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COVID-19 and Open Notes: A New Method to Enhance Patient Safety and Trust

Cited by 11 publications

References 25 publications

What do primary care staff think about patients accessing electronic health records? A focus group study

What do primary care staff think about patients accessing electronic health records? A focus group study

Canadian perspectives of digital mental health supports: Findings from a national survey conducted during the COVID-19 pandemic

Patients’ Access to Their Psychiatric Records – A Comparison of Four Countries

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