Cut points and sensitivity to change of the Enfranchisement scale of the Community Participation Indicators in adults with traumatic brain injury

Kersey, Jessica; Baum, Carolyn; Hammel, Joy; Terhorst, Lauren; McCue, Michael; Skidmore, Elizabeth R.

doi:10.1002/pmrj.12743

Cited by 2 publications

(1 citation statement)

References 39 publications

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“…Lower scores indicate greater participation. A score on the Control subscale of ≥44 and a score on the Importance subscale of ≥39 indicate poor participation ( Kersey et al., 2023 ). Health was measured with the PROMIS ® –29 ( Hays et al., 2018 ) Physical Health and Mental Health summary scores ( T scores).…”

Section: Methodsmentioning

confidence: 99%

Participation and Its Association With Health Among Community-Dwelling Adults With Chronic Stroke

Kersey,

Skidmore,

Hammel

et al. 2023

The American Journal of Occupational Therapy

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Importance: Little is known about the severity of participation restrictions among people living in the community with chronic stroke. Even less is known about the association between participation and health in this population. Objective: To describe participation among people with chronic stroke and examine the association between participation and physical and mental health. Design: Secondary analysis of baseline data from an intervention study. Setting: The parent multisite intervention study was conducted in the community, and assessments were administered in participants’ homes. Participants: Thirty-one community-dwelling adults with chronic stroke. Outcomes and Measures: Participation was measured with the Activity Card Sort (percentage of prestroke activities retained) and the Enfranchisement Scale of the Community Participation Indicators. Health was measured with the PROMIS®–29 Physical Health and Mental Health subscales. We calculated descriptive statistics for participation measures and Spearman’s ρ correlations between participation and health outcomes. Results: Participation scores were poor on all measures of participation. Most striking, 94.9% of participants retained less than 80% of their prestroke activities. All measures of participation were modestly correlated with physical health (ρ = .28–.46) and were moderately correlated with mental health (ρ = .42–.63). Conclusions and Relevance: Participation restrictions are prevalent among adults with chronic stroke, with potential implications for mental health. Stronger community-based rehabilitation and support services to enhance participation of this high-risk population are warranted. What This Article Adds: This report highlights the severity of participation restrictions among people with chronic stroke. Moreover, this report shows that people with stroke feel a lack of inclusion in the community and that participation is associated with mental and physical health.

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Section: Methodsmentioning

confidence: 99%

Participation and Its Association With Health Among Community-Dwelling Adults With Chronic Stroke

Kersey,

Skidmore,

Hammel

et al. 2023

The American Journal of Occupational Therapy

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Perceived Vulnerability to Disability-Related Victimization in People With Multiple Sclerosis: Community Survey on Risk and Protective Factors

Munroe,

Rivera,

Flaster

et al. 2024

International Journal of MS Care

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BACKGROUND: The perception that one is at increased risk of interpersonal victimization or violence can deleteriously affect community participation and quality of life. Race, sex, and disability status, often associated with use of an assistive mobility device (AD), are known correlates of perceived risk of victimization; however, almost no research has explored how these variables intersect for individuals with multiple sclerosis (MS), and none have sought to identify potential risk and protective factors. METHODS: Data for the present study come from a single time point derived from a 10-year longitudinal survey of 446 individuals with MS. Lifetime trauma exposure, personal resilience and self-efficacy, control over participation, and perceived risk of interpersonal victimization due to disability were all assessed via self-report. Statistical analyses included analysis of covariance with participants stratified by race/ethnicity, sex, and AD use. RESULTS: After controlling for lifetime trauma exposure and severity of physical impairment, the use of an AD was significantly associated with greater perceived risk of victimization due to disability. Further, people with MS from racial and ethnic minority groups who used ADs had the highest perceived risk relative to all other groups. Higher levels of perceived risk were associated with a lower sense of control over community participation, lower resilience, and lower disease management self-efficacy. CONCLUSIONS: Visible indicators of disability may contribute to perceptions of vulnerability, especially among people with MS who are racially and ethnically marginalized. Clinicians should be aware of how perceived vulnerability may impact a sense of control over community participation, particularly when educating patients on AD use.

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Cut points and sensitivity to change of the Enfranchisement scale of the Community Participation Indicators in adults with traumatic brain injury

Cited by 2 publications

References 39 publications

Participation and Its Association With Health Among Community-Dwelling Adults With Chronic Stroke

Participation and Its Association With Health Among Community-Dwelling Adults With Chronic Stroke

Perceived Vulnerability to Disability-Related Victimization in People With Multiple Sclerosis: Community Survey on Risk and Protective Factors

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