Data, Data, Everywhere: Uncovering Everyday Data Experiences for People with Intellectual and Developmental Disabilities

Wu, Keke; Tran, Michelle H; Petersen, Emma; Koushik, Varsha; Szafir, Danielle Albers

doi:10.1145/3544548.3581204

Cited by 13 publications

(3 citation statements)

References 65 publications

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“…As accessible data visualization continues to evolve, research continues to focus on people with vision impairments [3], [4]. While researchers have begun to recognize data access as an equity issue for various disabilities such as auditory, cognitive, and motor impairments [4], [34], these areas have received less attention than vision-related disabilities.…”

Section: B Data Visualization Accessibilitymentioning

confidence: 99%

“…While this focus is understandable, it limits the field's potential for broader impact. It is worth noting that the ultimate goal of data visualization is not solely to present data visually but to facilitate data-driven insights [34], [68]. However, these insights can manifest through various formats, including auditory, tactile, or interactive representations.…”

Section: A Expanding the Scope Of Accessible Data Representationsmentioning

confidence: 99%

“…While numerous data representation guidelines have origins in cognitive sciences, these are principally tailored to neurotypical populations. Wu et al contend that new guidelines catering to the unique information processing needs of neurodiverse populations, such as those with IDD, must be developed to facilitate sense-making and decisionmaking tasks effectively [34], [35]. Such observations lead to a pivotal consideration: the inherent limitations of Universal Design (UD) for data representations.…”

Section: B Opportunities and Challengesmentioning

confidence: 99%

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Beyond Vision Impairments: Redefining the Scope of Accessible Data Representations

Wimer,

South,

et al. 2024

Preprint

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The increasing ubiquity of data in everyday life has elevated the importance of data literacy and accessible data representations, particularly for individuals with disabilities. While prior research predominantly focuses on the needs of the visually impaired, our survey aims to broaden this scope by investigating accessible data representations across a more inclusive spectrum of disabilities. After conducting a systematic review of 152 accessible data representation papers from ACM and IEEE databases, we found that roughly 78% of existing articles center on vision impairments. In this paper, we conduct a comprehensive review of the remaining 22% of papers focused on underrepresented disability communities. We developed categorical dimensions based on accessibility, visualization, and human-computer interaction to classify the papers. These dimensions include the community of focus, issues addressed, contribution type, study methods, participants, data type, visualization type, and data domain. Our work redefines accessible data representations by illustrating their application for disabilities beyond those related to vision. Building on our literature review, we identify and discuss opportunities for future research in accessible data representations. All supplemental materials are available at https://osf.io/yv4xm/?view_only=b36a3fbf7a14b3888029966faa3def9.

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Section: B Data Visualization Accessibilitymentioning

confidence: 99%

Section: A Expanding the Scope Of Accessible Data Representationsmentioning

confidence: 99%

Section: B Opportunities and Challengesmentioning

confidence: 99%

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Beyond Vision Impairments: Redefining the Scope of Accessible Data Representations

Wimer,

South,

et al. 2024

Preprint

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Evaluating Commonalities and Variances in Inclusive Design Principles for Neurodivergent Individuals

Leshkov,

Dekoninck,

Brosnan

et al. 2024

Design Computing and Cognition’24

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Communication, Socialization, and Literacy for Adults With Developmental Disabilities: An Interview Study of Parents' Perspectives and Experiences

Kim,

Jung,

Thao

2024

Am J Speech Lang Pathol

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Purpose: The study highlights the significance of continuous support and services in communication, socialization, and literacy skills for adults with developmental disabilities (DDs). The aim of the study was to gather in-depth information on the individualized needs, lived experiences, and expectations of adults with DD by interviewing their parents. Method: A total of 14 parents of adults with DD participated in one-on-one semistructured interviews. During the interviews, parents were asked to describe (a) their children's current communication, socialization, reading and writing skills; (b) the types of communication, socialization, and literacy support their children were receiving; and (c) the types of support that their children needed. Interviews were video- and audio-recorded, transcribed, and analyzed qualitatively using thematic analysis. Results: Thematic analysis revealed three main themes and eight subthemes: (1) insufficient support and services for adults with DD (i.e., lack of competent professionals and lack of literacy support), (2) approaches that the parents attempted for their children with DD (i.e., parents' responsibilities, technologies, and pseudoscience), and (3) recommendations for ongoing support and services (i.e., novel technologies, social media, and motivation). Conclusions: The study highlights crucial gaps between the participating parents' desire for individualized, consistent, and innovative support and services for their adult children with DD and scarcity of resources in communication, socialization, and literacy. The dearth of evidence-based support and resources leads to easy access to pseudoscience. Future research is warranted to develop innovative, customized, and highly motivating programs in communication, socialization, and literacy for adults with DD. Supplemental Material: https://doi.org/10.23641/asha.27214407

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Data, Data, Everywhere: Uncovering Everyday Data Experiences for People with Intellectual and Developmental Disabilities

Cited by 13 publications

References 65 publications

Beyond Vision Impairments: Redefining the Scope of Accessible Data Representations

Beyond Vision Impairments: Redefining the Scope of Accessible Data Representations

Evaluating Commonalities and Variances in Inclusive Design Principles for Neurodivergent Individuals

Communication, Socialization, and Literacy for Adults With Developmental Disabilities: An Interview Study of Parents' Perspectives and Experiences

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