Data quality in the Swedish Quality Register of Gynecologic Cancer – a Swedish Gynecologic Cancer Group (SweGCG) study

Abstract

The data in the Swedish Quality Register for Gynecologic Cancer are of adequate quality in order to be used as a basis for research and to evaluate possible differences in treatment, lead times and treatment results.

Fertility-sparing surgery for treatment of non-epithelial ovarian cancer: Oncological and reproductive outcomes in a prospective nationwide population-based cohort study

“…The SQRGC was initiated in 2008 and contains information on clinical, surgical, and oncological variables, pathology review, outcomes, and follow-up, together with mortality data, all prospectively and consecutively collected. In Sweden, it is compulsory to report every incidence of cancer to the National Swedish Cancer Register, which covers 98% of all malignant tumors [15]. The SQRGC has a 94% coverage rate; the validity of recorded data has been assessed, and the agreement of variables is close to 100% [15].…”

“…In Sweden, it is compulsory to report every incidence of cancer to the National Swedish Cancer Register, which covers 98% of all malignant tumors [15]. The SQRGC has a 94% coverage rate; the validity of recorded data has been assessed, and the agreement of variables is close to 100% [15].…”

Quality Indicators and Survival Outcome in Stage IIIB-IVB Epithelial Ovarian Cancer Treated at a Single Institution

“…The clinical data are documented in different National Quality Registries (20) and databases. The National Swedish Cancer Register (NCR), started 1958, is the most established with coverage rate 96% for epithelial ovarian cancer in 2017 (21). The NCR manages all cancer cases registered in Sweden via the web-based platform INCA (Information Network for Cancer care) that collaborates with the Swedish Quality Register for Gynecological Cancer (SQRGC).…”

“…The NCR manages all cancer cases registered in Sweden via the web-based platform INCA (Information Network for Cancer care) that collaborates with the Swedish Quality Register for Gynecological Cancer (SQRGC). The SQRGC is considered to be of adequate quality in order to be used as a basis for research (21).…”

Letter to the Editor on the “European Society of Gynaecologic Oncology Quality Indicators for Advanced Ovarian Cancer Surgery” by Querleu et al, Int J Gynecol Cancer 2016;26: 1354–1363

“…2 Also, treatment details of women with cancers of gynecological origin (including, eg, serous cancer abdominis) are registered within the Swedish Quality Register for Gynaecological Cancers, with high validity and coverage. 3 Of special note, all women with C76.2 in the Swedish Cancer Registry were also reported to the Swedish Quality Register for Gynaecological Cancer. These conditions combined constitute a unique possibility to assess the distribution of primary treatment modalities in a population also including cancer abdominis with adnexal origin in the estimates.…”