Dementia care mapping as a research tool for measuring quality of life in care settings: psychometric properties

Fossey, Jane; Lee, Lesley; Ballard, Clive

doi:10.1002/gps.708

Cited by 109 publications

(121 citation statements)

References 27 publications

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“…Three approaches to the assessment of QOL can be distinguished: self-reports by the individual with dementia (e.g., Brod et al, 1999;Logsdon et al, 2002;., ZOOO), proxy reports by a family member or caregiver (e.g., Albert et al, 2000;Rabins et al, 1999), and direct observation of behaviors assumed to be related to QOL (e.g., Fossey et al, 2002;Lawton et al, 1996;Logsdon et al, 2002). Self-ratings will be influenced by education, memory, and attention problems.…”

Section: Methodological Issuesmentioning

confidence: 99%

The Assessment of Quality of Life in Dementia

Weyerer

Schäufele

2003

Int. Psychogeriatr.

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In the past decade, pharmacological, behavioral, educational, and environmental interventions for individuals with dementia have addressed a variety of goals: improving cognitive status, delaying the onset of symptoms, reducing behavioral problems such as depression and agitation, and maximizing activities of daily living. It is important not only to ameliorate symptoms but also to evaluate the extent to which an intervention improves the quality of life (QOL) of the person being treated (Logsdon et al., 2002).

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Section: Methodological Issuesmentioning

confidence: 99%

The Assessment of Quality of Life in Dementia

Weyerer

Schäufele

2003

Int. Psychogeriatr.

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“…These are: (1) QUALIDEM (4) , (2) Psychological Well-Being in Cognitively Impaired Persons (PWB-CIP) (5) , (3) DEMQOL (6) , (4) Quality of Life Assessment Scale on Alzheimer's Disease (QoL-AD) (7)(8) , (5) The Cornell-Brown Scale for Quality of Life in Dementia (CBS) (9) , (6) Dementia Care Mapping (DCM) (10) , (7) Quality of Life Assessment Schedule in Dementia (QOLAS) (11) , (8) The Quality of Life in Late-Stage Dementia Scale (QUALID) (12) , (9) Dementia Quality of Life Instrument (DQoL) (13) , (10) Activity and Affect Indicators of Quality of Life (14) .…”

Section: Introductionmentioning

confidence: 99%

“…Among these, the psychometric properties for severe cases of dementia had been studied for the QUALIDEM (4) , PWB-CIP (5) , DEMQOL (6) , DCM (10) , QUALID (12) and the Activity and Affect Indicators of Quality of Life (14) only, and all of these only used the caregiver's report. The patient's report was considered in the DEMQOL (6) , QdV-DA (7)(8) , CBS (9) , QOLAS (11) and DQoL (13) only, which indicated adequate reliability and validity in assessment by patients with initial-stage dementia (7,9,11,13) .…”

Section: Introductionmentioning

confidence: 99%

Quality of life of elderly with alzheimer’s disease: a comparative study between the patient’s and the caregiver’s report

Inouye

Pedrazzani

Pavarini

et al. 2010

Rev. Latino-Am. Enfermagem

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This paper aimed to compare the reports of patients and caregivers about how they perceive quality of life (QoL) in general and each of its dimensions in elderly with Alzheimer's Disease (AD). The participants were elderly diagnosed with AD (n=53) attended by the Exceptional Medication Program in a city in the interior of Sao Paulo; and their respective family caregivers. The QoL measures were obtained through the Quality of Life Assessment Scale on Alzheimer's Disease. The results showed statistically significant differences in the "memory" (p<0.05) and "you in general" (p<0.005) dimensions. Regarding the final score, the average in the patient's version was 29.32 points (sd=6.27), against 28.33 points (sd=5.58) in the family version, p>0.100. Although the relative and patient reports were not identical, the results pointed to a high level of consistency among information.Descriptors: Quality of Life; Alzheimer Disease; Dementia; Caregivers; Aged. Calidad de vida del anciano con enfermedad de Alzheimer: estudio comparativo de los relatos del paciente y del cuidadorEste estudio tuvo como objetivo comparar los relatos del paciente y el del respectivo cuidador familiar sobre la percepción general y de cada dimensión de calidad de vida (CV) del anciano con enfermedad de Alzheimer (EA). Los participantes fueron ancianos diagnosticados con EA (n=53), atendidos por el Programa del Medicamento Excepcional de una ciudad del interior del estado de Sao Paulo, y sus respectivos cuidadores familiares. Las medidas de CV fueron obtenidas por medio de la Escala de Evaluación de Calidad de Vida en la Enfermedad de Alzheimer. Los resultados mostraron que apenas las dimensiones "memoria" (p<0,05) y "usted en general" (p<0,005) presentaron disparidades estadísticamente significativas. En cuanto al puntaje final, el promedio en la versión del paciente fue de 29,32 puntos (de=6,27) y en la versión del familiar fue de 28,33 puntos (de=5,58), p>0,100. A pesar de que los relatos del familiar y del paciente no son idénticos, los resultados apuntaron una elevada consistencia entre las informaciones.

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“…As Well Being Profiling (12) and Dementia Care Mapping (13) are becoming increasingly popular and powerful approaches for measuring specific aspects of dementia care outcomes in daycare facilities, these could be useful tools in determining whether such training workshops translate to improving the quality of care in similar settings.…”

Section: Discussionmentioning

confidence: 99%

Training eldercare workers in mental healthcare

Sin¹,

Yeo²,

Koh³

et al. 2018

smedj

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RESULTSA total of 71 staff members from various eldercare centres participated in the study, of which 51 (71.8%) were women. At three-month follow-up, there was a significant change in most measures on Ryden's Perception Scale (p < 0.05). There were significant improvements in knowledge scores for dementia and depression (p < 0.001). Knowledge gains after the workshop were maintained at three-month follow-up. CONCLUSIONTraining of eldercare workers in mental healthcare is helpful for knowledge improvement and altering perceptions of caring for older persons. With continued support from mental health professionals, such training could contribute to better care for this vulnerable population.

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Dementia care mapping as a research tool for measuring quality of life in care settings: psychometric properties

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Cited by 109 publications

References 27 publications

The Assessment of Quality of Life in Dementia

The Assessment of Quality of Life in Dementia

Quality of life of elderly with alzheimer’s disease: a comparative study between the patient’s and the caregiver’s report

Training eldercare workers in mental healthcare

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