Depression, anxiety and quality-of-life among relatives of patients with severe brain injury: The acute phase

Norup, Anne; Welling, Karen-Lise; Qvist, J; Siert, Lars; Mortensen, Erik Lykke

doi:10.3109/02699052.2012.672790

Cited by 29 publications

(40 citation statements)

References 22 publications

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“…A. Livingston et al, 2010b;Manskow et al, 2015;McKinlay et al, 1981;Norup et al, 2010;Norup et al, 2012;Oddy et al, 1978). When the caregiver or close family member experiences lower burden, less anxiety and a good health, this has a positive impact on the person with severe TBI (O'Neill & Carter, 1998).…”

Section: Introductionmentioning

confidence: 99%

Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study

Manskow

Friborg

Røe

et al. 2017

NRE

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OBJECTIVE:To assess burden and life satisfaction in family members of patients with severe traumatic brain injury (sTBI) at 1 and 2 years post-injury, examine if change in burden can be predicted by family member and patient demographics, patient's functional status, family members social network or level of burden at 1 year. METHODS:Prospective national multicenter study. Self-report from family members, patient data collected from a national cohort study on patients with sTBI. 80 family members participated. MAIN OUTCOME MEASURE:The Caregiver Burden Scale (CBS), life satisfaction. RESULTS:Total burden increased between years 1 and 2 post-injury (P=0.04). Thirty percent of the family members reported an increased burden, 55% were stable, and 15% had a decrease in burden between the two follow-up times. Logistic regression analyses revealed that experiencing loneliness was an independent predictor of increased burden from 1 to 2 years post-injury (OR=4.35, P<0.05). Life Satisfaction was lower at the 2 year follow-up than at 1 year (p=0.03). CONCLUSIONS:The results demonstrate a need for long-term follow-up of patients and family members that focuses on professional support to relieve burden and risk of loneliness or social isolation. This group may benefit from additional follow-up interventions tailored to their needs.

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Section: Introductionmentioning

confidence: 99%

Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study

Manskow

Friborg

Røe

et al. 2017

NRE

View full text Add to dashboard Cite

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“…Increased burden is associated with elevated levels of stress, changes in health status, physical problems and emotional issues including depression and anxiety (Bayen et al, 2013;Carek et al, 2010;Lehan, Arango-Lasprilla, de los Reyes, & Quijano, 2012;Livingston et al, 2010;Norup, Welling, Qvist, Siert, & Mortensen, 2012;Turner et al, 2010). Family caregiving is also associated with increased levels of strain (Boycott, Yeoman, & Vesey, 2013).…”

Section: The Impact Of Family Caregivingmentioning

confidence: 99%

“…In a state of shock and anxiety, family members can have difficulties retaining the information that had been given to them, and this points to the need for timely, sensitive and adequate provision of information (Lefebvre & Levert, 2012b;Norup et al, 2012). The acute phase is characterised by the uncertainty of their relative's medical prognosis (Cameron & Gignac, 2008), and family members' common response to this situation is, "The question is, will he recover?"…”

Section: Onset Of Abi and The Acute Stagementioning

confidence: 99%

“…The validated and adapted SF-36 Health Survey for Australia was used (Sanson-Fisher & Perkins, 1998). The SF-36 has been used previously to investigate the well-being of families of individuals with ABI (Bayen et al, 2013;Epstein-Lubow, Beevers, Bishop, & Miller, 2009;McPherson, Wilson, Chyurlia, & Leclerc, 2011;Norup et al, 2012).…”

Section: Questionnairesmentioning

confidence: 99%

“…The DASS-21 has a high internal consistency of 0.93 and has reasonable validity and reliability (Henry & Crawford, 1995). This tool has been used previously to measure the emotional well-being of caregivers of individuals with ABI (Norup et al, 2012;Turner et al, 2010;Tverdov, McClure, Brownsberger, & Armstrong, 2016).…”

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Family members’ needs and experiences related to driving disruption following acquired brain injury

Liang¹

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Family members often assume the caregiving role after an individual sustains an acquired brain injury (ABI). A mandated period of driving disruption following an ABI means that individuals will often rely heavily on family members for transport and emotional support.However, research on driving disruption has largely focused on the impact, assessment and rehabilitation of the individual with ABI, with little attention given to family members. In order to develop an understanding for approaches to support family members better, this thesis aimed to explore the needs and experiences of family members during driving disruption following an ABI.The first aim of the thesis was to gain a broader understanding of the issue by conducting a scoping review of the literature on family members' needs and experiences during driving disruption across all health conditions. The scoping review found that driving disruption is a stressful and complex issue with communication and emotional implications for family members. The review highlighted differences in experiences according to health condition, permanence of driving disruption and nature of the caregiver occupation, and identified the need for further research on the issue of driving disruption for family members of individuals with ABI.A prospective, mixed methods, longitudinal study, with a phenomenological approach was conducted with family members of individuals with ABI who were experiencing driving disruption. Recruitment was stratified according to time post-ABI to gain a range of perspectives. Data were collected from 15 family members at three time-points: recruitment to study, 3 and 6 months later. Self-report questionnaires measuring family members' quality of life and well-being were administered at the first time-point, and semistructured interviews were conducted at each time-point. All interviews incorporated the use of a map to elicit qualitative and quantitative data about family members' current travel patterns as a result of driving disruption. The data were analysed using different approaches in a series of four studies.The first two studies aimed to gain an in-depth understanding about the experiences of family members of individuals experiencing driving disruption due to ABI across the recovery continuum. Both studies examined the mixed methods cross-sectional data from the first time-point. The first study explored the differences in family members' experiences iii at the early (<1 year post-ABI) and later stages (>1 year post-ABI) using a mixed methods, phenomenological approach. Family members in the later group reported more challenges with greater intensity. These challenges included changes in everyday activities, the impact on their emotions, consequences for the whole family, and effects on physical health. The later group had lower ratings of health and well-being, and higher caregiver strain.The second study investigated the specific changes family members experienced in everyday activities with a focus on the impact of driving disru...

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Psychosomatic symptom profiles in patients with restless legs syndrome

et al. 2013

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Depression, anxiety and quality-of-life among relatives of patients with severe brain injury: The acute phase

Abstract: The majority of the relatives had severely impaired quality-of-life and symptoms of anxiety and depression during the patient's NICU stay. Future research is required to explore stressors and evaluate effects of psychological intervention in the acute setting.

Cited by 29 publications

References 22 publications

Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study

Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study

Family members’ needs and experiences related to driving disruption following acquired brain injury

Psychosomatic symptom profiles in patients with restless legs syndrome

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