Designing a multicomponent intervention to support caregivers of persons with dementia in primary care in Spain: a qualitative study of family and professional carers

Abstract

ObjectiveThe purpose of this study was to explore experiences of family and professional caregivers of persons with dementia in order to design a tailored community-based support programme.DesignA two-stage study was deployed. First, qualitative research draws on three focus groups. Two of these comprised family caregivers and the third was made up of care provision professionals. Thematic content analysis was conducted by interpretative description for applied practice. Second, an experience-based codesign methodology was applied to design a tailored support programme in accordance with carers’ demands and contextual realities.Setting and study periodRural region in Catalonia, at northeast of Spain. March–June 2019.ParticipantsWe interviewed 12 family caregivers and 8 primary care providers.Results10 main themes were identified: caregivers’ feelings, repercussions of caregiving in caregivers’ lives, education about dementia and caring skills, education about time management and self-care, caregivers’ needs to receive more information and training, improved patients’ follow-up and social assistance and more psychologic support. Finally, three themes related to caregivers’ demands: social services resources, multidisciplinary approach programmes and support from other caregivers. From these results, a multicomponent, professionally led community-based intervention was designed. The main components were the following: education and caring skills, professional psychological support, and social and community resources.ConclusionThis study allowed the design of a multicomponent support intervention for family caregivers of persons with dementia aimed at reducing their burden and improving their quality of life in ways consistent with their actual needs and the available local resources.