Designing for and with People with Parkinson's

McNaney, Róisín; Balaam, Madeline; Holden, Amey; Schofield, Guy; Jackson, Dan; Webster, Mary; Galna, Brook; Barry, Gill; Rochester, Lynn; Olivier, Patrick

doi:10.1145/2702123.2702310

Cited by 36 publications

(25 citation statements)

References 30 publications

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“…Multiple studies have investigated the use of technologies for PwP, from assistive technologies that improve gait [31,7], to rehabilitation tools [32,39]. This section presents a review of previous work studying the interaction with touchscreens, in particular, studies that focused on PwP, people with motor impairments in their upper limbs, and older people.…”

Section: Related Workmentioning

confidence: 99%

User interface design guidelines for smartphone applications for people with Parkinson’s disease

Nunes

Silva

Cevada

et al. 2015

Univ Access Inf Soc

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Parkinson's disease (PD) is often responsible for difficulties in interacting with smartphones; however, research has not yet addressed these issues and how these challenge people with Parkinson's (PwP). This paper specifically investigates the symptoms and characteristics of PD that may influence the interaction with smartphones to then contribute in this direction. The research was based on a literature review of PD symptoms, eight semi-structured interviews with healthcare professionals and observations of PwP, and usability experiments with 39 PwP. Contributions include a list of PD symptoms that may influence the interaction with smartphones, a set of experimental results that evaluated the performance of four gestures tap, swipe, multiple-tap, and drag and 12 user interface design guidelines for creating smartphone user interfaces for PwP. Findings contribute to the work of re-

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Section: Related Workmentioning

confidence: 99%

User interface design guidelines for smartphone applications for people with Parkinson’s disease

Nunes

Silva

Cevada

et al. 2015

Univ Access Inf Soc

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“…It is considered a key intervention for some chronic respiratory conditions [26,27]. Despite being an important intervention, studies show that dropout rates are considerable, due to a variety of reasons including illness, hospitalization, tiredness and transport issues [28,29].…”

Section: Managing Chronic Respiratory Conditionsmentioning

confidence: 99%

“…This highlights how current models of self-tracking, which stress the importance of long-term consistent data points generated by the user [50], may not align with the symptom transience evident with CRCs. The notion of designing for symptom transience has been explored in HCI research around Parkinson's disease by McNaney et al [29] and Nunes and Fitzpatrick [11], describing the need for self-care tools to support variability in condition state. We place importance on self-monitoring tools for CRCs to be capable of adapting to reactive styles in management.…”

Section: Designing For Reactive Managementmentioning

confidence: 99%

Respiratory Self-Care

Tendedez

Ferrario

McNaney

et al. 2019

Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare

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Chronic respiratory conditions (CRCs) are life-long diseases affecting millions of people worldwide. They have a huge impact on individuals' everyday lives, resulting in a number of physical and emotional challenges. Self-management interventions for CRCs are thought to provide empowerment and improve quality of life. However, despite the number of people living with CRCs, most self-management tools in previous HCI work have been designed without the insight of those affected by the conditions. In this paper, we contribute to the literature by investigating the experiences and everyday challenges faced by those with CRCs, through the involvement of 156 participants via interviews and an anonymous survey. Our findings reveal the self-care challenges of CRCs and the reactive management approaches taken by participants. We conclude by providing a set of design implications that support the design of future self-management tools for CRCs. CCS CONCEPTS• Human-centered computing → Human computer interaction (HCI); Interaction design process and methods; User centered design

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“…Our design process uncovered the importance that the stammering community place upon being given a voice, whether it be a voice that stammers or not. This concept of giving voice to people with communication difficulties is echoed throughout the, somewhat limited, HCI literature which has attempted to engage people with communication impairment in design [11,24,25,26,41].…”

Section: Engaging People Who Stammer In Designmentioning

confidence: 99%

StammerApp

McNaney

Bull

Mackie

et al. 2018

Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems

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Stammering is a speech disorder affecting approximately 1% of the worldwide population. It can have associated impacts on daily life, such as loss of confidence in social situations and increased anxiety levels (particularly when speaking to strangers). Work exploring the development of digital tools to support people who stammer (PwS) is emerging. However, there is a paucity of research engaging PwS in the design process, with participation being facilitated mainly in testing phases. In this paper, we describe the user-centered design, development and evaluation of StammerApp, a mobile application to support PwS. We contribute insights into the challenges and barriers that PwS experience day-to-day and reflect on the complexities of designing with this diverse group. Finally, we present a set of design recommendations for the development of tools to support PwS in their everyday interactions, and provide an example of how these might be envisioned through the StammerApp prototype.

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Designing for and with People with Parkinson's

Cited by 36 publications

References 30 publications

User interface design guidelines for smartphone applications for people with Parkinson’s disease

User interface design guidelines for smartphone applications for people with Parkinson’s disease

Respiratory Self-Care

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