Designing Post-Trauma Self-Regulation Apps for People with Intellectual and Developmental Disabilities

Venkatasubramanian, Krishna K.; Ranalli, Tina-Marie

doi:10.1145/3517428.3544798

Cited by 7 publications

(4 citation statements)

References 50 publications

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“…Common Comorbid and Interrelated Psychological Traits Among Children ... Those with Intellectual Disability demonstrated a heightened likelihood for Phobic Disorders and Depression. This observation resonates with research indicating that individuals with intellectual disabilities are frequently exposed to trauma and adverse events, making them more susceptible to such psychological traits (Venkatasubramanian & Ranalli, 2022;Wigham & Emerson, 2015).…”

Section: Discussionsupporting

confidence: 77%

“…Parents of children with special needs, especially those with NDDs, often grapple with their own psychological distress and employ diverse coping mechanisms (Jadidi & Jadidi, 2020;Albustami, 2013). Children with Intellectual Developmental Disorders are notably vulnerable, frequently exposed to trauma and adverse life events (Venkatasubramanian & Ranalli, 2022;Wigham & Emerson, 2015). Specific Learning Disorders (SLD) are marked by impairments in reading, writing, or math skills.…”

Section: Comorbid and Interrelated Psychological Conditions Among Chi...mentioning

confidence: 99%

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Common Comorbid and Interrelated Psychological Traits Among Children with Neurodevelopmental Disorders

Abojedi,

Rasras,

Obaid

2024

IJSE

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Background: Neurodevelopmental Disorders (NDDs) in children present with complex psychological and behavioral symptoms, often complicating clinical assessment. The study provides an overview on comorbid psychological traits or psychiatric disorders in children with NDDs in Palestine, specifically focusing on Autism Spectrum Disorder (ASD), Attention Deficit/Hyperactivity Disorder (ADHD), Specific Learning Disorder (SLD), and Intellectual Developmental Disorder (IDD). Method: Using a Descriptive Analytic approach, 175 mothers rated their children’s psychological traits using a questionnaire developed from DSM 5 TR and ICD 11th criteria. The questionnaire covered 11 domains of comorbidity. Results: Notable relations were found that necessitate clinical attention. Specific disorders like Phobic Disorder, Camouflage and Noli Me Tangere were more prevalent in children with ASD, while Phobic Disorder followed by Depression was evident in IDD. ADHD and SLD majorly exhibit Phobic Disorder and Anxiety Disorder. The study highlighted evident comorbidity and interrelation of certain psychological traits/disorders among NDDs. Conclusions: Recognizing comorbid psychological traits in assessment can enhance case management, recognize individual and cultural differences, and improve care for individuals with NDDs.

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Section: Discussionsupporting

confidence: 77%

Section: Comorbid and Interrelated Psychological Conditions Among Chi...mentioning

confidence: 99%

Common Comorbid and Interrelated Psychological Traits Among Children with Neurodevelopmental Disorders

Abojedi,

Rasras,

Obaid

2024

IJSE

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“…Trauma-informed care recognizes the effects of trauma on users of digital health technologies and provides theoretical approaches and practical guidance for how such technologies can be designed to be emotionally safe and empowering for all users [34]. Indeed, several digital health interventions have adopted trauma-informed approaches in designing and developing digital health interventions or produced trauma-informed recommendations that can be used to adapt old interventions or develop new digital health services [35][36][37][38]. Other researchers have developed trauma-informed web heuristics for designing human-centered information systems, including digital health [39].…”

Section: Trauma-informed Care In Digital Healthmentioning

confidence: 99%

“…The search results did not reveal any scoping or systematic review that has been conducted on our proposed topic. However, the search did return relevant articles that were used in formulating our search terms [13,[35][36][37][38].…”

Section: Trauma-informed Care In Digital Healthmentioning

confidence: 99%

Trauma-Informed Care in Digital Health Technologies: Protocol for a Scoping Review

Abdulai¹,

Naghdali²,

Ghirmay³

et al. 2023

JMIR Res Protoc

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Background The use of digital health technologies is becoming increasingly common across the globe as they offer immense potential to enhance health care delivery by promoting accessibility, flexibility, and personalized care, connecting patients to health care professionals, and offering more efficient services and treatments to remote residents. At the same time, there is an increasing recognition of how digital health can inadvertently foment psychological trauma. This phenomenon has led to the adoption of trauma-informed care in designing and deploying digital health technologies. However, how trauma-informed care is defined and characterized, and the various trauma-informed care strategies used in designing and deploying digital health technologies remain unexplored. Objective This scoping review aims to explore and synthesize the literature on how trauma-informed care is defined and characterized in digital health and the various trauma-informed care principles, strategies, or recommendations used in designing and deploying digital health. Methods This review will draw on the Joanna Briggs Institute’s updated methodological guidance for scoping reviews. A search will be conducted on CINAHL, PubMed, Embase, Compendex Engineering Village, Web of Science, Scopus, and PsycINFO. This review will consider published research studies and unpublished work (gray literature). Studies will be included if they applied trauma-informed care in designing or deploying digital health for patients across all geographical locations or provide trauma-informed recommendations on how web developers should develop digital health. Studies will be limited to publications within the past 10 years and studies in all languages will be considered. Two independent reviewers will screen the titles and abstracts, and then perform a full-text review. Data will be extracted into a data extraction tool developed for this study. Results The scoping review was undergoing a full search as of April 2023. The main results will synthesize the peer-reviewed and gray literature on adopting trauma-informed care practices in digital health research and development. The study is expected to be completed by December 2023 and the results are expected to be published in a peer-reviewed journal. Conclusions This review is expected to provide the knowledge base on the adoption of trauma-informed care in designing and deploying digital health. This knowledge can lead to more engaging, and likely, more effective digital health interventions that have less potential for harm. A synthesis of the various trauma-informed care strategies in digital health will also provide a trauma-informed language by enabling researchers and digital health developers to consider trauma as a critical factor in each stage of the design process. International Registered Report Identifier (IRRID) DERR1-10.2196/46842

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Is Generative AI Increasing the Risk for Technology‐Mediated Trauma Among Vulnerable Populations?

Abdulai

2024

Nursing Inquiry

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The proliferation of Generative Artificial Intelligence (Generative AI) has led to an increased reliance on AI‐generated content for designing and deploying digital health interventions. While generative AI has the potential to facilitate and automate healthcare, there are concerns that AI‐generated content and AI‐generated health advice could trigger, perpetuate, or exacerbate prior traumatic experiences among vulnerable populations. In this discussion article, I examined how generative‐AI‐powered digital health interventions could trigger, perpetuate, or exacerbate emotional trauma among vulnerable populations who rely on digital health interventions as complementary or alternative sources of seeking health services or information. I then proposed actionable strategies for mitigating AI‐generated trauma in the context of digital health interventions. The arguments raised in this article are expected to shift the focus of AI practitioners against prioritizing dominant narratives in AI algorithms into seriously considering the needs of vulnerable minority groups who are at the greatest risk for trauma but are often invisible in AI data sets, AI algorithms, and their resultant technologies.

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Designing Post-Trauma Self-Regulation Apps for People with Intellectual and Developmental Disabilities

Cited by 7 publications

References 50 publications

Common Comorbid and Interrelated Psychological Traits Among Children with Neurodevelopmental Disorders

Common Comorbid and Interrelated Psychological Traits Among Children with Neurodevelopmental Disorders

Trauma-Informed Care in Digital Health Technologies: Protocol for a Scoping Review

Is Generative AI Increasing the Risk for Technology‐Mediated Trauma Among Vulnerable Populations?

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