Development and Initial Validation of a Parkinson’s Disease Caregiver Strain Risk Screen

Abendroth, Maryann

doi:10.1891/1061-3749.23.1.4

Cited by 8 publications

(6 citation statements)

References 24 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A 28-item scale developed from qualitative interviews with family caregivers of persons with PD. The Caregiver strain risk screen (CSRS) 95 has a 4-factor structure, including “self-preservation,” “nursing home consideration,” “coping through spirituality,” and “coping through formal support.” The scale demonstrated high internal consistency in a sample of 217 PD caregivers. Content validity was also supported by 13 clinicians.…”

Section: Measurement Of Caregiver Burden In Pdmentioning

confidence: 99%

Caregiver Burden in Parkinson Disease: A Critical Review of Recent Literature

Mosley

Moodie

Dissanayaka

2017

J Geriatr Psychiatry Neurol

230

287

View full text Add to dashboard Cite

Burden is a negative psychological state induced in caregivers by the demands of providing care to a person with an illness or a disability. Managing caregiver burden in Parkinson disease (PD) is significant because informal caregivers make a substantial contribution to the well-being of persons with PD, incurring financial, social, and personal losses. Failure to recognize and manage caregiver burden may lead to burnout and premature institutionalization of the person with PD. We conducted a comprehensive literature review to identify and summarize factors that may amplify burden, including motor and nonmotor symptoms of PD, caregiver psychiatric symptoms, and caregiver coping style. We review instruments designed to sample the construct of burden among caregivers and evaluate interventions that may reduce burden, either by directly targeting caregivers or by treating PD symptoms associated with burden. We aim to provide a concise synopsis of these issues for the clinician or researcher working with this population in order to facilitate recognition of caregiver burden, provide accurate assessment, administer appropriate interventions, and stimulate further research in this area.

show abstract

Section: Measurement Of Caregiver Burden In Pdmentioning

confidence: 99%

Caregiver Burden in Parkinson Disease: A Critical Review of Recent Literature

Mosley

Moodie

Dissanayaka

2017

J Geriatr Psychiatry Neurol

230

287

View full text Add to dashboard Cite

show abstract

“…One was a secondary analysis of the Parkinson's Spouse Project, which used a series of hierarchical multiple regressions to examine the contribution of age on both protective and negative aspects of the care situation (Carter, Lyons, Stewart, Archbold, & Scobee, 2010). Another was a Caregiver Strain Risk Screen instrument development study that could be used to assess the level of caregivers strain by nurses in health care settings (Abendroth, 2015). Seven studies were conducted in the United States, while others were conducted in the following three countries: Denmark, Singapore, and the United Kingdom.…”

Section: Family Caregivingmentioning

confidence: 99%

Nursing Research in Parkinson’s Disease From 2006 to 2015

Shin

Habermann

2016

Clin Nurs Res

View full text Add to dashboard Cite

Most people with Parkinson's disease (PD) reside in their homes with their family members. Nurses are in a good position to partner with people with PD and their family members for better self-management of the disease and improved quality of life. The purpose of this systematic review was to assess the state of the science of nursing research related to PD during the 10-year period, 2006 to 2015. A total of 27 studies were included in this review. Family caregiving was the most studied topic, followed by symptom management/medication adherence, quality of life, end-of-life/palliative care, and functional status/improving function. Recommendations for future studies in PD include (a) developing and testing interventions based on theoretical models in the areas of self-management, symptom management, and function improvement in people with PD and for caregivers caring for people with advanced stage PD, and (b) building programs of research with interprofessional teams.

show abstract

“…The individual becomes an informal carer rather than a partner and experiences high levels of burden and strain. [37][38][39][40] Given the progressive nature of Parkinson's disease and the increasing burden, especially as the patient moves from the maintenance to complex phase, regular assessment of the caregiver's needs in conjunction with referral to additional support services is imperative.…”

Section: Box 1 Vignette As Told By Tony and Jennymentioning

confidence: 99%