Development and multi-site validation of a new condition-specific quality of life measure for eating disorders

Abstract

Background: In eating disorders (EDs) treatment, outcome measurement has traditionally focused on symptom reduction rather than functioning or quality of life (QoL). Generic QoL measures lack sensitivity for some diagnoses and many not be responsive in eating disorder patients. This article describes the development and validation of a conditionspecific QoL measure for adolescents and adults with eating disorders -the Eating Disorders Quality of Life Scale (EDQLS).

Health‐related quality of life and eating disorders: A review and update

“…However, in 2006 and 2007, four EDspecific HRQOL instruments were reported. 4,5,7,64 As the authors of these instruments, we briefly describe them and summarize key features about them in the section below (also see Table 1). These instruments are the first of their kind in this area and provide researchers and clinicians several new options for assessing HRQOL in patients with ED.…”

“…Because the means of demonstrating validity and reliability are so varied across the four instruments, readers are referred to the original articles for details regarding the psychometric properties of the instruments. Adair et al 5 Las Hayas et al 64 Abraham et al 7 instrument is a 25-item, four domain, self-report questionnaire designed to assess HRQOL in adults with ED symptomatology. It was designed to apply to people who have symptoms commonly seen in patients with AN, BN, and EDNOS (BED or subclinical variants of these disorders).…”

“…It was validated in a multisite, longitudinal study. 5 The Health-Related Quality of Life in Eating Disorders Questionnaire. The Health-Related Quality of Life in Eating Disorders questionnaire (HeRQoLEDv2) 64 is the second version of the Spanish HeRQoLED.…”

“…Since then, many other researchers and clinicians have echoed his sentiments. [4][5][6][7][8][9][10][11] How Is Outcome Currently Measured in Patients with ED?…”

Subjective quality of life, self-esteem and social support in teenagres with endocrinological disturbances

“…Wynika to z niewłaściwych nawyków żywieniowych jak i z nadmiernej wagi przypisywanej własnemu wyglądowi (wzrost zachorowań na anoreksję i bulimię) [29]. Jednym z najczęściej występujących zaburzeń odżywiania okresu rozwojowego jest otyłość prosta [30].…”