Development and pilot of a burns-specific patient-reported experience measure

Hodgkinson, Emma L; Boullin, P.; Heary, S.; Grant, B.

doi:10.1016/j.burns.2019.03.002

Cited by 3 publications

(5 citation statements)

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“…There were not differences among sex, age and presence of FTB among these groups, while the less satisfied patients had significantly smaller injuries than the highly satisfied (median TBSA% [IQR] 0.5 [0.3-1.5] and 3.1 [0.7-6.6], p < .001). Although not significant, most of the less satisfied patients were out-patients and required less workload, when compared with the highly satisfied patients (out-patients = 10/13 and 54/109, p = .08; median [IQR] BSC = 7 [4][5][6][7][8][9][10][11][12][13][14] and 12 , p = .06), as shown in Table 3. Supplementary Table S7 compare the answers to the PS-RESKVA questions between highly satisfied and less satisfied individuals.…”

Section: Resultsmentioning

confidence: 96%

“… 1–4 However, research on burn care has often been conducted from the care provider´s perspective, overlooking patient reported experience measures (PREM). 5 …”

mentioning

confidence: 99%

“…[1][2][3][4] However, research on burn care has often been conducted from the care provider´s perspective, overlooking patient reported experience measures (PREM). 5 More than two decades ago, Norwegian researchers developed the Patient Satisfaction-Results and Quality (PS-RESKVA), a survey aiming to identify the major determinants of patient satisfaction after hospital care. 6 The survey was then adapted for surgical patients with questions regarding four themes: global satisfaction with treatment (GS), perceived quality of contacts with the nursing staff (QCN), perceived quality of contacts with medical staff (QCM), and provision of adequate treatment information (INF).…”

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confidence: 99%

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Patient Reported Experiences at a Swedish National Burn Centre

Pompermaier

Hagelsrum

Ydenius

et al. 2021

Journal of Burn Care &Amp; Research

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Introduction Previous studies have shown that burn patients were satisfied with the received care. Satisfaction was not strongly associated to burns or to psycho-social characteristics, suggesting that other factors, related to burn care specific aspects, may be important. The aim of this study was to analyse the independent effect of provided workload on the general satisfaction in adult patients at a Swedish national Burn Centre. Method The study population (n=122) included patients ≥18 years, treated at the Linköping Burn Centre between 2016 and 2017. Experienced burn care was evaluated with the PS-RESKA survey (score range: 0-4), and provided workload was scored with the Burn Scoring System (BSC). Groups were compared with χ2-test, MW-test, or Fisher´s exact test. Multivariable logistic regression analysed the independent effect of BSC on the outcome High Satisfaction (= score ≥3 to the survey-question: “How would you score your global experience at the Burn Centre?”). Results In-patients (n=60) had more often larger burns and required more workload than out-patients [median (IQR): TBSA%=6.3 (3-12.3) % vs. 0.7 (0.3-2) %, p<0.001; BSC=65 (25.5-135.5) vs. 6 (4-9), p<0.001]. Both groups were highly satisfied with the experienced care [mean score (SD)=3.68 (0.57) vs. 3.41 (0.77), p=0.03]. Neither characteristics of the patients (age, sex), nor TBSA% nor provided workload (BSC) were independently associated with High Satisfaction. Conclusion Regardless of burn severity, demographics and provided workload, adult patients with burns were highly satisfied with the experienced burn care. This finding suggested that the reason of the satisfaction was multifactorial.

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Section: Resultsmentioning

confidence: 96%

“… 1–4 However, research on burn care has often been conducted from the care provider´s perspective, overlooking patient reported experience measures (PREM). 5 …”

mentioning

confidence: 99%

mentioning

confidence: 99%

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Patient Reported Experiences at a Swedish National Burn Centre

Pompermaier

Hagelsrum

Ydenius

et al. 2021

Journal of Burn Care &Amp; Research

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“…Other services have seen the development of PREMs specifically for children. 31,32 Further consideration needs to be given to the collection of PREMs from the children that access the service, and how best to enable this.…”

Section: Discussionmentioning

confidence: 99%

“…Limitations include that the demographic of the patient focus groups was not fully representative of the population that accesses the LVSW, as children and adults can access the service. Other services have seen the development of PREMs specifically for children 31,32 . Further consideration needs to be given to the collection of PREMs from the children that access the service, and how best to enable this.…”

Section: Discussionmentioning

confidence: 99%

Development and pilot of a community low‐vision, service‐specific Patient‐Reported Experience Measure

Bartlett

Absalom

Williams

et al. 2023

Ophthalmic Physiologic Optic

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Purpose Patient‐Reported Experience Measures (PREMs) act to identify the patient's objective experience while receiving care. PREM data can provide feedback to professionals on patients' personal experience of care processes, quality of care and insight into patient expectations. This can support service improvements and person‐centeredness of care. Despite this, PREMs are not currently routinely collected for any primary eye care services in Wales, inclusive of the National Low Vision Service Wales (LVSW). The primary aim of this project was to develop and pilot a community low‐vision, service‐specific, PREM (LVSWPREM). Methods The development of the LVSWPREMs was performed in partnership with LVSW service users. Fourteen people attended three successive, 1.5‐h online focus groups, and informed the development of a draft of LVSWPREMs inclusive of item generation and face validity. Following several rounds of iterative improvements based on the feedback gathered during the focus groups, LVSWPREM V4.0 was agreed upon and piloted for a period of 3 months within Hywel Dda University Health Board. Reliability of the final LVSWPREM V4.0 was assessed using Cronbach α. Results The final LVSWPREMs consisted of two parts: (1) LVSW‐specific items and (2) a generic PREM tool approved by the Welsh Government for use across National Health Service Wales. Reliability analyses with item deletion were conducted for each construct separately using Cronbach α and were 0.94 and 0.63 for parts 1 and 2, respectively. Conclusion The LVSWPREM is a validated, reliable tool, which can be used to provide information regarding patients' experience of accessing a community‐based, low‐vision service. Developed in partnership with people with vision impairment, it has the potential to be useful as a means of patient engagement and improvement in the delivery of high‐quality healthcare.

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Patient‐Reported Experience Measures in Adult Inpatient Settings: A Systematic Review

Kang,

Guan,

Chen

et al. 2024

Journal of Nursing Management

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Background: Patient‐centered ideas have become the key indicator of medical service quality, and patient‐reported experience measures are ways to measure how well this idea is being implemented. There are currently numerous adult inpatient experience instruments available, and it is necessary to conduct such systematic reviews to discover any new instruments and help policymakers and researchers increase the likelihood of hearing true patients’ voices through appropriate selection of these instruments.Objective: To identify existing adult inpatient experience measures and to critically appraise their development design and psychometric testing results.Methods: EMBASE, PUBMED, Cochrane, CINAHL (EBSCOhost), PsycINFO, and ProQuest were searched from inception to March 2023. A comprehensive review following the Preferred Reporting Items for Systematic Reviews and Meta‐Analyses (PRISMA) guidelines was conducted. Studies were identified via specific search terms and inclusion criteria. The methodological quality assessment was evaluated according to the COnsensus‐based Standards for the selection of health Measurement INstruments (COSMIN) checklist.Results: A total of 29 articles reporting on 23 instruments were included. Each instrument demonstrated both satisfaction and disappointment during the development process and psychometric testing with the recommended criteria of the COSMIN checklist. Pilot tests and cognitive interviews were ignored or not reported in 9 studies. Only 5 studies evaluated the content validity. Among all measurement properties, internal consistency and structural validity were the two most frequently measured attributes. None of the 29 included studies assessed the responsiveness or measurement error of the scales.Conclusion: Among a variety of adult inpatient experience instruments, only a limited number of studies were methodologically sound. Further research still needs to be conducted for the development and validation of patient‐reported experience measures. New quality assessments, such as instrument utility, also should be implemented to provide a more complete evaluation of instruments in the information era.

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Development and pilot of a burns-specific patient-reported experience measure

Cited by 3 publications

References 10 publications

Patient Reported Experiences at a Swedish National Burn Centre

Patient Reported Experiences at a Swedish National Burn Centre

Development and pilot of a community low‐vision, service‐specific Patient‐Reported Experience Measure

Patient‐Reported Experience Measures in Adult Inpatient Settings: A Systematic Review

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