Development and psychometric validation of a questionnaire assessing the impact of tinnitus on significant others

Beukes, Eldré W.; Maidment, David W.; Andersson, Gerhard; Fagleson, Marc A; Heffernan, Eithne; Manchaiah, Vinaya

doi:10.1016/j.jcomdis.2021.106159

Cited by 4 publications

(5 citation statements)

References 61 publications

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“…Third-party disability for SOs of individuals with tinnitus has not previously been studied using a structured approach. To address this knowledge gap, the CTSOQ was designed and validated to determine the effects of tinnitus on SOs [ 19 ]. This study was the first to quantify third-party disability for 194 SOs of individuals with tinnitus.…”

Section: Discussionmentioning

confidence: 99%

“…SOs completed only one questionnaire, the Consequences of Tinnitus on Significant Others Questionnaire (CTSOQ; Cronbach’s α 0.93). The CTSOQ is a structured questionnaire, developed and validated previously [ 19 ], and consists of 25 questions which focus on four sub-scales: (a) observations about the individual with tinnitus (10 questions); (b) personal impact (4 questions); (c) relationship impact (5 questions); and (d) providing support (6 questions) [ 19 ]. Each item is scored on a 5-point Likert scale, ranging from strongly disagree (0), disagree (1), sometimes (2), agree (3), and strongly agree (4).…”

Section: Methodsmentioning

confidence: 99%

“… Table Scoring: The scores from the subscales are added together and the total score reported as a range between 0 to 100, with higher scores indicating substantial effects of tinnitus on SOs and their relationship. Scores between 0–25 indicate a mild impact, scores between 26–40 a moderate impact, and scores of 41–100 a significant impact [ 19 ]. …”

Section: Figurementioning

confidence: 99%

“…This may be partially due to no tool being available to quantify the impact of tinnitus on SOs, although such measures exist for hearing loss, such as the Significant Other Scale for Hearing Disability (SOS-HEAR) [ 18 ]. To enable the measurement of third-party disability for tinnitus, the Consequences of Tinnitus on Significant Others Questionnaire (CTSOQ) was developed and validated as a self-report measure for SOs with tinnitus [ 19 ]. The aim of the present study was to identify the impact of tinnitus on SOs using the CTSOQ and to examine whether there are any predictors of this impact based on the disease characteristics of individuals with tinnitus.…”

Section: Introductionmentioning

confidence: 99%

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Third-Party Disability for Significant Others of Individuals with Tinnitus: A Cross-Sectional Survey Design

2023

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There is currently increasing awareness of third-party disability, defined as the disability and functioning of a significant other (SO) due to a health condition of one of their family members. The effects of third-party disability on the SOs of individuals with tinnitus has received little attention. To address this knowledge gap, this study investigated third-party disability in the significant others (SOs) of individuals with tinnitus. A cross-sectional survey design included 194 pairs of individuals from the USA with tinnitus and their significant others. The SO sample completed the Consequences of Tinnitus on Significant Others Questionnaire (CTSOQ). Individuals with tinnitus completed standardized self-reported outcome measures for tinnitus severity, anxiety, depression, insomnia, hearing-related quality of life, tinnitus cognitions, hearing disability, and hyperacusis. The CTSOQ showed that 34 (18%) of the SOs were mildly impacted, 59 (30%) were significantly impacted, and 101 (52%) were severely impact. The clinical variables of tinnitus severity, anxiety, and hyperacusis in individuals with tinnitus were the best predictors of the impact of tinnitus on SOs. These results show that the SOs of individuals with tinnitus may experience third-party disability. The effect of the individual’s tinnitus on their SO may be greater when the individual with tinnitus has a higher level of tinnitus severity, anxiety, and hyperacusis.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Figurementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Third-Party Disability for Significant Others of Individuals with Tinnitus: A Cross-Sectional Survey Design

2023

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“…Future studies should make an effort to include a more representative sample of SOs. The consequences identified in this study were used to design a structured questionnaire for SOs to identify third-party disability for tinnitus [ 36 ]. This questionnaire can be used to identify the effects of undertaking tinnitus interventions on SOs.…”

Section: Discussionmentioning

confidence: 99%

The Effects of Tinnitus on Significant Others

Beukes

Ulep

Andersson

et al. 2022

JCM

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Although chronic conditions could cause third-party disability for significant others (SOs), little is known regarding the impact of tinnitus on SO. This study aimed to identify the effects of tinnitus on SOs. SOs of individuals with tinnitus were invited to participate in this study. SOs completed three open-ended questions focusing on the effects of tinnitus. Individuals with tinnitus completed the Tinnitus Functional Index as a self-reported measure of tinnitus severity. A mixed-methods analysis approach was undertaken. Of the 156 SOs responding, 127 (85%) reported that tinnitus impacted them. The impact surrounded sound adjustments, activity limitations, additional demands, emotional toll, and helplessness. Tinnitus negatively affected the relationship for 92 (58%) due to communication frustrations and growing apart. When asked if tinnitus had any positive effects, 64 (47%) SOs reported positive lifestyle adaptions, personal development, health awareness, and a changed outlook. There was no association between the level of tinnitus severity and SOs reporting that tinnitus had an impact on them individually, their relationships, or those reporting positive experiences. The study highlighted the third-party disability many SOs of individuals with tinnitus experience. The results indicate that SOs may benefit from a shared intervention to help mitigate the negative effects through a better understanding of tinnitus.

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The role of significant others in the process of internet-delivered intervention for tinnitus: a qualitative study

Eimontas,

Gegieckaitė,

Arcimavičiūtė

et al. 2024

Procedia Computer Science

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Development and psychometric validation of a questionnaire assessing the impact of tinnitus on significant others

Cited by 4 publications

References 61 publications

Third-Party Disability for Significant Others of Individuals with Tinnitus: A Cross-Sectional Survey Design

Third-Party Disability for Significant Others of Individuals with Tinnitus: A Cross-Sectional Survey Design

The Effects of Tinnitus on Significant Others

The role of significant others in the process of internet-delivered intervention for tinnitus: a qualitative study

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