Development and Validation of a Scale to Assess Caregiver Management Behaviors in Response to the Decreased Engagement of People with Dementia in Daily Activities

Wawrziczny, Emilie; Larochette, Clotilde; Pasquier, Florence; Antoine, Pascal

doi:10.1080/07317115.2019.1673525

Cited by 3 publications

(13 citation statements)

References 47 publications

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“…Conversely, the predominant use of positive stimulation behaviours is associated with more gratification and fewer negative consequences (Profile 3). As shown in previous studies, positive stimulation behaviours are associated with gratification and recognition for the caregivers and with preserved abilities and well‐being for PwDs by keeping them involved in their daily activities 2,6,13,15 . Moreover, the relationship is more satisfying and less stressful for both partners when caregivers adapt their management behaviours to the PwDs' symptoms and when they can take joint decisions concerning daily life 6,25,26 …”

Section: Discussionmentioning

confidence: 74%

“…The Control and Stimulation in Dementia Caregiving (CSDC) scale 15 assesses two facets of the management approaches of caregivers facing the disengagement from daily activities of the PwDs, with 13 items: seven for negative control and six for positive stimulation, rated on a five‐point scale (from 1 to 5). A higher score indicates that the participant either adopts more negative, directive and supervisory management behaviours or positive, stimulating and supportive management behaviours.…”

Section: Methodsmentioning

confidence: 99%

“…Participants' scores were then classified according to the two dimensions of the CSDC scale: 15 the positive stimulation dimension and the negative control dimension. On the vertical axis, the higher the scores, the more negative directive and or controlling behaviours were adopted.…”

Section: Methodsmentioning

confidence: 99%

“…Although this forced closeness may sometimes be experienced as an asset to strengthen the relationship, it is most often considered as a hindrance to their mutual activities and social networks, resulting in loneliness and burden 2,6 . Stimulation behaviours are associated with a sense of joy and gratification in caregivers 15 . These behaviours allow PwDs to continue their activities as long as possible and maintain their preserved capacities, and they also promote self‐esteem and well‐being 16,17 …”

Section: Introductionmentioning

confidence: 99%

“…Given the impact on caregivers' and PwDs' well‐being and on their relationship, it is crucial to better understand how caregivers deal with PwDs' disengagement. As suggested by Wawrziczny et al 15 . characterising the profile of caregivers according to their management behaviours would help identify the most vulnerable of them.…”

Section: Introductionmentioning

confidence: 99%

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Considering management behaviours to identify vulnerable caregivers of persons with dementia

Wawrziczny

Nandrino

2023

Psychogeriatrics

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Background: Persons with dementia gradually disengage from daily activities, and therefore require increasing daily support. Caregivers face a dilemma as to whether they should encourage the persons with dementia in terms of initiative and autonomy, or supervise and take charge of tasks, which may cause distress for both parties. This study seeks to better understand how caregivers manage the disengagement of the persons with dementia and the repercussions on their caregiving experience. Methods: A total of 217 caregivers participated. Their management behaviours and the characteristics of their caregiving experiences were assessed with questionnaires. A cluster analysis was first performed to identify possible profiles of management behaviours and comparison, which were then compared to identify the caregiving experience associated with each profile. Results: The first cluster (25.8% of the sample) corresponds to caregivers with high negative control behaviour scores and high positive stimulation behaviour scores; the second cluster (43.8% of the sample) corresponds to caregivers with low positive stimulation behaviour scores and high negative control behaviour scores; and the third cluster (30.4% of the sample) corresponds to caregivers with low negative control behaviour scores and high positive stimulation behaviour scores. Caregivers in Clusters 2 and 3 differ in terms of anxiety, depression, burden, gratification, health and financial problems. Cluster 1 is an intermediate profile with similar characteristics to Cluster 3. Conclusions: Our results support the idea of considering management behaviours to identify vulnerable caregivers and highlight the deleterious role of negative control behaviours, especially when they are not offset by positive protective stimulation behaviours.

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Section: Discussionmentioning

confidence: 74%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Considering management behaviours to identify vulnerable caregivers of persons with dementia

Wawrziczny

Nandrino

2023

Psychogeriatrics

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Hypnosis Intervention for Couples Confronted with Alzheimer’s Disease: Promising Results of a First Exploratory Study

Wawrziczny

Picard

Buquet

et al. 2022

JAD

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Background: Dementia has a negative impact on the quality of life of the person with dementia and their spouse caregivers, as well as on the couple’s relationship, which can lead to high levels of distress for both partners. Hypnosis has been shown to be effective in managing distress and increasing the quality of the relationship. Objective: The aim was to develop a standardized hypnosis intervention for couples confronted with Alzheimer’s disease and evaluate its feasibility, acceptability, and helpfulness in managing the distress of both partners and increasing the quality of the relationship. Methods: In a single-arm study, sixteen couples received the 8-week intervention. Qualitative and quantitative assessments were conducted pre- and post-intervention as well as three months after. Results: 88.9% of couples (n = 16) of the final sample (n = 18) completed the intervention. Despite the negative representations of hypnosis, several factors led couples to accept to participate in this study: positive expectations, professional endorsement, medical application, non-drug approach, home-based, free, flexible, and couple-based intervention. The results showed a significant decrease in distress for both partners. These effects were maintained three months after the intervention. Couples felt more relaxed, had fewer negative emotions, accepted difficulties more easily, were more patient, and reported better communication and more affection in the relationship. Conclusion: Overall, this pilot study shows the feasibility and acceptability of hypnosis with couples confronted with Alzheimer’s disease. Although measures of the preliminary pre- and post-intervention effects are encouraging, confirmatory testing with a randomized controlled trial is needed.

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Development of a Screening Tool for Assessing Sexual Difficulties Among Patients with Parkinson’s Disease: The PD-SDS

De Groote,

Dujardin,

Defebvre

et al. 2024

Journal of Parkinson’s Disease

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Background: People with Parkinson’s disease (PwPD) exhibit various sexual difficulties (SDs) that may be due to motor and/or nonmotor symptoms or the use of antiparkinsonian medication. SDs are often underreported by PwPD and underexplored by physicians. Objective: This study aimed to explore the SDs experienced by PwPD and create a scale for assessing them. Methods: A corpus of items was generated from semistructured interviews to represent the experience of PwPD as closely as possible. The number of items was reduced according to the psychometric properties, and the scale’s structure was subsequently examined. The final phase consisted of measuring the scale’s validity and reliability. Results: After assessment of the original corpus of 59 items by PwPD and clinicians, a 25-item version was obtained. The analysis of item properties led to the removal of fifteen items. An exploratory factor analysis of the first 10-item version with a first PwPD sample identified four components of the SDs among PwPD: “low sexual esteem,” “sexual displeasure,” “impact on sexual position” and “hypersexuality.” With a second PwPD sample, a confirmatory factor analysis demonstrated a satisfactory fit between the model with four components and the data. The 10-item scale had good internal consistency and good temporal reliability. Conclusions: The Parkinson’s Disease Sexual Difficulties Scale (PD-SDS) is a valid screening tool that facilitates the investigation of and communication about PD-related SDs. It is intended to improve the identification of vulnerable PwPD and to target the domain of sexual experience impacted by PD to better support PwPD.

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Development and Validation of a Scale to Assess Caregiver Management Behaviors in Response to the Decreased Engagement of People with Dementia in Daily Activities

Cited by 3 publications

References 47 publications

Considering management behaviours to identify vulnerable caregivers of persons with dementia

Considering management behaviours to identify vulnerable caregivers of persons with dementia

Hypnosis Intervention for Couples Confronted with Alzheimer’s Disease: Promising Results of a First Exploratory Study

Development of a Screening Tool for Assessing Sexual Difficulties Among Patients with Parkinson’s Disease: The PD-SDS

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