Development and validation of a quality of life questionnaire for patients with colostomy or ileostomy

Prieto, Luís; Thorsen, Hanne; Juul, Kristian Vinter

doi:10.1186/1477-7525-3-62

Cited by 142 publications

(81 citation statements)

References 17 publications

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“… MCOHQOLQO, Modified City of Hope Colorectal Cancer Quality of Life Questionnaire Ostomy ( n = 3) [ 7 ]. Stoma Quality of Life Questionnaire ( n = 1) [ 13 ]. The EORTC C30 in combination with the EORTC CR38 is developed for colorectal cancer patients including ostomates.…”

Section: Resultsmentioning

confidence: 99%

Ostomy-related problems and their impact on quality of life of colorectal cancer ostomates: a systematic review

et al. 2015

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AimMany long-term ostomates are ‘out-of-sight’ of healthcare, and it is unknown how ostomates deal with ostomy-related problems and how these problems affect their quality of life (QOL). The aim is to examine patient-related studies describing ostomy-related problems and their impact on the perceived QOL of long-term colostomates.MethodsThe electronic databases PubMed (MEDLINE), CINAHL, Cochrane Library and PsycINFO were systematically searched. All studies were included in which ostomy-specific QOL was measured using validated multidimensional instruments.ResultsOf the 6447 citations identified, 14 prevailingly descriptive cross-sectional studies were included. Three different validated multidimensional instruments for measuring QOL in ostomates were used (EORTC C30/CR38, MCOHQOLQO, Stoma QOL Questionnaire). All studies demonstrated that living with a colostomy influences the overall QOL negatively. The ostomy-related problems described included sexual problems, depressive feelings, gas, constipation, dissatisfaction with appearance, change in clothing, travel difficulties, feeling tired and worry about noises.ConclusionIn conclusion, all 14 studies gave an indication of the impact of ostomy-related problems on the perceived QOL and demonstrated that a colostomy influences the QOL negatively. There is a wide range of ostomy-specific QOL scores, and there seem to be higher QOL scores in the studies where the MCOHQOLQO instrument was used. The MCOHQOLQO and the Stoma QOL Questionnaire gave the most detailed information about which ostomy-related problems were experienced. This review adds knowledge about the impact of stoma-related problems on QOL of long-term ostomates, but more research has to be conducted, to detect ostomy-related problems and especially possible care needs.Electronic supplementary materialThe online version of this article (doi:10.1007/s11136-015-1050-3) contains supplementary material, which is available to authorized users.

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Section: Resultsmentioning

confidence: 99%

Ostomy-related problems and their impact on quality of life of colorectal cancer ostomates: a systematic review

et al. 2015

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“…Furthermore, diverting stomas are usually performed i n ISR because of the concern regarding anal dysfunction [ 11 12 ]. However, stomas negatively influence the patients' quality of life [ 2 4 13 14 15 16 ]; hence, most of the stomas are thought to be temporary. Most of the patients may undergo reversal surgery, but some of them should experience stoma re-creation.…”

Section: Introductionmentioning

confidence: 99%

Risk factors of stoma re-creation after closure of diverting ileostomy in patients with rectal cancer who underwent low anterior resection or intersphincteric resection with loop ileostomy

et al. 2018

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PurposeThe aim of this study was to identify the risk factors of stoma re-creation after closure of diverting ileostomy in patients with rectal cancer who underwent low anterior resection (LAR) or intersphincteric resection (ISR) with loop ileostomy.MethodsWe retrospectively reviewed 520 consecutive patients with rectal cancer who underwent LAR or ISR with loop ileostomy from January 2005 to December 2014 at Chonnam National University Hwasun Hospital. Risk factors for stoma re-creation after ileostomy closure were evaluated.ResultsAmong 520 patients with rectal cancer who underwent LAR or ISR with loop ileostomy, 458 patients underwent stoma closure. Among these patients, 45 (9.8%) underwent stoma re-creation. The median period between primary surgery and stoma closure was 5.5 months (range, 0.5–78.3 months), and the median period between closure and re-creation was 6.8 months (range, 0–71.5 months). Stoma re-creation was performed because of anastomosis-related complications (26, 57.8%), local recurrence (15, 33.3%), and anal sphincter dysfunction (3, 6.7%). Multivariate analysis showed that independent risk factors for stoma re-creation were anastomotic leakage (odds ratio [OR], 4.258; 95% confidence interval [CI], 1.814–9.993), postoperative radiotherapy (OR, 3.947; 95% CI, 1.624–9.594), and ISR (OR, 3.293; 95% CI, 1.462–7.417).ConclusionAnastomotic leakage, postoperative radiotherapy, and ISR were independent risk factors for stoma re-creation after closure of ileostomy in patients with rectal cancer.

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“…One of the main aims of treating ostomy patients is to improve the QOL and currently significant emphasis is given to this aspect [ 5 ]. However studies on QOL among stoma patients in the South Asian region are very scarce and sometimes not measured using validated instruments.…”

Section: Introductionmentioning

confidence: 99%

A cross-sectional study of quality of life in a cohort of enteral ostomy patients presenting to a tertiary care hospital in a developing country in South Asia

Jayarajah

Samarasekera

2017

BMC Res Notes

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BackgroundEnteral ostomy creation affects the quality of life (QOL) of stoma patients significantly. Studying the QOL and its determinants is important as it may help in the early identification of those with poor QOL leading to appropriate intervention. This study was aimed to assess the possible contributory factors of QOL of stoma patients.MethodsA cross sectional study was conducted among 43 ostomy patients who presented for follow up at a surgical clinic of a tertiary care hospital in Sri Lanka over a period of 1 year. Relevant demographic and ostomy related data were collected using an interviewer administered questionnaire. Stoma quality of life scale (Stoma-QOL) and stoma care self-efficacy scale (SCSE) which are validated questionnaires were used to assess QOL and self-efficacy in managing stoma respectively. Associations were established using independent samples t test and Spearman’s correlation.ResultsThe median age of the study participants was 47.5 years (range 18–83). The median follow up duration was 38 months (range 6–183). The mean overall QOL score was 53.07 ± SD 12.68. Approximately 70% of the study participants scored less than 60. Higher QOL was associated with female sex, colostomies, comfortable income and satisfactory sexual activity. Significantly lower overall QOL was found in those who reported a significant change in the style of dressing (p < 0.05), those who felt depressed (p < 0.05), and those who had thoughts of self-harm soon after surgery (p < 0.05). There was a significant positive correlation between QOL and self-efficacy (p < 0.01). Those who took longer time to learn to take care of the stoma had lower QOL (p < 0.05).ConclusionsThe overall QOL score was considerably low in our study. The QOL was significantly associated with self-efficacy which indicates the importance of patient education and training during follow up visits to maintain a higher QOL. Furthermore integrating with other non-surgical specialities to address multi-dimensional problems including psychosocial and sexual aspects may be helpful to achieve a better QOL.

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Development and validation of a quality of life questionnaire for patients with colostomy or ileostomy

Cited by 142 publications

References 17 publications

Ostomy-related problems and their impact on quality of life of colorectal cancer ostomates: a systematic review

Ostomy-related problems and their impact on quality of life of colorectal cancer ostomates: a systematic review

Risk factors of stoma re-creation after closure of diverting ileostomy in patients with rectal cancer who underwent low anterior resection or intersphincteric resection with loop ileostomy

A cross-sectional study of quality of life in a cohort of enteral ostomy patients presenting to a tertiary care hospital in a developing country in South Asia

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