Development and Validation of an Instrument for Assessing Patient Experience of Chronic Illness Care

Mira, José Joaquín; Nuño-Solinís, Roberto; Guilabert, Mercedes; Solas-Gaspar, Olga; Fernández-Cano, Paloma; González-Mestre, Maria Asunción; Contel, Joan Carlos; Río-Cámara, Mario del

doi:10.5334/ijic.2443

Cited by 63 publications

(113 citation statements)

References 38 publications

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“…The survey included multiple-choice questions concerning patient demographics and healthcare-related characteristics, the Instrument to Evaluate the EXperience of PAtients with Chronic diseases (IEXPAC) Questionnaire 16 and the Beliefs About Medicines (BMQ) Questionnaire 17 . Five non-adherence behaviors were agreed by both physicians and patients: (1) forgetfulness in taking medication resulting in skipped doses;…”

Section: Methodsmentioning

confidence: 99%

“…The IEXPAC tool, which was developed and validated in Spain 16 , was used to evaluate patients' experience with healthcare. IEXPAC is a 12-item instrument involving 11 items which refer to patients' experiences within the previous 6 months, and the 12th item concerning hospitalization, which refers to patient experience within the previous 3 years.…”

Section: Methodsmentioning

confidence: 99%

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Association between non-adherence behaviors, patients’ experience with healthcare and beliefs in medications: a survey of patients with different chronic conditions

Cea‐Calvo

Marín-Jiménez

Toro

et al. 2019

Current Medical Research and Opinion

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Objective: The objective of the current work was to assess the frequency of non-adherence behaviors and potential association with patients' experience with healthcare and beliefs in medicines selfreported by patients with four different chronic conditions. Methods: Patients responded anonymously to a survey comprising five non-adherence behaviors (based on physician and patient input), an assessment of patients' experience with healthcare using the validated Instrument to Evaluate the EXperience of PAtients with Chronic diseases (IEXPAC), and a validated Spanish version of the Beliefs about Medicines Questionnaire (BMQ). Associations of nonadherence behavior were analyzed using logistic regression models. Results: Of 1530 respondents, 53.1% reported !1 non-adherence behavior. Non-adherence rates were 59.8% in diabetes mellitus (DM), 56.0% in rheumatic disease, 55.6% in inflammatory bowel disease, and 42.8% in human immunodeficiency virus (HIV) infection patients (p < .001). IEXPAC and BMQ scores were higher in adherent vs. non-adherent patients. In multivariate analysis, non-adherence behavior was strongly associated with lower overall BMQ, lower BMQ Necessity scores and higher BMQ Concerns scores (p < .001 for all), and with a lower IEXPAC self-management score (p ¼ .007), but not with the overall IEXPAC score. Non-adherence was more frequent in DM patients compared with HIV infection patients (p < .001). Conclusions: Patients' beliefs in medicines-a lower perception for the necessity of medication, and higher concerns in taking medication-and low patient self-management experience score were associated with non-adherence behavior. These are modifiable aspects that need to be addressed to increase medication adherence in chronic disease.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Association between non-adherence behaviors, patients’ experience with healthcare and beliefs in medications: a survey of patients with different chronic conditions

Cea‐Calvo

Marín-Jiménez

Toro

et al. 2019

Current Medical Research and Opinion

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show abstract

“…Recently published papers in IJIC have also set out the results of new approaches seeking to develop tools for measuring the experience of patients with chronic illness care such as the IEXPAC [10], developed in Spain, or adaptations of existing surveys such as the Dutch validation of the Patient Perceptions of Integrated Care [11]. …”

mentioning

confidence: 99%

Measuring Integrated Care – The Quest for Disentangling a Gordian Knot

Nuño-Solinís

Stein

2016

International Journal of Integrated Care

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“…Additionally, there is insufficient independent scientific literature investigating personal experiences, challenges and barriers in chronic care. Consequently, validated measures and instruments are mostly missing, although new instruments to assess patients’ “experience of care” have been recently developed [27]. A systematic review to investigate the effectiveness of chronic care models for the management of type 2 diabetes mellitus (T2DM) in Europe concludes that there is only limited evidence from European cluster randomized controlled trials [28].…”

Section: Introductionmentioning

confidence: 99%

Individualising Chronic Care Management by Analysing Patients’ Needs – A Mixed Method Approach

Timpel

Lang

Wens³

et al. 2017

International Journal of Integrated Care

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Background:Modern health systems are increasingly faced with the challenge to provide effective, affordable and accessible health care for people with chronic conditions. As evidence on the specific unmet needs and their impact on health outcomes is limited, practical research is needed to tailor chronic care to individual needs of patients with diabetes. Qualitative approaches to describe professional and informal caregiving will support understanding the complexity of chronic care. Results are intended to provide practical recommendations to be used for systematic implementation of sustainable chronic care models.Method:A mixed method study was conducted. A standardised survey (n = 92) of experts in chronic care using mail responses to open-ended questions was conducted to analyse existing chronic care programs focusing on effective, problematic and missing components. An expert workshop (n = 22) of professionals and scientists of a European funded research project MANAGE CARE was used to define a limited number of unmet needs and priorities of elderly patients with type 2 diabetes mellitus and comorbidities. This list was validated and ranked using a multilingual online survey (n = 650). Participants of the online survey included patients, health care professionals and other stakeholders from 56 countries.Results:The survey indicated that current care models need to be improved in terms of financial support, case management and the consideration of social care. The expert workshop identified 150 patient needs which were summarised in 13 needs dimensions. The online survey of these pre-defined dimensions revealed that financial issues, education of both patients and professionals, availability of services as well as health promotion are the most important unmet needs for both patients and professionals.Conclusion:The study uncovered competing demands which are not limited to medical conditions. The findings emphasise that future care models need to focus stronger on individual patient needs and promote their active involvement in co-design and implementation. Future research is needed to develop new chronic care models providing evidence-based and practical implications for the regional care setting.

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Development and Validation of an Instrument for Assessing Patient Experience of Chronic Illness Care

Cited by 63 publications

References 38 publications

Association between non-adherence behaviors, patients’ experience with healthcare and beliefs in medications: a survey of patients with different chronic conditions

Association between non-adherence behaviors, patients’ experience with healthcare and beliefs in medications: a survey of patients with different chronic conditions

Measuring Integrated Care – The Quest for Disentangling a Gordian Knot

Individualising Chronic Care Management by Analysing Patients’ Needs – A Mixed Method Approach

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