Development and validation of CF-Medication Beliefs Questionnaire: A mixed-methods approach

Eakin, Michelle N.; Chung, Shang En; Hoehn, Jessica; Borrelli, Belinda; Rand-Giovannetti, Devin; Riekert, Kristin A.

doi:10.1016/j.jcf.2017.05.001

Cited by 10 publications

(5 citation statements)

References 36 publications

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“…To represent motivation as defined in the COM-B model (conscious, reflective, and learned reasons for taking medicine as prescribed) [ 19 ], several scales from the Beliefs About Medication Scale [ 27 , 29 , 30 ] were administered.…”

Section: Methodsmentioning

confidence: 99%

Text Messaging Adherence Intervention for Adolescents and Young Adults with Chronic Kidney Disease: Pilot Randomized Controlled Trial and Stakeholder Interviews

Eaton¹,

Comer²,

Pruette³

et al. 2020

J Med Internet Res

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Background Up to one-third of adolescents and young adults (11-21 years old) with chronic kidney disease exhibit suboptimal rates of adherence to renal-protective antihypertensive medications. Mobile health interventions may promote higher adherence to these medicines in these individuals, but empirical research is needed to inform best practices for applying these modalities. Objective In this multiphase investigation, we developed and tested a theoretically informed text messaging intervention based on the COM-B model, a well-established health intervention framework stating that capability, opportunity, and motivation interactively modify health behaviors, to improve participants’ antihypertensive medication adherence in a pilot randomized controlled trial. Qualitative data on user experiences were obtained. Methods In phase 1, intervention messages (Reminder+COM-B Message) were developed via stakeholder engagement of participants and pediatric nephrologists. In phase 2, the Reminder+COM-B Message intervention was tested against a Reminder-only Message active control condition in an 8-week pilot randomized controlled trial. The primary outcome was daily electronically monitored antihypertensive medication adherence and secondary outcomes included pre-post participant surveys of adherence self-efficacy, adherence barriers, outcome expectancies for taking medicine, and motivation for and importance of taking medicine. In phase 3, qualitative interviews related to user experiences were conducted with participants in the Reminder+COM-B Message intervention group. Results Following phase 1, 34 participants (mean age 16.59 years, 41% female, 38% African American/Black, 35% hypertension diagnosis) completed the phase 2 pilot randomized controlled trial (n=18 in the Reminder+COM-B Message intervention group, n=16 in the Reminder-only Message active control group). All participants in the Reminder+COM-B Message intervention group completed a phase 3 qualitative interview. Overall, study procedures were feasible and the Reminder+COM-B Message intervention was acceptable to the participants (eg, 15/18 participants reported reading the majority of messages sent to them, 0/18 reported that the messages reduced their desire to take medicine). Prerandomization, there were no significant group differences in the rate of change in daily adherence over time. However, postrandomization, there was a significant group by time interaction (B=.01, P=.04) in which daily adherence decreased significantly over time in the Reminder-only Message active control group but remained stable in the Reminder+COM-B Message intervention group. There were no significant differences between groups in pre-post changes in survey responses. Qualitative interviews revealed participants’ perceptions of how the Reminder+COM-B Message intervention changed adherence behavior and highlighted several areas for improving the intervention (eg, adapt messaging timing, intensity, and content to match daily adherence, send praise when medicine is taken). Conclusions The Reminder+COM-B Message intervention was feasible and acceptable to adolescents/young adults and demonstrated potential to promote participants’ daily medication adherence beyond simple reminders. Further research is needed to determine the Reminder+COM-B Message intervention’s mechanisms of adherence behavior change and to incorporate qualitative participant feedback into a modified version of this intervention to enhance its acceptability. Trial Registration ClinicalTrials.gov NCT03651596; https://clinicaltrials.gov/ct2/show/NCT03651596

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Section: Methodsmentioning

confidence: 99%

Text Messaging Adherence Intervention for Adolescents and Young Adults with Chronic Kidney Disease: Pilot Randomized Controlled Trial and Stakeholder Interviews

Eaton¹,

Comer²,

Pruette³

et al. 2020

J Med Internet Res

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“…Few validated measures are available such as CF-Responsibility, Independence, Self-care, Education (CF-RISE), Parental Knowledge of Disease Management-CF measure (KDM-CF-P), and CF-Medication Beliefs Questionnaire. 9,12,13 However, we aimed to assess the KAP of the caregivers in the Indian context. We, therefore, planned to develop and validate caregivers' CF-KAP questionnaire for the Indian population.…”

Section: Development Of the Kap Toolmentioning

confidence: 99%

Knowledge, attitude, and practices among caregivers of children with Cystic Fibrosis

Tiwari,

Sharma,

Joshi

et al. 2023

Pediatric Pulmonology

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BackgroundCaregivers have crucial role in the care of the children with Cystic Fibrosis (CF), but there is limited knowledge about their knowledge, attitude, and practices (KAP) regarding chronic disease. This pilot study aimed to validate a self‐developed KAP questionnaire for caregivers of young children with CF in India and determine factors associated with KAP.Materials and MethodsA cross‐sectional study was conducted among 95 caregivers of children with CF attending the specialty clinic of the pediatric outpatient department (OPD) in Northern India. Participants possessing certain characteristics such as willingness to participate and ability to understand Hindi or English language were enrolled in the study. Caregivers of children reported to the OPD with acute exacerbation requiring immediate hospitalization were excluded from the study.ResultsThe self‐developed KAP questionnaire had good content validity (CVI‐ 0.87−1.0) and internal consistency (Cronbach's α coefficient = 0.70, 0.71, 0.75 respectively). The majority of participants belonged to the Good KAP group (85.3%), while the remaining were in the Poor KAP group (14.7%). A χ2 test showed that KAP clusters vary significantly with sociodemographic variables like gender, marital status, educational status and monthly family income (p < .05). A weak negative correlation was found between knowledge and attitude scores in the Good KAP group (p < .001). Multiple linear regression analysis showed that the KAP of the caregivers was significantly influenced by knowledge related to clinical manifestation and complications, and attitude.ConclusionAll three sections of the KAP tool demonstrated good content validity and internal consistency. Caregivers had good knowledge, a positive attitude, and appropriate practices related to CF. However, targeted interventions are necessary to address specific areas for improvement, particularly for male caregivers with lower educational levels belonging to poor socioeconomic strata.

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“…Adolescents' levels of self-efficacy for taking their antihypertensive medications in different situations were assessed with the Riekert Self-Efficacy Scale, which included 12 items adapted from an existing, validated, measure for adults with cystic fibrosis (Eakin et al, 2017). Items were selected and worded to be appropriate for use with adolescents with CKD.…”

Section: Medication Self-efficacymentioning

confidence: 99%

Patient Health Beliefs and Characteristics Predict Longitudinal Antihypertensive Medication Adherence in Adolescents With CKD

Eaton

Eakin

Coburn

et al. 2018

Journal of Pediatric Psychology

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Development and validation of CF-Medication Beliefs Questionnaire: A mixed-methods approach

Cited by 10 publications

References 36 publications

Text Messaging Adherence Intervention for Adolescents and Young Adults with Chronic Kidney Disease: Pilot Randomized Controlled Trial and Stakeholder Interviews

Text Messaging Adherence Intervention for Adolescents and Young Adults with Chronic Kidney Disease: Pilot Randomized Controlled Trial and Stakeholder Interviews

Knowledge, attitude, and practices among caregivers of children with Cystic Fibrosis

Patient Health Beliefs and Characteristics Predict Longitudinal Antihypertensive Medication Adherence in Adolescents With CKD

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