Development of web‐based qualitative and quantitative data collection systems: Study on daily symptoms and coping strategies among Japanese rheumatoid arthritis patients

Abstract

With the sharp rise in Internet access in recent years, the Internet is increasingly being used for research. We have developed two new systems using the Internet for both quantitative and qualitative data collection. One is a dynamic system for creating questionnaires and collecting responses and the other is an individual patient support follow-up system. These systems do not depend on the capacity of computers or servers and enable researchers to interact with participants privately and asynchronously. We have used these systems to collect data on daily symptoms and journal entries from 12 community-dwelling women with rheumatoid arthritis (RA) for a minimum of 1 month. The mean number of data submissions per month was 14.2 +/- 7.8, with the majority recording entries every day, and some submitting several times a day. The combination of two types of data elucidated the changes in coping and coping strategies in conjunction with changes in symptoms, even in a single day, and the coexistence of positive and negative coping. Research participants benefited from web-based symptom management and counseling resulting from 1 month of frequent interactions with the researcher. The use of the Internet for nursing research and interventions thus seems to show promising results.

Online Self-Management in Rheumatoid Arthritis: A Patient-Centered Model Application

“…[42][43][44] RA clinics have shown efficient patientprofessional information transfer using online patient self-reports. [45][46][47] The American College of Physicians' Medical Home Monograph describes physicians using HIT to offer seamless, coordinated, patientcentered care 48 and Wagner's Chronic Care Model provides a framework for future collaborative care system. 49 This article describes the design and development of an interactive online environment for use in populations with chronic illness.…”

Coping in Young People With Chronic Kidney Disease (Ckd)

“…A variety of approaches have been used to understand the experience of coping. A study carried out by Kanzaki et al (2004) in Japan involved mixed methods to collect data relating to coping strategies from patients with rheumatoid arthritis (RA). On a given day, all participants were invited to compose diary entries and an on-line blog was also created for each participant, so that they could enter their events on coping with their illness.…”

Uso dos recursos de Internet na Enfermagem: uma revisão

“…A maioria dos trabalhos selecionados para esta área, enfoca o uso da Internet para a coleta de dados, relatando o processo de inclusão dos participantes pode ser feito on-line, assim como o envio e recebimento de formulários, questionários e/ou outros instrumentos de coleta de dados, acelerando todo o processo da pesquisa (60)(61)(62)(63)(64)(65)(66) .…”