2011
DOI: 10.1097/dbp.0b013e31822a27a2
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Developmental and Behavioral Disorders Grown Up: Duchenne Muscular Dystrophy

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Cited by 12 publications
(3 citation statements)
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“…DMD patients and their caregivers report significantly lower baseline health‐related quality of life (health perceptions, functional abilities, support, and economic status) than the general US population, which further declines as patients age 6,7 . Each of DMD’s physical stages of progression presents novel physical, emotional, social, and functional challenges 8 . The financial and emotional burdens that caregivers (usually family members) experience increase over time, concurrent with disease progression and caregiver aging 6,9,10 .…”
Section: Assessment Of the Relationship Between Disease Progression A...mentioning
confidence: 99%
See 1 more Smart Citation
“…DMD patients and their caregivers report significantly lower baseline health‐related quality of life (health perceptions, functional abilities, support, and economic status) than the general US population, which further declines as patients age 6,7 . Each of DMD’s physical stages of progression presents novel physical, emotional, social, and functional challenges 8 . The financial and emotional burdens that caregivers (usually family members) experience increase over time, concurrent with disease progression and caregiver aging 6,9,10 .…”
Section: Assessment Of the Relationship Between Disease Progression A...mentioning
confidence: 99%
“…6,7 Each of DMD's physical stages of progression presents novel physical, emotional, social, and functional challenges. 8 The financial and emotional burdens that caregivers (usually family members) experience increase over time, concurrent with disease progression and caregiver aging. 6,9,10 Finally, caregivers report very high levels of anxiety about their ability to care for their sons with DMD as they themselves age.…”
mentioning
confidence: 99%
“…Up to 44% of patients with DMD suffer from brain-related co-morbidities 8 . These co-morbidities impact social development 9 , 10 and associate with neurocognitive disability and worse prognostic outcomes 11 . Neurocognitive disabilities range from lower IQ, verbal and memory abnormalities, attention deficit hyperactivity disorder, anxiety, depression and autism 12 .…”
Section: Introductionmentioning
confidence: 99%