Die fremde Seele ist ein dunkler Wald

Gronemeyer, Reimer; Metzger, Jonas; Rothe, Verena; Schultz, Oliver

doi:10.30820/9783837973464

Cited by 3 publications

(2 citation statements)

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“…Nevertheless, more projects are needed to a) identify PwM with dementia and their needs and demands regarding the healthcare system, its services and information and b) support PwM with dementia and their families in their situation in relation to the healthcare system, service providers and policy makers. When doing so, it is imperative to include the people affected to obtain first-hand information from them on what is needed [ 5 ]. Furthermore, it is not enough to have single services and projects that attempt to determine what is needed for this population.…”

Section: Discussionmentioning

confidence: 99%

Dementia and migration: culturally sensitive healthcare services and projects in Germany

Öztürk¹,

Thyrian

2022

Z Gerontol Geriat

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Background There are approximately 96,500 people with a migration background (PwM) with dementia in Germany. They and their families face not only dementia-related challenges but also the challenge of having little knowledge about the healthcare system and its services and thus more difficulty in accessing support. Germany’s national dementia strategy recognises these individuals as a risk group and thus aims to expand the provision of culturally sensitive information and healthcare services. Objective To determine the amount of culturally sensitive information and healthcare services as well as projects on dementia and migration. Method With a scoping review the PsycInfo, PsycArticles and Psychology & Behavioral Sciences Collection databases, Google Search, the network map (Netzwerkkarte on the website www.demenz-und-migration.de) and the websites of various research funding bodies were used to find culturally sensitive information and healthcare services as well as current projects on dementia and migration. Results Listed are 45 care services as well as 3 additional projects that deal with dementia and migration at the local level. The geographical distribution of the offers shows that most of the services can be found in federal states where most PwM with dementia live. Discussion It is necessary to provide information and healthcare services in all regions and to adapt them to PwM. Different aspects and culturally sensitive measures are important when informing PwM with dementia, as such information can enable these individuals to access the healthcare system and help to provide them with care. It is important to bring together relevant stakeholders to provide access and services that improve the situation of PwM with dementia and their families.

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Section: Discussionmentioning

confidence: 99%

Dementia and migration: culturally sensitive healthcare services and projects in Germany

Öztürk¹,

Thyrian

2022

Z Gerontol Geriat

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“…The organization of healthcare systems and the healthcare concepts of the countries of origin and the host countries often differ considerably [ 15 , 16 ]. The lack of familiarity with the healthcare system, different perceptions, and stigmatization, together with other factors (convictions and beliefs about dementia (e.g., in some ethnic groups, the widespread perception that dementia is contagious or due to spiritual forces or punishment from God), cultural and language barriers, and inappropriate services [ 3 , 17 , 18 ]), result in underdiagnosis of dementia in PwM [ 19 ] and lower use of dementia-related healthcare services among this group [ 20 – 24 ]. Studies have shown that due to the migration background, the validity of the dementia diagnosis is often less accurate and reliable among PwM than in the general population [ 19 ].…”

Section: Introductionmentioning

confidence: 99%

How is migration background considered in the treatment and care of people? A comparison of national dementia care guidelines in Europe

et al. 2020

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Background People with a migration background are vulnerable to dementia. Due to problems such as underdiagnosis or access barriers, the care of this population is a public health challenge in Europe. Many countries are issuing care guidelines, but a systematic overview of their references to migration groups is lacking. This study aims to analyze national dementia care guidelines regarding their focus on people with a migration background, what specific actions to ensure healthcare have been undertaken at the national level, and whether recommendations for action are made for this population. Methods This study is a systematic analysis of national dementia care guidelines of the EU and EFTA (European Free Trade Association) countries. Using the discourse analysis model by Keller (2011), 43 documents from 24 EU and 3 EFTA countries were systematically screened for migration references via keyword and context analysis. The content of the migration-related section was paraphrased, memos and comments were added, and the individual text passages were coded using the strategy of open coding. Results Twenty-seven of the 35 EU and EFTA countries have guidelines or similar documents on care for people with dementia, and 12 refer to migration. Norway, Sweden, and Northern Ireland refer to this topic in detail. The focus of the migration-related guidelines is on the early detection and diagnosis of dementia. The main message is that standardized diagnostic tools such as the MMSE (Mini-Mental State Examination) or the clock test are not suitable for linguistic minorities. Nine countries make recommendations for the care of people with a migration background and dementia, but only Norway, Sweden, and Denmark point to available healthcare services. A key recommendation is that the linguistic and cultural background of people should be considered when selecting diagnostic tests. Several countries refer to the validity of the RUDAS (Rowland Universal Dementia Assessment Scale) for migrants. Conclusions The topic of migration plays a subordinate role in the dementia care guidelines of European countries. Almost all countries lack appropriate diagnostic tools and healthcare services for people with a migration background. Consequently, this group is vulnerable to underdiagnosis and a lower level of care.

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What elements are important in current treatment and care guidelines to provide culturally sensitive care for people with a migration background and dementia? A systematic analysis

Schmachtenberg

Thyrian

2021

J Public Health (Berl.)

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Die fremde Seele ist ein dunkler Wald

Cited by 3 publications

References 0 publications

Dementia and migration: culturally sensitive healthcare services and projects in Germany

Dementia and migration: culturally sensitive healthcare services and projects in Germany

How is migration background considered in the treatment and care of people? A comparison of national dementia care guidelines in Europe

What elements are important in current treatment and care guidelines to provide culturally sensitive care for people with a migration background and dementia? A systematic analysis

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