Differences in Societal Participation Across Diagnostic Groups: Secondary Analyses of 8 Studies Using the Utrecht Scale for Evaluation of Rehabilitation-Participation

Mol, T. I.; Bennekom, Coen van; Schepers, Vera P. M.; Hoeve, Nienke ter; Reenen, Esther T. Kruitwagen-van; Visser-Meily, J. M. A.; Post, Marcel W M

doi:10.1016/j.apmr.2021.02.024

Cited by 8 publications

(4 citation statements)

References 43 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…As a reference, in other patients with non-COVID-19 (ie, stroke, acquired brain injury, progressive neurological diseases, spinal cord injury and acute coronary syndrome), participation levels between 70.6 and 83.5 have been observed. [35][36][37] In all non-COVID patient groups, patients mainly reported restrictions in work/education, housekeeping, physical exercise and performing leisure activities, which is in accordance with restrictions in participation reported in the current study. 36 37 Moreover, these results showed that higher scores of selfexperienced breathlessness or fatigue and more perceived limitations in daily life in the early phase of rehabilitation were associated with a delayed recovery of participation levels over the first year.…”

Section: Discussionsupporting

confidence: 88%

“…Mean participation levels increased to 86.1 1 year after ICU discharge. As a reference, in other patients with non-COVID-19 (ie, stroke, acquired brain injury, progressive neurological diseases, spinal cord injury and acute coronary syndrome), participation levels between 70.6 and 83.5 have been observed 35–37. In all non-COVID patient groups, patients mainly reported restrictions in work/education, housekeeping, physical exercise and performing leisure activities, which is in accordance with restrictions in participation reported in the current study 36 37…”

Section: Discussionsupporting

confidence: 87%

See 1 more Smart Citation

Life after COVID-19: the road from intensive care back to living – a prospective cohort study

et al. 2022

View full text Add to dashboard Cite

ObjectivesThe aim of the study was to evaluate recovery of participation in post-COVID-19 patients during the first year after intensive care unit (ICU) discharge. The secondary aim was to identify the early determinants associated with recovery of participation.DesignProspective cohort study.SettingCOVID-19 post-ICU inpatient rehabilitation in the Netherlands, during the first epidemic wave between April and July 2020, with 1-year follow-up.ParticipantsCOVID-19 ICU survivors ≥18 years of age needing inpatient rehabilitation.Main outcome measuresParticipation in society was assessed by the ‘Utrecht Scale for Evaluation of Rehabilitation-Participation’ (USER-P) restrictions scale. Secondary measures of body function impairments (muscle force, pulmonary function, fatigue (Multidimensional Fatigue Inventory), breathlessness (Medical Research Council (MRC) breathlessness scale), pain (Numerical Rating Scale)), activity limitations (6-minute walking test, Patient reported outcomes measurement information system (PROMIS) 8b), personal factors (coping (Utrecht Proactive Coping Scale), anxiety and depression (Hospital Anxiety and Depression Scale), post-traumatic stress (Global Psychotrauma Screen—Post Traumatic Stress Disorder), cognitive functioning (Checklist for Cognitive Consequences after an ICU-admission)) and social factors were used. Statistical analyses: linear mixed-effects model, with recovery of participation levels as dependent variable. Patient characteristics in domains of body function, activity limitations, personal and social factors were added as independent variables.ResultsThis study included 67 COVID-19 ICU survivors (mean age 62 years, 78% male). Mean USER-P restrictions scores increased over time; mean participation levels increasing from 62.0, 76.5 to 86.1 at 1, 3 and 12 months, respectively. After 1 year, 50% had not fully resumed work and restrictions were reported in physical exercise (51%), household duties (46%) and leisure activities (29%). Self-reported complaints of breathlessness and fatigue, more perceived limitations in daily life, as well as personal factors (less proactive coping style and anxiety/depression complaints) were associated with delayed recovery of participation (all p value <0.05).ConclusionsThis study supports the view that an integral vision of health is important when looking at the long-term consequence of post-ICU COVID-19. Personal factors such as having a less proactive coping style or mental impairments early on contribute to delayed recovery.

show abstract

Section: Discussionsupporting

confidence: 88%

Section: Discussionsupporting

confidence: 87%

Life after COVID-19: the road from intensive care back to living – a prospective cohort study

et al. 2022

View full text Add to dashboard Cite

show abstract

“…While there are no clinical cut-offs on this scale, data in the present study were comparted to mean scores for stroke and ABI groups in previous literature. Mean scores for these groups show restrictions to be between 78 and 81 and satisfaction between 68 and 72 ( 16 , 17 ).…”

Section: Methodsmentioning

confidence: 99%

Trajectories of fatigue and related outcomes following mild acquired brain injury: a multivariate latent class growth analysis

Smejka,

Verberne,

Schepers

et al. 2024

JRM

View full text Add to dashboard Cite

Objective: Fatigue is a common symptom following acquired brain injury although the severity and course differs for many individuals. This longitudinal study aimed to identify latent trajectory classes of fatigue and associated outcomes following mild brain injury. Methods: 204 adults with mild traumatic brain injury (159; 78%) or minor stroke (45; 22%) were assessed 4 times over 1 year. Subjective measures of fatigue, anxiety, depression, cognitive complaints and societal participation were collected. Multivariate Latent Class Growth Analysis identified classes of participants with similar longitudinal patterns. Demographic and injury characteristics were used to predict class membership. Results: Analysis revealed four classes. Class 1 (53%) had mild, decreasing fatigue with no other problems. Class 2 (29%) experienced high persistent fatigue, moderate cognitive complaints and societal participation problems. Class 3 (11%) had high persistent fatigue with anxiety, depression, cognitive complaints and participation problems. Class 4 (7%) experienced decreasing fatigue with anxiety and depression but no cognitive or participation problems. Women and older individuals were more likely to be in class 2. Conclusion: Half the participants had a favourable outcome while the remaining classes were characterised by persistent fatigue with cognitive complaints (class 2), decreasing fatigue with mood problems (class 4) or fatigue with both cognitive and mood problems (class 3). Fatigue treatment should target combinations of problems in such individual trajectories after mild brain injury.

show abstract

“…To enable comparison with the domain scores of the Life-H, items of the USER-Participation were sorted into 3 domains: Productivity, Leisure, and Social within each scale, as described in a recent publication. 26 …”

Section: Methodsmentioning

confidence: 99%

Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation

AlphenMedicine

Voorman

Scholten

et al. 2022

Archives of Rehabilitation Research and Clinical Translation

View full text Add to dashboard Cite

Differences in Societal Participation Across Diagnostic Groups: Secondary Analyses of 8 Studies Using the Utrecht Scale for Evaluation of Rehabilitation-Participation

Abstract: Differences in societal participation across diagnostic groups: Secondary analyses of eight studies using the Utrecht Scale for Evaluation of Rehabilitation-Participation,

Cited by 8 publications

References 43 publications

Life after COVID-19: the road from intensive care back to living – a prospective cohort study

Life after COVID-19: the road from intensive care back to living – a prospective cohort study

Trajectories of fatigue and related outcomes following mild acquired brain injury: a multivariate latent class growth analysis

Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation

Contact Info

Product

Resources

About