Digitized Data as a Political Object

Dowd, Rebekah

doi:10.1007/978-3-030-82969-8_1

Cited by 1 publication

(1 citation statement)

References 54 publications

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“…First, the extension, realization, and protection of existing human rights in the digital space and over personal, digitized data (eg, freedom of expression). Second, the discussion around emerging human rights to access, use, and participate in the digital space (eg, the right to internet access) [ 5 ]. For this study, digital rights are all existing and emerging human rights that extend to, and relate to accessing and protecting, participation in the digital space.…”

Section: Introductionmentioning

confidence: 99%

Digital Rights and Mobile Health in Low- and Middle-Income Countries: Protocol for a Scoping Review

Poulsen,

Song,

Fosch-Villaronga

et al. 2023

JMIR Res Protoc

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Background Digital technology is a means to uphold or violate human rights in various domains, including business, military, and health. Given the pervasiveness of mobile technology in low- and middle-income countries (LMICs), mobile health (mHealth) interventions present an opportunity to reach remote populations and enable them to exercise civil and political rights and economic, social, and cultural rights, such as the right to health and education. Simultaneously, the ubiquity of mobile phones involves processing sensitive data which can threaten rights, including the right to privacy and nondiscrimination. Digital health is often promoted as advancing human rights and health equity; however, digital rights are underexplored in the literature on mHealth in LMICs. As such, creating an understanding of the digital rights topics covered in the 2022 literature is important to avoid exacerbating existing inequities relating to digital health design, use, implementation, and access. Objective This scoping review aims to identify digital rights topics in the 2022 peer-reviewed literature on mHealth in LMICs. Methods The Arksey and O’Malley framework for scoping reviews guides this review. Searches were performed across 7 electronic databases (Web of Science, Scopus, Ovid, ACM Digital Library, IEEE Xplore, ProQuest, and PubMed). The screening processes were guided by the research question “What digital rights topics have been explored in the 2022 literature on mHealth in LMICs?” Only papers addressing mHealth in LMICs and digital rights topics were included. Data extraction will include publication title, year, and type; first author’s affiliation country; LMICs implicated; infrastructure challenges; study aims, design, limitations, and future work; health area; mHealth technology, functions, purpose or application, and target end users; human or digital right terms used; explicit rights topics cited; and implied rights topics. The results will be reported using the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews) checklist. Results This scoping review was registered in Open Science Framework (December 22, 2022). Title and abstract screening and full-text paper screening were completed in 2023. This resulted in 56 papers being included in the study. The target date for completing data extraction and publishing a case study of the initial findings is the end of 2023. The full scoping review findings are expected to be disseminated through various pathways benefiting academia, practice, and policy making by the end of 2024. These include journal papers, conference presentations, publicly available toolkits for research and practice, public webinars, and policy briefs with evidence-based policy recommendations emerging from this review. Conclusions The planned scoping review will identify digital rights topics in the 2022 literature at the intersection of mHealth and LMICs. Furthermore, it will highlight the importance of patient empowerment, data protection, and inclusion in mHealth research and related policies in LMICs. Trial Registration Open Science Framework osf.io/7mz24; https://osf.io/7mz24 International Registered Report Identifier (IRRID) DERR1-10.2196/49150

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Section: Introductionmentioning

confidence: 99%