Distressing and positive experiences and important aspects of care for adolescents treated for cancer. Adolescent and nurse perceptions

Hedström, Mariann; Skolin, Inger; Essén, Louise von

doi:10.1016/j.ejon.2003.09.001

Cited by 81 publications

(70 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Therefore, we illustrated this impact of fatigue on quality of life from the child or adolescent perspective in Table 1. Thematic analysis, of the direct quotes, resulted in the identification of themes related to: can't do the things they Aspects of study published in 5 publications, [16-18, 24, 41] b Adolescent participants also reported in 2 publications, [8,39] c…”

Section: Resultsmentioning

confidence: 99%

“…[32] Of the 3,191 unique references identified by the search strategy, 86 were retrieved in full and assessed for eligibility. Of the retrieved full text publications, 68 were excluded, leaving a total of 18 publications which were included in this systematic review [10,16,17,24,[34][35][36][37][38][39][40][41][42][43][44][45][46]. Table 1 illustrates the characteristics of the included publications.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

The lived experience of fatigue in children and adolescents with cancer: a systematic review

Tomlinson

Zupanec

Jones

et al. 2016

Support Care Cancer

View full text Add to dashboard Cite

Purpose Objectives of this systematic review were to summarize how fatigue has been described from the perspective of children and adolescents with cancer, the impact of fatigue on quality of life, and child reported contributing factors and potential alleviators of fatigue. Methods We conducted electronic searches of Ovid Medline, EMBASE, PsycInfo, Science Citation, Social Science Citation (Web of Science), and CINAHL. We included studies of children and adolescents with cancer in which the experience of fatigue was described by the child/adolescent. The search was restricted to publications in English. Themes were summarized. Results Eleven studies were represented in 18 publications. Ages of included children ranged from 6 to 19 years. Majority of studies used semi-structured interviews to elicit participant's perceptions of fatigue. Terms used to describe fatigue included the following: tiredness, weary, loss of strength, dizziness, feeling drained, feeling drowsy, lacking motivation, exhaustion, and feeling emotional. Impact of fatigue related to not being able to participate in regular activities; needing to sleep or rest more; and impact on psychosocial health. Perceived alleviators of fatigue included exercise, distraction, rest, eating, and drinking. Conclusions Fatigue is impactful from the perspective of children and adolescents. Future research should focus on prospective exploration of the impact of fatigue on pediatric cancer patients and identifying approaches to reduce fatigue.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

The lived experience of fatigue in children and adolescents with cancer: a systematic review

Tomlinson

Zupanec

Jones

et al. 2016

Support Care Cancer

View full text Add to dashboard Cite

show abstract

“…[17][18][19]23,33,34,37,[39][40][41][42][43]48,55,68,72,73,[80][81][82][83][84] Distress caused by fatigue was the most commonly described impact, reported in 11 studies. The MSAS, a scale that allows comparison of the level of distress caused by each symptom, was used in six of these studies.…”

Section: Impact Of Fatiguementioning

confidence: 99%

“…All were published between 1992 and 2013. The 60 articles encompassed a total of 52 separate studies, as four pairs of articles 23,[29][30][31][32][33][34][35] and two groups of three articles [36][37][38][39][40][41] were publications describing different aspects of the same study's data set. It was decided to handle these as different studies, because of their distinct areas of focus.…”

Section: Description Of Articlesmentioning

confidence: 99%

Teenage and Young Adult Cancer-Related Fatigue Is Prevalent, Distressing, and Neglected: It Is Time to Intervene. A Systematic Literature Review and Narrative Synthesis

Spathis

Grove

Hatcher

et al. 2015

Journal of Adolescent and Young Adult Oncology

View full text Add to dashboard Cite

Purpose: Cancer-related fatigue in adults has been the subject of considerable recent research, confirming its importance as a common and debilitating symptom, and establishing a number of evidence-based interventions. There has, however, been limited focus on the fatigue suffered by teenagers and young adults with cancer, a group recognized as having unique experiences and developmental needs. We have undertaken a systematic review of the literature to provide a comprehensive overview of studies evaluating fatigue in this younger patient group in order to guide clinical practice and future research. Method: We searched MEDLINE, EMBASE, PsycINFO, and CINAHL databases for literature containing data relating to any aspect of fatigue in patients aged 13-24 at cancer diagnosis or treatment. Results: Sixty articles were identified, of which five described interventional clinical trials. Cancer-related fatigue was consistently one of the most prevalent, severe, and distressing symptoms, and it persisted long-term in survivors. It was associated with a number of factors, including poor sleep, depression, and chemotherapy. There was little evidence for the effectiveness of any intervention, although exercise appears to be the most promising. Importantly, fatigue was itself a significant barrier to physical and social activities. Conclusion: Cancer-related fatigue is a major and disabling problem in young cancer patients. Effective management strategies are needed to avoid compounding the dependence and social isolation of this vulnerable patient group. Future research should focus on providing evidence for the effectiveness of interventions, of which activity promotion and management of concurrent symptoms are the most promising.

show abstract

“…Most of these constructs have been broadly studied in adults (for review, see Helgeson et al, 2006), but less so in pediatric research. Although some previous studies included some of these constructs (Currier et al, 2009;Phipps et al, 2007;Hedström, Skolin & von Essen, 2004), their association with BF is still poorly understood.…”

Section: Benefit Finding and Well-being In Children With Life Threatementioning

confidence: 99%

Benefit finding and well-being in children with life threatening illnesses: An integrative study

2013

View full text Add to dashboard Cite

Objective. We examined whether benefit finding (BF) in children with a life-threatening illness (such as cancer or organ transplantation) would be related to a wide range of positive and negative measures of psychological functioning and some medical variables. Methods. A sample of children with a life threatening illness (N=67, ages 7-18 years) completed the Benefit Finding Scale for Children (BFSC) and other positive and negative measures of psychological functioning. Results. Children exposed to a moderate severity of their disease had the strongest levels of BF. While BF was positively associated with different dimensions of well-being, it was generally not related to distress with some exceptions in the health-related quality of life domain. Conclusion. Our results showed that BF reflects a positive outcome in its own right and not just a mere reduction of distress. Yet, there are some health-related domains of quality of life that should be considered in therapeutic intervention to facilitate BF. Key words: benefit finding, childhood cancer, optimism, positive affect, personal strenghts. ResumenObjetivo. Examinamos en qué medida la percepción de beneficios o benefit finding (BF) en niños con una enfermedad amenazante para la vida (como el cáncer o el trasplante de órganos) estaría relacionado con un rango de medidas positivas y negativas de funcionamiento psicológico así como con algunas variables médicas. Método. Una muestra de niños con una enfermedad amenazante para la vida (N=67, edad entre 7 y 18 años) completaron la Escala de Percepción de Beneficios para Niños (Benefit Finding Scale for Children, BFSC) y otras medidas positivas y negativas de funcionamiento psicológico. Resultados. Los niños expuestos a una enfermedad de gravedad moderada mostraron niveles más altos de BF. BF se asoció positivamente a diferentes dimensiones de bienestar. Sin embargo, no se encontró relación con medidas de malestar, a excepción de algunos dominios de calidad de vida relacionados con la enfermedad. Conclusión. Estos resultados mostraron que el BF refleja un resultado positivo en sí mismo y no una mera reducción de malestar. A pesar de eso, deben considerarse algunos dominios de calidad de vida relacionados con la salud a la hora de realizar intervenciones terapéuticas para facilitar la percepción de beneficios. Palabras clave: percepción de beneficios, cáncer infantil, optimismo, afecto positivo, fortalezas personales.

show abstract

Distressing and positive experiences and important aspects of care for adolescents treated for cancer. Adolescent and nurse perceptions

Cited by 81 publications

References 20 publications

The lived experience of fatigue in children and adolescents with cancer: a systematic review

The lived experience of fatigue in children and adolescents with cancer: a systematic review

Teenage and Young Adult Cancer-Related Fatigue Is Prevalent, Distressing, and Neglected: It Is Time to Intervene. A Systematic Literature Review and Narrative Synthesis

Benefit finding and well-being in children with life threatening illnesses: An integrative study

Contact Info

Product

Resources

About