Do Patients With Schizophrenia Wish to Be Involved in Decisions About Their Medical Treatment?

Hamann, Johannes; Cohen, Rudolf; Leucht, Stefan; Busch, Raymonde; Kissling, Werner

doi:10.1176/appi.ajp.162.12.2382

Cited by 215 publications

(170 citation statements)

References 6 publications

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“…Both the health care professional and the patient engage in deliberation and take the decision. Self-determination of patients and their right to a comprehensive explanation of the illness and all its treatment possibilities are the fundamental prerequisites of this model [8]. The model contrasts with (i) the 'paternalistic' model, where information is given to the patient and the deliberation and decision are made by the health care professional, or (ii) an 'informed' model, where information is given to the patient and the patient deliberates and decides [9].…”

Section: Shared Decision-makingmentioning

confidence: 99%

“…Hamann et al [8] showed that the desire to participate in decision-making was higher in inpatients with experiences of involuntary treatment, with negative attitudes toward medication, with a higher level of education, with lower treatment satisfaction (e.g. general treatment satisfaction, trust in clinicians, and fairness), with better-perceived decision-making skills, in patients of female gender and in younger patients., It was, furthermore, demonstrated that patients with schizophrenia strongly wish to participate in medical decisions on an equal footing with their doctors, rather than to completely take over decisional control [8,14,15].…”

Section: Preferences For Participation In Decision-making Among Patiementioning

confidence: 99%

“…general treatment satisfaction, trust in clinicians, and fairness), with better-perceived decision-making skills, in patients of female gender and in younger patients., It was, furthermore, demonstrated that patients with schizophrenia strongly wish to participate in medical decisions on an equal footing with their doctors, rather than to completely take over decisional control [8,14,15]. Moreover, a large study in the United States with a focus on outcomes in adults diagnosed with depressive disorders showed that greater involvement in depression care resulted in higher participant satisfaction and lower depression scores [16].…”

Section: Preferences For Participation In Decision-making Among Patiementioning

confidence: 99%

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Participation in medical decision-making across Europe: An international longitudinal multicenter study

et al. 2016

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Background: The purpose of this paper was to examine national differences in the desire to participate in decision-making of people with severe mental illness in six European countries. Methods:The data was taken from a European longitudinal observational study (CEDAR; ISRCTN75841675). A sample of 514 patients with severe mental illness from the study centers in Ulm, Germany, London, England, Naples, Italy, Debrecen, Hungary, Aalborg, Denmark and Zurich, Switzerland were assessed as to desire to participate in medical decision-making. Associations between desire for participation in decision-making and center location were analyzed with generalized estimating equations. Results:We found large cross-national differences in patients' desire to participate in decision-making, with the center explaining 40% of total variance in the desire for participation (p<0.001). Averaged over time and independent of patient characteristics, London (mean=2.27), Ulm (mean=2.13) and Zurich (mean=2.14) showed significantly higher scores in desire for participation, followed by Aalborg (mean=1.97), where scores were in turn significantly higher than in Debrecen (mean=1.56). The lowest scores were reported in Naples (mean=1.14). Over time, desire for participation in decision-making increased significantly in Zurich (b=0.23) and decreased in Naples (b=-0.14). In all other centers, values remained stable.Conclusions: This study demonstrates that patients' desire for participation in decisionmaking varies by location. We suggest that more research attention be focused on identifying specific cultural and social factors in each country to further explain observed differences across Europe.

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Section: Shared Decision-makingmentioning

confidence: 99%

Section: Preferences For Participation In Decision-making Among Patiementioning

confidence: 99%

Section: Preferences For Participation In Decision-making Among Patiementioning

confidence: 99%

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Participation in medical decision-making across Europe: An international longitudinal multicenter study

et al. 2016

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“…Research into CDM is complex (3), involving capacity (4) and patient, clinician and family perspectives (5). Preferences are varied, for example younger people are more likely to prefer active CDM (6). Existing research has focussed on decisions made with medical doctors (7,8) even though patients make decisions with clinicians from across the multi-disciplinary team.…”

Section: Introductionmentioning

confidence: 99%

Empowerment and satisfaction in a multinational study of routine clinical practice

Clarke

Puschner

Jordan

et al. 2014

Acta Psychiatr Scand

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Mike (2015) Empowerment and satisfaction in a multinational study of routine clinical practice. Acta Psychiatrica Scandinavica, 131 (5). pp. 369-378. ISSN 1600-0447Access from the University of Nottingham repository: http://eprints.nottingham.ac.uk/34260/1/AFD%20APS%20CEDAR%20Empowerment %20and%20satisfaction.pdf Copyright and reuse:The Nottingham ePrints service makes this work by researchers of the University of Nottingham available open access under the following conditions. This article is made available under the University of Nottingham End User licence and may be reused according to the conditions of the licence. For more details see: http://eprints.nottingham.ac.uk/end_user_agreement.pdf A note on versions:The version presented here may differ from the published version or from the version of record. If you wish to cite this item you are advised to consult the publisher's version. Please see the repository url above for details on accessing the published version and note that access may require a subscription. We tested whether mental health patients are more satisfied with a decision made (a) using their preferred decision-making style and (b) with a clinician with the same decision-making style preference. MethodAs part of the CEDAR Study (ISRCTN75841675), a convenience sample of 445 patients with severe mental illness from six European countries were assessed for desired clinical decision-making style (rated by patients and paired clinicians), decision-specific experienced style and satisfaction. ResultsPatients who experienced more involvement in decision-making than they desired rated higher satisfaction (OR=2.47, p=0.005, 95%CI 1.32 to 4.63). Decisions made with clinicians whose decision-making style preference was for more active involvement than the patient preference were rated with higher satisfaction (OR=3.17, p=0.003, 95%CI 1.48 to 6.82). ConclusionMore active involvement in decision-making than the patient stated as desired was associated with higher satisfaction. A clinical orientation towards empowering, rather than shared, decision-making may maximise satisfaction. KeywordsDecision Making, Mental Health 3. The extent to which the decision topic impacted on preference and agreement is unknown.4

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“…Numerous studies have been conducted with narrower approaches, focusing on the concept of health related quality of life (HRQoL) (12)(13) , using tools like the Drug Attitude Inventory (14) , the Global Assessment of Relational Functioning Scale (15) , the SF-36 Health Questionnaire (16) , the Lancashire Quality of Life Profile (17) and also large instruments created ad hoc (18) . Most of these studies present a practical and common problem, which is the difficulty to translate the evaluations into plans of care, and to obtain results of quality of life, from the identification of the support needs of a person, i.e.…”

Section: Introductionmentioning

confidence: 99%

Applicability of the Spanish Version of the Supports Intensity Scale (SIS), in the Mexican Population with Severe Mental Illness

Ortiz

Río

Rodríguez

et al. 2010

Rev. Latino-Am. Enfermagem

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This study presents the results obtained from the evaluation, by specialist judges, of the Supports Intensity Scale (SIS), Spanish version, to determine its suitability for the Mexican population with severe mental illness (SMI). The instrument, originally designed for people with intellectual disabilities, is consistent with the multidimensional concept of quality of life and the social model of disability. The semantic equivalence of the items adjusted by specialist judges, the reliability of the subscales, using Cronbach's alpha, and the concurrent validity between the SIS and the Global Functioning Assessment (GAF) were analyzed. The mean similarity to the original was 9.91 from a total of 10 (sd=0.14). The reliability coefficients were above 0.95 and the correlations between the SIS and the GAF were medium to high and significant. In conclusion, in the Mexican context, the SIS scale can be used to understand the needs and expectations of people with mental illness.

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Do Patients With Schizophrenia Wish to Be Involved in Decisions About Their Medical Treatment?

Abstract: It is important to meet the participation needs of patients who are dissatisfied with their psychiatric treatment.

Cited by 215 publications

References 6 publications

Participation in medical decision-making across Europe: An international longitudinal multicenter study

Participation in medical decision-making across Europe: An international longitudinal multicenter study

Empowerment and satisfaction in a multinational study of routine clinical practice

Applicability of the Spanish Version of the Supports Intensity Scale (SIS), in the Mexican Population with Severe Mental Illness

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