Driving Toward Guiding Principles: A Goal for Privacy, Confidentiality, and Security of Health Information

Buckovich, Suzy A.; Rippen, Helga E.; Rozen, Michael J.

doi:10.1136/jamia.1999.0060122

Cited by 47 publications

(32 citation statements)

References 1 publication

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“…3 During the training of the team, the need to respect the research subjects' privacy was emphasized, as well as the necessity of confi dentiality of the collected information and of compliance with the norms aiming at data security. 4,17 In the present study, in which subjects and researchers are employed in the same institutions, special care was taken to avoid the direct access of colleagues from the team to private information about the research subjects.…”

Section: Preservation Of Confi Dentiality and Secrecymentioning

confidence: 99%

Aspectos eticos em estudos longitudinais: o caso do ELSA-Brasil

et al. 2013

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The debate about ethics in research with human beings has historically emphasized experimental studies because of their greater potential to harm the subjects involved. However, observational studies also include risks and relevant questions to be discussed. This article aims to present and discuss the ethical aspects involved in the implementation of ELSA-Brasil (Brazilian Longitudinal Study for Adult Health), a longitudinal multicenter study, with public funding, in which the research subjects and investigators are employees of the same institutions. The procedures adopted to meet the ethical requirements and commitments are described, as well as the casuistics that guided the actions according to their guiding principles (benefi cence, autonomy and social justice). We present some moral problems that required consideration of risks and benefi ts at the confl uence with the study's objectives, and we conclude with comments on the peculiarities and the potential benefi ts of a longitudinal study.

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Section: Preservation Of Confi Dentiality and Secrecymentioning

confidence: 99%

Aspectos eticos em estudos longitudinais: o caso do ELSA-Brasil

et al. 2013

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“…At present, research on EMRs focuses on three areas: privacy protection of raw data, access control of EMRs, and privacy-protecting medical information system [31–33]. …”

Section: Related Workmentioning

confidence: 99%

Privacy-Preserving Health Data Collection for Preschool Children

Guan

Zhang

Yue

2013

Computational and Mathematical Methods in Medicine

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With the development of network technology, more and more data are transmitted over the network and privacy issues have become a research focus. In this paper, we study the privacy in health data collection of preschool children and present a new identity-based encryption protocol for privacy protection. The background of the protocol is as follows. A physical examination for preschool children is needed every year out of consideration for the children's health. After the examination, data are transmitted through the Internet to the education authorities for analysis. In the process of data collection, it is unnecessary for the education authorities to know the identities of the children. Based on this, we designed a privacy-preserving protocol, which delinks the children's identities from the examination data. Thus, the privacy of the children is preserved during data collection. We present the protocol in detail and prove the correctness of the protocol.

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“…A recent literature review concluded that despite the need to answer many remaining questions, giving patients direct electronic access to medical records appears to be a positive step. 15 One can envision a time when research networks can be constructed by involving providers and patients with access to selected common data by analysis centers operating under carefully defined rules for data privacy.…”

Section: The Goodmentioning

confidence: 99%