Effect of “timing it right” on comprehensive unmet needs and psychological pain in patients with head and neck cancer undergoing radiotherapy: a randomized controlled trial

Teng, Li; Zhang, Yinping; Kong, Jun-Juan; Kong, Min; Meng, Guangyao; Shi, Wen-Xin

doi:10.1007/s00520-022-07072-9

Cited by 4 publications

(6 citation statements)

References 23 publications

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“… Circumstances surrounding timing No. of articles Reference Changes in information-seeking behaviour over time 6 [13] , [16] , [21] , [53] , [67] , [74] Waiting times between/during appointments 2 [33] , [34] The efficiency of timing it right (TIR) with information 7 [38] , [46] , [55] , [61] , [65] , [70] , [76] Pre-planning information 8 [5] , [6] , [9] , [16] , [28] , [31] , [50] , [52] Preference of when to receive information 4 [34] , [44] , [57] , [72] …”

Section: Resultsmentioning

confidence: 99%

“…As supported by several studies, it is evident that patient preference for information and their information-seeking styles change significantly over time. Examples of this were using a timing it right (TIR) approach, where nursing interventions and individualised continuous support were tested [55] , [76] , and, patient preferences of when RT information was received e.g. at CT appointment or first RT appointment [72] .…”

Section: Resultsmentioning

confidence: 99%

“…Utilising multiple teaching strategies including the traditional formats of verbal, and written information as well as novel techniques such as VR, multimedia and group-based education could improve effectiveness of RT patient education [69] . Employing multimedia as a means of patient education can provide a holistic way of incorporating the essential information of the RT process and help cater to all learning styles [55] . Not only has multimedia been shown to improve knowledge of RT process and SE for patients [52] , but has also reduced anxiety in patients [52] , [58] .…”

Section: Discussionmentioning

confidence: 99%

See 2 more Smart Citations

Impact of patient information format on the experience of cancer patients treated with radiotherapy

Corish,

Fulton,

Galbraith

et al. 2024

Technical Innovations & Patient Support in Radiation Oncolo

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Impact of patient information format on the experience of cancer patients treated with radiotherapy

Corish,

Fulton,

Galbraith

et al. 2024

Technical Innovations & Patient Support in Radiation Oncolo

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“…Visibility of the anatomical location and the disruption of the vital activities of daily living such as eating, speaking, breathing and swallowing by the illness and treatment modalities make oral cancer patients increasingly vulnerable to psychological distress (PD). Therefore, PD negatively impacts not only the quality‐of‐life of patients but their treatment outcomes as well 2,3 . Late presentations and non‐compliance with treatment plans are common among patients with oral cancer in Sri Lanka, as many become distressed to the extent of becoming suicidal upon receiving the diagnosis.…”

Section: Introductionmentioning

confidence: 99%

“…Therefore, PD negatively impacts not only the quality-of-life of patients but their treatment outcomes as well. 2,3 Late presentations and non-compliance with treatment plans are common among patients with oral cancer in Sri Lanka, as many become distressed to the extent of becoming suicidal upon receiving the diagnosis.…”

Section: Introductionmentioning

confidence: 99%

Initiation of distress screening in oral cancer clinics in Sri Lanka

et al. 2023

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Objective: This paper describes the initiation of distress screening in oral cancer clinics, among patients with oral cancer in Sri Lanka, addressing the service gap of lack of psychosocial oncology services. This involved validation of the Sinhala version of the Distress Thermometer (DT) and Problem List (PL) as an adjustment disorder (AD) screening tool. Methods:The DT and PL were translated into the Sinhala language and crossculturally adopted by the "modified Delphi" technique. The judgment validity was obtained through face, content, and consensual validation. The criterion validation of DT was performed among 95 oral cancer patients from two oro-maxillofacialoncological hospitals in Sri Lanka, against the AD diagnosis of two consultant psychiatrists. Results:The DT and the PL revealed good judgment validity. The optimal cut-off point of DT was 4 with a sensitivity of 91.8% (95% CI = 80.8%-96.8%), specificity of 78.3% (95% CI = 64.4%-87.7%), positive predictive value of 0.81 (95% CI = 0.53%-1.1%) and negative predictive value of 0.90 (95% CI = 0.2%-1.7%). The test re-test reliability of DT was excellent (Kappa coefficient 0.894). The area under the curve was 0.843. The PL demonstrated poor internal consistency in practical problems (KD-20 = 0.4), social problems (KD-20 = 0.3) and spiritual problems (KD-20 = 0.6). Conclusions:The Sinhala version of DT and PL were deemed a valid AD screening tool for patients with oral cancer in Sri Lanka to initiate distress screening in busy oral cancer clinics. However, further validation for the full spectrum of distress is needed, preferably with improvements to PL.

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Addressing cancer survivors’ information needs and satisfaction: a systematic review of potential intervention components for survivors with a rare cancer type

Farrugia,

Duijts,

Wilson

et al. 2024

Orphanet J Rare Dis

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Objective Providing current, evidence-based information to cancer survivors is critical for informed decision making. People diagnosed with a rare cancer report higher unmet information needs compared to common cancer survivors. However, interventions providing informational support for rare cancers are limited. Therefore, the aims of this systematic review were to identify and synthesise interventions decreasing survivors’ information needs and/or improving satisfaction with information, and to explore potential components to be included in an intervention for rare cancer survivors. Methods Searches were conducted in PubMed, CINAHL, Embase, PsycINFO and the Cochrane Library. Studies reporting an intervention targeting information needs and/or patient satisfaction with information in survivors of any cancer type were included. Data were extracted, a quality assessment performed and findings were synthesised. Results A total of 7012 studies were identified and 34 were included in the review. Five studies targeted patients with a rare cancer type; the remaining studies included common cancer survivors. Interventions varied in relation to the mode of information provision, timing of intervention delivery, and the intervention provider. The most promising interventions included face-to-face communication and written material and were delivered by a nurse. All rare cancer studies were designed around a web-based program, but none of them improved outcomes. Conclusions Interventions targeting information needs and/or patient satisfaction with information in rare cancer survivors are lacking. Future studies should focus on this underserved group, and successful aspects of interventions for common cancer survivors should be considered for inclusion when designing an intervention for rare cancer survivors.

show abstract

Effect of “timing it right” on comprehensive unmet needs and psychological pain in patients with head and neck cancer undergoing radiotherapy: a randomized controlled trial

Cited by 4 publications

References 23 publications

Impact of patient information format on the experience of cancer patients treated with radiotherapy

Impact of patient information format on the experience of cancer patients treated with radiotherapy

Initiation of distress screening in oral cancer clinics in Sri Lanka

Addressing cancer survivors’ information needs and satisfaction: a systematic review of potential intervention components for survivors with a rare cancer type

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