Empowering consumers as equal partners at scientific conferences in nephrology

Abstract

Patients, caregivers and family members are being increasingly involved in research, including as equal delegates in scientific meetings and conferences. 1 As the people that research aims to help and

Recruitment of patients, carers and members of the public to advisory boards, groups and panels in public and patient involved health research: a scoping review

“…The literature was predominantly based in the UK (35%, n=18),24–41 USA (24%, n=12)16 42–52 and Canada (20%, n=10) 53–62. The remaining studies (22%, n=11) were based in multiple countries (8%, n=4),63–66 Australia (4%, n=2),67 68 Denmark (4%, n=2), Ireland (2%, n=1),69 Japan (2%, n=1)70 and Norway (2%, n=1) 71. Almost all the literature were published since 2015 (96%, n=49), while the remaining 4%, n=2 were published in 201239 and 2006 37.…”

“…Of the extracted literature, 69% (n=35) were empirical, and the remaining 31% (n=16) were non-empirical. Of the empirical studies, the majority were qualitative in nature (54%, n=19),28 30 34 35 37 38 44 47 49 56 59 60 64 67–69 71–73 followed by mixed methods (29%, n=10),26 31 32 40 51 52 54 58 62 66 and then quantitative (17%, n=6)42 46 53 55 65 70 study designs. We will now explore findings based on the specific research objectives of this review.…”

“…These studies employed qualitative (23%, n=8),28 37 38 47 49 56 64 69 quantitative (6%, n=2)65 70 or mixed-methods (9%, n=3)26 51 54 study designs. This was followed by community/public health non-trial study focus (34%, n=12) 30–32 34 35 40 53 58–60 67 68. The remaining empirical studies were RCTs with a clinical focus (20%, n=7),42 44 46 55 66 72 73 trials with a community/public health focus (6%, n=2),62 71 and 3% n=1 secondary data analysis 52 Online supplemental file 6.…”