End-of-Life Care Communication Training Programs for Long-Term Care Staff: A Scoping Review

Kulasegaram, Pereya; Thompson, Genevieve; Sussman, Tamara; Kaasalainen, Sharon

doi:10.1016/j.jpainsymman.2018.10.291

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“…Spiritual and psychosocial care are requisite palliative care competencies for nurses and other healthcare providers in most countries ( Ontario Palliative Care Network, 2019 ). Therefore, providers require additional training to support caregivers in existential distress, to practice active listening, psychotherapy, coaching persons in self-care and goal-setting ( Kulasegaram et al., 2018 ). Providers should focus on being transparent, collaborative, sharing information about dementia and ‘what to expect’, keeping caregivers informed about health changes and helping caregivers understand the meaning of the changes to promote feelings of preparedness for death.…”

Section: Discussionmentioning

confidence: 99%

“A Crazy Roller Coaster at the End”: A Qualitative Study of Death Preparedness With Caregivers of Persons With Dementia

et al. 2020

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Introduction Caregivers of persons with dementia experience challenges that can make preparing for end-of-life particularly difficult. Feeling prepared for death is associated with caregiver well-being in bereavement and is promoted by strategies supporting a palliative approach. Further conceptualization of caregiver preparedness for death of persons with dementia is needed to guide the practice of healthcare providers and to inform development of a preparedness questionnaire. Objectives We aimed to: 1) explore the end-of-life experiences of caregivers of persons with dementia to understand factors perceived as influencing preparedness; and 2) identify the core concepts (i.e., components), barriers and facilitators of preparedness for death. Methods This study used an interpretive descriptive design. Semi-structured interviews were conducted with sixteen bereaved caregivers of persons with dementia, recruited from long-term care homes in Ontario. Data was analyzed through reflexive thematic analysis. Findings Four themes were interpreted including: ‘A crazy rollercoaster at the end’ which described the journey of caregivers at end-of-life. The journey provided context for the development of core concepts (i.e., components) of preparedness represented by three themes: ‘A sense of control, ‘Doing right’ and ‘Coming to terms’. Conclusion The study findings serve to expand the conceptualization of preparedness and can guide improvements to practice in long-term care. Core concepts, facilitators and influential factors of preparedness will provide the conceptual basis and content to develop the Caring Ahead: Preparing for End-of-Life with Dementia questionnaire.

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Section: Discussionmentioning

confidence: 99%