Enjeux éthiques de la recherche sur les forums Internet portant sur l’utilisation des médicaments à des fins non médicales

Thoër, Christine; Millerand, Florence; Myles, David; Orange, Valérie; Gignac, Olivier

doi:10.4000/communiquer.1085

Cited by 12 publications

(6 citation statements)

References 43 publications

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“…Sixty-two published offers of sperm donation written in French, associated with 47 different email addresses, were gathered from these sites over a 1-year period. Following the recommendations of Thoër, Millerand, Myles, Orange, and Gignac (2012) regarding the ethics of online research and the obtaining of consent, an invitation to participate was sent out to each of the email addresses collected. Error messages were received from 10 of the addresses.…”

Section: Methodsmentioning

confidence: 99%

Assisted Reproduction in the Digital Age: Stories of Canadian Sperm Donors Offering Their Gametes Online via Introduction Websites

Lavoie

Côté

Montigny

2017

The Journal of Men’s Studies

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The aim of this study was to describe the phenomenon of sperm donation offered in informal settings and, more specifically, by contacts through the Internet. It documented the perceptions, experiences, and practices of a sample of Canadian donors and explored their motivations for becoming involved in the family projects of others. Eight semistructured interviews were conducted with men who had offered their sperm to couples or single women through one or more introduction websites. The results showed that the process leading to sperm donation outside fertility clinics is influenced by a variety of factors, such as the motives of those involved, logistics, and health concerns, as well as the possibility of having access to information on the genetic heritage of children conceived from these donations. The men applied different strategies to achieve their donations, engaging in a process of negotiation with the recipients, based on mutual trust and acceptance of the risks involved.

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Section: Methodsmentioning

confidence: 99%

Assisted Reproduction in the Digital Age: Stories of Canadian Sperm Donors Offering Their Gametes Online via Introduction Websites

Lavoie

Côté

Montigny

2017

The Journal of Men’s Studies

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“…In line with the recommendations made by Thoër et al (2012) regarding ethics in online research and obtaining consent, several measures were deployed to ensure the transparency of our approach. First, we applied for group membership, which was accepted by one of the administrators.…”

Section: Ethnography Of An Online Communitymentioning

confidence: 99%

When Facebook plays matchmaker: Interactions within an online community dedicated to surrogacy and egg donation

Lavoie

Côté

2023

Family Relations

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Objective: This article explores the interactions and digital practices of people involved in an online community dedicated to surrogacy and egg donation in the province of Québec, Canada. Background: Sociodigital networks, with the emergence of platforms such as Facebook groups, provide a space to discuss assisted reproduction, seek advice, offer support, and connect with other Internet users to negotiate and establish a third-party reproduction agreement. Method: This study is based on a long-term ethnographic field within a Facebook group, and individual interviews conducted with 22 members of this community. The data collected were analyzed inductively according to the principles of grounded theory. Results: Three themes emerged from the online interactions and stories of the women we met. First, the publication of intended parents' testimonies is the preferred method of finding a surrogate or egg donor match and is reminiscent of the language and rituals associated with dating sites. Second, the expression of legal and financial concerns occupies a prominent place in the group discussions, given the lack of a legislative framework in this Canadian province and the variability of interpretations of the current legal framework. Third, the choice made by surrogates and donors to be involved in an online community is not random and sometimes indicates of a desire to Author note: The MATRICES study (Maternités assistées par tierces reproductrices) has benefitted from financial support from the Social Sciences and Humanities Research Council (SSHRC), the Réseau québécois en études féministes (RéQEF), and the Faculty of Social Sciences at Université Laval. The first wave of data collection (2016)(2017)(2018) obtained approval from the Université de Montréal Arts and Sciences Research Ethics Board, while the second wave (2021) was authorized by the Université Laval Research Ethics Board. This article is a revised and updated version of a book chapter from the edited book Perspectives internationales sur la gestation pour autrui: expériences des personnes concernées et contextes d'action published in 2018 by the Presses de l'Université du Québec.

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“…Plusieurs chercheur•es s'interrogent au sujet des enjeux éthiques de la recherche sur les communautés en ligne (Barratt et Lenton, 2010 ;Eysenbach et Till, 2001 ;Sveningsson, 2009), d'autant plus quand elles sont liées à des questions de santé (Thoër et al 2012). Je propose de revenir sur ceux qui ont guidé l'élaboration du protocole d'enquête.…”

Section: Méthodologie Enjeux éThiques Et Posture éPistémologiqueunclassified

« Bonjour tout le monde […]. J’ai besoin d’écrire ce message pour trouver du soutien » : soutien en ligne et éthique du care trans

Armangau

2023

questionsdecommunication

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L'article analyse les différentes formes de soutien social qui sont échangées à l'intérieur de groupes Facebook trans francophones. Il propose de penser autrement les dynamiques de soutien en ligne -en questionnant à la fois ce qu'elles produisent et ce qu'elles permettent -à travers la notion d'éthique du care trans. Fondée sur une perspective située, cette recherche, réalisée entre septembre 2017 et septembre 2020, s'appuie sur une ethnographie en ligne des principaux groupes Facebook trans francophones. Les résultats présentés se divisent en deux sections : la première se concentre sur l'échange de soutien informationnel à travers la création d'annuaires de soignant•es safe et la seconde examine la circulation du soutien émotionnel suite à des événements négatifs.Mots clés.trans, éthique du care, médias sociaux numériques, soutien social.

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Enjeux éthiques de la recherche sur les forums Internet portant sur l’utilisation des médicaments à des fins non médicales

Cited by 12 publications

References 43 publications

Assisted Reproduction in the Digital Age: Stories of Canadian Sperm Donors Offering Their Gametes Online via Introduction Websites

Assisted Reproduction in the Digital Age: Stories of Canadian Sperm Donors Offering Their Gametes Online via Introduction Websites

When Facebook plays matchmaker: Interactions within an online community dedicated to surrogacy and egg donation

« Bonjour tout le monde […]. J’ai besoin d’écrire ce message pour trouver du soutien » : soutien en ligne et éthique du care trans

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