Epilepsy and social identity: the stigma of a chronic neurological disorder

Jacoby, Ann; Snape, Dee; Baker, Graham

doi:10.1016/s1474-4422(05)70020-x

Cited by 361 publications

(132 citation statements)

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“…However, while researchers of quality of social life studies highlight that the stigma of epilepsy persists long after seizure control, it is worth noting that seizure control does not imply seizure freedom. Indeed, the evidence demonstrates that QOL is strongly related to seizure control (Jacoby et al, 2005). This suggests a strong association between having seizures and having social difficulties.…”

Section: Psychosocial Difficulties In Epilepsymentioning

confidence: 92%

“…Epilepsy is the most common neurological disorder worldwide (Jacoby et al, 2005). Epilepsy can affect anyone at any age, gender, race and socio-economic background, and the vast majority of individuals with epilepsy can take part in everyday activities.…”

Section: Epileptic Seizuresmentioning

confidence: 99%

“…Historically, epilepsy is associated with significant psychosocial difficulties, and the social stigma of epilepsy has a negative effect on social identity, thought to cause social isolation (Jacoby, Snape, & Baker, 2005 where a sense of self may be impaired (ibid.). However, while researchers of quality of social life studies highlight that the stigma of epilepsy persists long after seizure control, it is worth noting that seizure control does not imply seizure freedom.…”

Section: Psychosocial Difficulties In Epilepsymentioning

confidence: 99%

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Autistic characteristics in adults with epilepsy

Wakeford

Hinvest

Ring

et al. 2014

Epilepsy & Behavior

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Section: Psychosocial Difficulties In Epilepsymentioning

confidence: 92%

Section: Epileptic Seizuresmentioning

confidence: 99%

Section: Psychosocial Difficulties In Epilepsymentioning

confidence: 99%

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Autistic characteristics in adults with epilepsy

Wakeford

Hinvest

Ring

et al. 2014

Epilepsy & Behavior

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“…Stigma is a word which has evaded clear, operational definition (Keusch et al, 2006;Link & Phelan, 2006;Jamison, 2006;Jacoby et al, 2005). It can be considered as an amalgamation of three related problems: a lack of knowledge (ignorance and misinformation), negative attitudes (prejudice), and excluding or avoiding behaviours (discrimination) (Thornicroft, 2006b;Corrigan, 2005;Sartorius & Schulze, 2005;Thornicroft et al, 2007;Thornicroft, 2006a).…”

Section: Stigma: a Combination Of Ignorance Prejudice And Discriminamentioning

confidence: 99%

Stigma and discrimination limit access to mental health care

Thornicroft¹

2008

Epidemiol Psichiatr Soc

343

209

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Abstract. This editorial provides an overview of how far access to mental health care is limited by perceptions of stigma and anticipated discrimination. Globally over 70% of young people and adults with mental illness receive no treatment from healthcare staff. The rates of non-treatment are far higher in low income countries. Evidence from some descriptive studies and epidemiological surveys suggest that potent factors increasing the likelihood of treatment avoidance, or long delays before presenting for care include: (i) lack of knowledge about the features and treatability of mental illnesses; (ii) ignorance about how to access assessment and treatment; (iii) prejudice against people who have mental illness, and (iv) expectations of discrimination against people who have a diagnosis of mental illness. The associations between low rates of help seeking, and stigma and discrimination are as yet poorly understood and require more careful characterisation and analysis, providing the platform for more effective action to ensure that a greater proportion of people with mental illness are effectively treated in future.

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“…[1][2][3] Epilepsi, dünyada özellikle de çocukluk çağında yaygın olarak görülen beyin hastalıklarından biridir. [4] Epilepsi, çocuk-luk çağı sorunu olarak bilinmekle birlikte yaşamın herhangi bir döneminde gelişebilen tüm ırktaki insanları ve tüm yaş gruplarını etkileyebilen bir hastalıktır.…”

Section: Introductionunclassified

Knowledge, Attitudes and Behaviors of The Teachers Teaching at Primary Schools About Epilepsy

Sivri¹,

Özpulat²

2013

Epilepsi

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SummaryObjectives: Study was undertaken in order to determine knowledge and behaviors of the teachers teaching at 4 primary schools in Akşehir about epilepsy and to suggest practicable recommendations in line with the results obtained. Methods: It was a descriptive study and in the study, all of the teachers were tried to be reached between the 1 st of October and the 30 th of November 2010. The questionnaire form was designed according to the literature information. Results: It was found out that mean age of the teachers was 38.4 (24-56), 53.2% of them were male. It was seen that 65.4% of the teachers had a teaching career of ≥13 years. It was detected that 17.7% met epilepsy once, 7.3% intervened for epilepsy once and 4% had students with epilepsy. 47.6% of the teachers were of the opinion that epilepsy was not a genetic-disease, 43.5% thought that epilepsy lasted life long and 45.2% said that jaws of the epilepsy patient should be opened during epileptic seizures. Conclusion: It was seen that teachers generally lacked knowledge about epilepsy, school-age children with epilepsy and actions to be done during epileptic seizures. In this sense,a multidisciplinary approach is needed in order to improve the relation between the parents of the epileptic children and the school and to increase knowledge level of the parents, teachers and the society about epilepsy.Key words: Knowledge level; epilepsy; school-age children; teacher. ÖzetAmaç: Çalışma, Akşehir ilçesindeki dört ilköğretim okulunda bulunan öğretmenlerin epilepsiye ilişkin bilgilerini ve davranışlarını saptamak, elde edilen sonuçlar doğrultusunda uygulanabilir öneriler geliştirebilmek amacıyla yapıldı. Gereç ve Yöntem:Tanımlayıcı tipteki bu çalışmada,1 Ekim-30 Kasım 2010 tarihleri arasında öğretmenlerin tamamına ulaşılmaya çalışıldı. Anket formu literatür bilgilerine dayanılarak oluşturuldu. Bulgular: Çalışmamızda öğretmenlerin yaş ortalaması 38.4 (dağılım, 24-56) olduğu, %53.2 'sinin erkek olduğu saptadı. %65.4'ünün 13 yıl ve daha uzun süre görev yaptığı belirlendi. Öğretmenlerin %17.7'sinin epilepsiyle bir kez karşılaştığı, %7.3'ünün bir kez müdehalede bulunduğu ve %4'ünün epilepsili bir öğrencisinin olduğu saptandı. Öğretmenlerin %47.6'sı epilepsinin kalıtsal bir hastalık olmadığını, %43.5'i epilepsinin ömür boyu sürdüğünü ve %45.2'si epilepsi nöbeti esnasında kilitlenmiş çenenin açılması gerektiğini söyledi.Sonuç: Araştırmada genel olarak öğretmenlerin epilepsi, epilepsili okul çocuğu ve nöbet esnasında yapılacak uygulamalar konusunda bilgi eksiklikleri olduğu saptanmıştır. Bu sonuçlar doğrultusunda, epilepsili çocuğun ebeveyn ile okul ilişkisinin düzenlenmesi, ebeveyn, öğretmen ve toplumun bu konudaki bilgilerinin artırılması için multidisipliner bir yaklaşımın gerekliliği önerilebilir.Anahtar sözcükler: Bilgi düzeyi; epilepsi; okul çocuğu; öğretmen.

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Epilepsy and social identity: the stigma of a chronic neurological disorder

Cited by 361 publications

References 0 publications

Autistic characteristics in adults with epilepsy

Autistic characteristics in adults with epilepsy

Stigma and discrimination limit access to mental health care

Knowledge, Attitudes and Behaviors of The Teachers Teaching at Primary Schools About Epilepsy

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