EQ-5D-Y-5L: developing a revised EQ-5D-Y with increased response categories

Kreimeier, Simone; Åström, Mimmi; Burström, Kristina; Egmar, Ann‐Charlotte; Gusi, Narcís; Herdman, Michael; Kind, Paul; Pérez-Sousa, Miguel Ángel; Greiner, Wolfgang

doi:10.1007/s11136-019-02115-x

Cited by 63 publications

(59 citation statements)

References 24 publications

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“…The EQ‐5D‐Y‐5L instrument consists of the descriptive system with the five dimensions mobility, looking after myself, doing usual activities, having pain or discomfort and feeling worried, sad or unhappy, and a visual analogue scale (EQ VAS) with a recall period of TODAY 9 . Each dimension has five severity levels: no problems, little bit of problems, some problems, a lot of problems and cannot/extreme problems.…”

Section: Methodsmentioning

confidence: 99%

Acceptability of the health‐related quality of life instrument EQ‐5D‐Y‐5L among patients in child and adolescent psychiatric inpatient care

et al. 2020

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Aim The generic EuroQol 5 Dimensions Youth 5 Level (EQ‐5D‐Y‐5L) measures health‐related quality of life among children from 8 years. Respondents report their health on five dimensions with five severity levels and rate their overall health on a visual analogue scale (EQ VAS). The aim of the study was to explore acceptability of the EQ‐5D‐Y‐5L instrument among patients in child and adolescent psychiatric inpatient care. Methods A convenience sample of patients within a psychiatric inpatient care clinic in Region Stockholm, Sweden, was used. Follow‐up questions were answered directly after filling in the EQ‐5D‐Y‐5L. Conventional qualitative content analysis was chosen to analyse the open‐ended questions on how they perceived answering the instrument. Results In total, 52 patients (83% girls), mean age 15.4 years (range 13‐17), were included. Three themes emerged: generic content of the EQ‐5D‐Y‐5L descriptive system; design and wording of the EQ‐5D‐Y‐5L descriptive system and the EQ VAS; self‐reporting health with the EQ‐5D‐Y‐5L descriptive system and the EQ VAS. Conclusion The inclusion of physical health dimensions was perceived as positive, but some patients considered the descriptive system too generic. The results indicate that these patients in general could self‐report their health in a meaningful way with the EQ‐5D‐Y‐5L instrument.

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Section: Methodsmentioning

confidence: 99%

Acceptability of the health‐related quality of life instrument EQ‐5D‐Y‐5L among patients in child and adolescent psychiatric inpatient care

et al. 2020

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“…The EQ-5D-Y-5L is developed for self-completion by children from eight years old [14,16]. The instrument covers five dimensions of health: 'mobility', 'looking after myself', 'doing usual activities', 'having pain or discomfort' and 'feeling worried, sad or unhappy'.…”

Section: Eq-5d-y-5lmentioning

confidence: 99%

“…The EQ-5D-Y (Youth) instrument is a generic Patient-Reported Outcome Measure, suitable for children from eight years old, covering five dimensions of health and a Visual Analogue Scale (EQ VAS). There are two versions of the instrument, the EQ-5D-Y-3L with three severity levels [14,15], and the EQ-5D-Y-5L with five severity levels [16]. The latter was recently developed based on the same premises as for the adult five-level version i.e.…”

Section: Introductionmentioning

confidence: 99%

EQ-5D-Y-5L as a patient-reported outcome measure in psychiatric inpatient care for children and adolescents – a cross-sectional study

Åström

Krig

Ryding

et al. 2020

Health Qual Life Outcomes

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Background: Psychiatric disorders have a major individual and societal impact. Until now, the association between health-related quality of life and physical disorders has been far more investigated than the association with psychiatric disorders. Patient-reported outcome measures makes it possible to capture the patient perspective to improve treatments and evaluate treatment outcomes. The aim of this study is to measure health-related quality of life with the EQ-5D-Y-5L among patients in child and adolescent psychiatric inpatient care and to test the instrument's psychometric properties in terms of feasibility and construct validity. Methods: Data were collected at the child and adolescent psychiatric inpatient facility in Region Stockholm. A questionnaire including the EQ-5D-Y-5L instrument, the Strengths and Difficulties Questionnaire with an impact supplement and a self-rated health question, was administered for self-completion using paper and pencil, with an interviewer present. The Chi-square test was used to investigate differences in proportion of reported problems in the EQ-5D-Y-5L dimensions and the Mann-Whitney U test was used for differences in mean EQ VAS scores. Feasibility was assessed by investigating proportion of missing and ambiguous answers and Spearman's and Pearson's correlation were used to examine construct validity. Results: In total 52 adolescents participated in the study and the majority were girls. The most common diagnosis at admission was depressive episode/recurrent depressive disorder. All participants reported problems on at least one dimension. Most problems were reported in the dimension 'feeling worried, sad or unhappy', where 64% reported severe or extreme problems. Mean EQ VAS score was 29.2. Feasibility was supported and construct validity indicated as some of the hypothesised correlations between the EQ-5D-Y-5 L and the Strengths and Difficulties Questionnaire were found, however, for 'doing usual activities' and 'having pain or discomfort' the correlations were weaker than hypothesised.

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“…Quality of life was measured by the 'EQ-5D-Y-5L'-a short, child-friendly EuroQuality questionnaire on five health-related dimensions (mobility, self-care, usual activities, pain/discomfort, anxiety/depression) with five response levels, recently validated in an international sample (including Spain) of children and adolescents aged 8-15 years. 27 To facilitate comparison with other studies, the 3-level version (EQ-5D-Y-3L) was also to be administered. 28 Parental variables Two sets of questionnaires were delivered to each participating child/adolescent, to be answered separately by up to two parents/legal guardians.…”

Section: Other Child/adolescent Lifestyle Variablesmentioning

confidence: 99%

“…► Quality of life, measured by adult response to the child-friendly EQ-5D-Y-5L. 27 Parental variables will be used to study the crosssectional and prospective association between parental lifestyle, such as PA and diet quality, with the corresponding child lifestyle.…”

Section: Other Child/adolescent Lifestyle Variablesmentioning

confidence: 99%

Study protocol of a population-based cohort investigating Physical Activity, Sedentarism, lifestyles and Obesity in Spanish youth: the PASOS study

et al. 2020

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IntroductionPhysical activity (PA) is essential to healthy mental and physical development in early life. However, the prevalence of physical inactivity, which is considered a key modifiable driver of childhood obesity, has reached alarming levels among European youth. There is a need to update the data for Spain, in order to establish if current measures are effective or new approaches are needed.Methods and analysisWe present the protocol for Physical Activity, Sedentarism, lifestyles and Obesity in Spanish youth (PASOS). This observational, nationally representative, multicentre study aims to determine the PA levels, sedentary behaviours and prevalence of physical inactivity (defined as <60 min of moderate to vigorous PA per day) in a representative sample of Spanish children and adolescents. The PASOS study has recruited a representative random sample of children and adolescents aged 8–16 years from 242 educational centres in the 17 ‘autonomous regions’ into which Spain is divided. The aim is to include a total of 4508 youth participants and their families. Weight, height and waist circumference will be measured by standardised procedures. Adherence to the Mediterranean diet, quality of life, sleep duration, PA and sedentary behaviour are being measured by validated questionnaires. PA is measured by the Physical Activity Unit 7-item Screener. A representative subsample (10% of participants) was randomly selected to wear accelerometers for 9 days to obtain objective data on PA. Parents are asked about their educational level, time spent doing PA, diet quality, self-perceived stress, smoking habit, weight, height, their child’s birth weight and if the child was breast fed.Ethics and disseminationThe study was approved by the Ethics Committee of the Fundació Sant Joan de Déu, Barcelona, Spain. Main findings of the study will be disseminated to the scientific community and to general public by media conferences, social media and a website.Trial registration numberISRCTN34251612.

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EQ-5D-Y-5L: developing a revised EQ-5D-Y with increased response categories

Cited by 63 publications

References 24 publications

Acceptability of the health‐related quality of life instrument EQ‐5D‐Y‐5L among patients in child and adolescent psychiatric inpatient care

Acceptability of the health‐related quality of life instrument EQ‐5D‐Y‐5L among patients in child and adolescent psychiatric inpatient care

EQ-5D-Y-5L as a patient-reported outcome measure in psychiatric inpatient care for children and adolescents – a cross-sectional study

Study protocol of a population-based cohort investigating Physical Activity, Sedentarism, lifestyles and Obesity in Spanish youth: the PASOS study

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