Estimating dementia cases in the immigrant population living in Italy

Canevelli, Marco; Lacorte, Eleonora; Cova, Ilaria; Zaccaria, Valerio; Valletta, Martina; Agabiti, N; Bruno, Giuseppe; Bargagli, Anna Maria; Pomati, Simone; Pantoni, Leonardo; Vanacore, Nicola

doi:10.1007/s10072-018-3475-2

Cited by 6 publications

(5 citation statements)

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“…Dementia is a syndrome of symptoms that affect cognition, memory, language and learning. It also often results in losing knowledge of the last language learned, and the person with dementia reverts to their native language [14]. This may have a negative effect on the ability to communicate one's needs.…”

Section: Introductionmentioning

confidence: 99%

‘I wish I had asked for support earlier’ − Immigrant family caregivers' experiences of living with a person with dementia

Goodyear

Arola

Rosendahl

2023

Scandinavian Caring Sciences

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IntroductionImmigrant family caregivers are increasing worldwide, likewise the number of older people with dementia. Caring for a person with dementia is demanding, with the carer's own life put on hold. Immigrant family caregivers have been less studied. Therefore, the aim of this study was to explore immigrant family caregivers' experiences of living with an older person with dementia.MethodA qualitative approach was chosen, consisting of open‐ended interviews analysed using qualitative content analysis. The ethical principles of the Helsinki Declaration were applied in the study, which was duly approved by a regional ethics review board.ResultsThe content analysis resulted in three main categories: (i) the diverse roles of a family caregiver; (ii) the impact of language and culture on daily life and (iii) wish for support from society.ConclusionsLiving with a person with dementia is demanding and burdensome and the consequences of working without any rest may increase social isolation and impair quality of life. Immigrants and country‐born family caregivers living with a person with dementia seem to have similar care experiences, but immigrant family caregivers seem to receive help rather late due to a lack of information about the services available, language barriers and to financial reasons. A wish for support earlier on in the caring process was expressed, likewise for care services in the participants' native language. The various Finnish associations and peer support were important sources of information about support services. Together with culturally adjusted care services, these could contribute to better access to care, to quality and to equal care.

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Section: Introductionmentioning

confidence: 99%

‘I wish I had asked for support earlier’ − Immigrant family caregivers' experiences of living with a person with dementia

Goodyear

Arola

Rosendahl

2023

Scandinavian Caring Sciences

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“…Emerging evidence suggests that the epidemiology of dementia and parkinsonism varies across ethnic and immigrant groups [25][26][27][28][29][30] . A systematic review reported higher dementia incidence rates in the USA for Blacks and Caribbean Hispanic populations than other ethnic groups 25 .…”

Section: Introductionmentioning

confidence: 99%

“…For Parkinson's disease, Van Den Eeden et al reported lower incidence rates for Asians and Blacks than Hispanics and non-Hispanic Whites in the USA 26 , although this could be related to care disparities as Blacks tend to present with more severe disease 31 . There is also considerable burden of neurodegenerative conditions among immigrants in Italy, Norway, the Netherlands, and the UK [27][28][29][30] . Parlevliet et al reported that dementia was three to four times more prevalent in most non-Western immigrant groups compared to the native Dutch population 30 .…”

Section: Introductionmentioning

confidence: 99%

Ethnic and Immigrant Variations in the Time Trends of Dementia and Parkinsonism

Wong

Kwong

et al. 2021

Can. J. Neurol. Sci.

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Objective: We assessed long-term incidence and prevalence trends of dementia and parkinsonism across major ethnic and immigrant groups in Ontario. Methods: Linking administrative databases, we established two cohorts (dementia 2001–2014 and parkinsonism 2001–2015) of all residents aged 20 to 100 years with incident diagnosis of dementia (N = 387,937) or parkinsonism (N = 59,617). We calculated age- and sex-standardized incidence and prevalence of dementia and parkinsonism by immigrant status and ethnic groups (Chinese, South Asian, and the General Population). We assessed incidence and prevalence trends using Poisson regression and Cochran–Armitage trend tests. Results: Across selected ethnic groups, dementia incidence and prevalence were higher in long-term residents than recent or longer-term immigrants from 2001 to 2014. During this period, age- and sex-standardized incidence of dementia in Chinese, South Asian, and the General Population increased, respectively, among longer-term immigrants (by 41%, 58%, and 42%) and long-term residents (28%, 7%, and 4%), and to a lesser degree among recent immigrants. The small number of cases precluded us from assessing parkinsonism incidence trends. For Chinese, South Asian, and the General Population, respectively, prevalence of dementia and parkinsonism modestly increased over time among recent immigrants but significantly increased among longer-term immigrants (dementia: 134%, 217%, and 117%; parkinsonism: 55%, 54%, and 43%) and long-term residents (dementia: 97%, 132%, and 71%; parkinsonism: 18%, 30%, and 29%). Adjustment for pre-existing conditions did not appear to explain incidence trends, except for stroke and coronary artery disease as potential drivers of dementia incidence. Conclusion: Recent immigrants across major ethnic groups in Ontario had considerably lower rates of dementia and parkinsonism than long-term residents, but this difference diminished with longer-term immigrants.

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“…The magnitude of the issue of dementia among migrants in Italy has recently been estimated by applying dementia prevalence rates to the migrant population residing in the country. Nearly 7700 dementia cases were estimated in these individuals (5022 among women, 2725 among men), with a marked inter-regional variability 18. Among them, 1065 cases were calculated in the Lazio region.…”

Section: Introductionmentioning

confidence: 99%

Dementia among migrants and ethnic minorities in Italy: rationale and study protocol of the ImmiDem project

et al. 2020

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IntroductionDue to the ongoing demographic and epidemiological transitions, estimating the phenomenon of dementia in migrants and minority groups, exploring its characteristics and challenges and implementing dedicated healthcare policies, constitute emerging and urgent matters for Western countries. In the present paper we describe the rationale and design of the ‘Dementia in immigrants and ethnic minorities living in Italy: clinical-epidemiological aspects and public health perspectives” (ImmiDem) project.Methods and analysisThree main aims will be pursued by the ImmiDem project. First, a survey of all Italian dementia services will be conducted with dedicated questionnaires in order to estimate and describe the proportion and characteristics of migrants seeking help for cognitive disturbances. The different clinical approaches for diagnosing dementia and the challenges encountered in the assessment of cognitive functioning and in the provision of care in these groups of individuals will also be investigated. Second, record linkage procedures of data routinely collected in regional Health Information Systems will be conducted in order to identify and monitor migrant individuals with dementia living in the Lazio region. Third, tailored national and local care-coordination pathways and/or good practices dedicated to migrants affected by dementia and cognitive disorders will be identified and promoted.Ethics and disseminationThe study protocol was approved by the Ethics Committee of the Italian National Institute of Health (protocol 10749; 5 April 2018). The project was launched in November 2018 and will end in November 2021. The findings of the project will be disseminated through scientific peer-reviewed journals as well as to the public via the Dementia Observatory website (https://demenze.iss.it).

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Estimating dementia cases in the immigrant population living in Italy

Cited by 6 publications

References 6 publications

‘I wish I had asked for support earlier’ − Immigrant family caregivers' experiences of living with a person with dementia

‘I wish I had asked for support earlier’ − Immigrant family caregivers' experiences of living with a person with dementia

Ethnic and Immigrant Variations in the Time Trends of Dementia and Parkinsonism

Dementia among migrants and ethnic minorities in Italy: rationale and study protocol of the ImmiDem project

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