Proceedings of the First ACL Workshop on Ethics in Natural Language Processing 2017
DOI: 10.18653/v1/w17-1612
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Ethical Research Protocols for Social Media Health Research

Abstract: Social media have transformed datadriven research in political science, the social sciences, health, and medicine. Since health research often touches on sensitive topics that relate to ethics of treatment and patient privacy, similar ethical considerations should be acknowledged when using social media data in health research. While much has been said regarding the ethical considerations of social media research, health research leads to an additional set of concerns. We provide practical suggestions in the f… Show more

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Cited by 172 publications
(162 citation statements)
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“…In contrast, the harm that common types of social data research can produce is often of a different nature, such as suffering a breach of privacy, or being exposed to disturbing images. An ethics approval process designed specifically for social data research, like the one brought forward by Bowser and Tsai (2015), which includes questions that are social media specific, or the set of practices outlined by Benton et al (2017) could be more appropriate to decide whether a research activity should take place or not, and under what conditions. Ethical choices in social data research require deliberation.…”
Section: Navigating a Fine Line: Research Ethics Of Digital Datamentioning
confidence: 99%
“…In contrast, the harm that common types of social data research can produce is often of a different nature, such as suffering a breach of privacy, or being exposed to disturbing images. An ethics approval process designed specifically for social data research, like the one brought forward by Bowser and Tsai (2015), which includes questions that are social media specific, or the set of practices outlined by Benton et al (2017) could be more appropriate to decide whether a research activity should take place or not, and under what conditions. Ethical choices in social data research require deliberation.…”
Section: Navigating a Fine Line: Research Ethics Of Digital Datamentioning
confidence: 99%
“…In addition, we manually review a random sample of the results from the attention mechanism, and provide a few paraphrased examples (Benton et al, 2017).…”
Section: Discussionmentioning
confidence: 99%
“…Information provided to participant teams included post id (a unique identifier for the post), user id (a unique numeric identifier for the user who authored the post), timestamp (time the post was created, encoded as a Unix epoch), subreddit (the name of the subreddit where the post appeared), post title (title of the post) and post body (text contents of the post). 4 As discussed further in Section 7, although Reddit data are publicly available and the site was created specifically for anonymous posting, discussions on the platform nonetheless need to be viewed as sensitive and subject to careful ethical consideration (Benton et al, 2017;Chancellor et al, 2019). For that reason, a number of steps were taken to further remove identifying information from the dataset for the shared task.…”
Section: Reddit Posts and Metadatamentioning
confidence: 99%