Evaluation of a British child bereavement service: The user's perspective

Lydon, Anne; Hennings, Jean; Woolley, Bernadette Ryan

doi:10.1017/s147895151000009x

Cited by 7 publications

(30 citation statements)

References 10 publications

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“…Ten articles combined quantitative and qualitative methods 16 17 19–21 29 33–35 49. Four articles had a qualitative design50–53 (online supplementary file 3).…”

Section: Resultsmentioning

confidence: 99%

“…The most commonly described context was paediatric palliative care teams at the children’s hospital (in 15 (39%) of the studies) 18 22 23 25–27 31–34 37 42 43 45 47. Another context was home-based care and community-based services for children (6 articles, 16%),16 29 30 32 50 53 which made it possible for children in need of palliative care to stay at home. Two studies described the continuity between children’s hospital and community-based medical services 38 49.…”

Section: Resultsmentioning

confidence: 99%

“…Another strategy (5 articles, 13%) was the implementation of guidelines,29 30 41 46 48 which helped healthcare professionals decide on appropriate activities in the palliative care in order to optimise the child’s quality of life. Education was another important strategy (10 articles, 26%) to increase the healthcare professionals’ knowledge about palliative care 23–25 29 30 39 40 46 49 50. An important additional implementation strategy (7 articles, 18%) was the use of a co-ordinator as a facilitator, which was often a nurse 16 26 27 42 45 49 51.…”

Section: Resultsmentioning

confidence: 99%

“…It is not recommended to use codeine in children,55 but one study recommended acetaminophen with codeine 42. When the included articles were analysed with i-PARiHS framework,13 the most common facilitating strategy identified was education for healthcare professionals 23–25 29 30 39 40 46 49 50. Education is a commonly used implementation strategy; however, the evidence for education for this purpose is sparse 54.…”

Section: Discussionmentioning

confidence: 99%

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Paediatric palliative care: a systematic review

Nilsson

Öhlén

Hessman

et al. 2019

BMJ Support Palliat Care

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ObjectivesTo review literature relating to evidence, context and facilitation to describe knowledge translation in paediatric palliative care. Paediatric palliative care requires competences including both paediatric specialists as well as services that are developed for this purpose, and there is a need to facilitate paediatric palliative care knowledge translation. Promoting Action on Research Implementation in the Health Services (PARiHS) is a framework for knowledge translation, which highlights the relationships between evidence, context and facilitation. PARiHS framework has been revised and updated in a new version called i-PARiHS.MethodsThe electronic databases AgeLine, CINAHL, The Cochrane Library, PsycINFO, PubMed and Scopus were searched. Papers included were limited to English and Swedish publications and restricted to publications dated between 1993 and August 2019. All types of observational and experimental studies using any research design were included.Results and conclusionsThirty-eight articles were included and there was a common vision about how and when palliative care should be offered to children. The i-PARiHS was used as a lens to describe the knowledge translation in paediatric palliative care. Symptom relief was the most commonly described evidence-based strategy, and the hospital environment was the most commonly described context. Different types of education were the most commonly used strategies to facilitate knowledge translation. The results mainly focused on increasing knowledge of palliative care in paediatric care. To sum up, the results report strategies to achieve knowledge translation of paediatric palliative care, and these can be interpreted as a guideline for how this process can be facilitated.Trial registration numberCRD42018100663.

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“…Ten articles combined quantitative and qualitative methods 16 17 19–21 29 33–35 49. Four articles had a qualitative design50–53 (online supplementary file 3).…”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 2 more Smart Citations

Paediatric palliative care: a systematic review

Nilsson

Öhlén

Hessman

et al. 2019

BMJ Support Palliat Care

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“…Esta intervención tiene un doble objetivo: promover la adaptación de los adultos y prevenir al mismo tiempo la complicación del duelo en los niños. Podemos encontrar ejemplos de estas iniciativas en los programas grupales, similares a "campamentos", que se llevan a cabo en el Reino Unido o en los Estados Unidos y en las que se suelen incluir tanto a los padres como a los menores (13,(37)(38)(39) . Una de éstas es la de McClatchey et al (2012) (39) , que, si bien no define los principios de lo que sería una intervención eficaz en la comunicación con los menores, destaca como aspectos fundamentales y terapéuticos la cohesión grupal y la expresión emocional.…”

Section: La Intervención En El Duelo En Niños Y Adolescentes: Revisióunclassified

Los niños ante la pérdida de uno de los progenitores: revisión de pautas de comunicación eficaces.

2016

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ResumenObjetivo: La muerte es un tema tabú en la sociedad actual, y por ello es común que los padres tengan dudas acerca de cómo abordar este tema con los menores. Los objetivos de este trabajo son: 1) describir el concepto evolutivo de muerte y la forma de afrontamiento de niños y adolescentes ante una pérdida y 2) hacer una revisión bibliográfica de las principales recomendaciones y pautas para abordar el proceso de comunicación y preparación de los niños ante esta situación.Método: Se ha hecho una búsqueda bibliográfica sistemática en bases de datos primarias y secundarias (TripDatbase, PsycInfo, PubMed, Cochrane Library, Psicodoc) combinando diferentes términos clave.Resultados: La mayor parte del material revisado procede del ámbito anglosajón. En nuestro país la mayoría tiene un formato divulgativo, y no consta a los autores de este trabajo la publicación de investigaciones regladas. Sin embargo sí es posible extraer de todo el material revisado una serie de pautas generales que facilitan la comunicación con los menores en esas situaciones.Conclusiones: La comunicación adecuada y en base a unas pautas establecidas contribuye a facilitar el proceso de elaboración del duelo en los niños y adolescentes.Palabras clave: Muerte parental, comunicación, duelo, infancia. AbstractAims: Death is a taboo in our society, and it is common that parents have questions about how to cope with children this issue. The aims of this paper are: 1) to describe the developmental concept of death and the ways of coping in children and adolescents in case of loss 2) to make a literature review of the main recommendations and guidelines to address the communication process and preparation children in this situation.Method: A systematic literature search has been made in primary and secondary databases (TripDatbase, PsycInfo, PubMed, Cochrane Library, Psicodoc), by combining different keywords.Results: Most of the reviewed material comes from England and USA. In our country the majority has an informative format, and we have no evidence of published regulated research. However it is possible to remove from all the material reviewed a number of general guidelines to facilitate communication with children in case of loss of a loved one.Conclusions: The correct and based on established guidelines communication makes easier the process of grief in children and adolescents.

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A scoping review of bereavement service outcomes

et al. 2016

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This project outlines existing bereavement service types and the state of science in relation to determination of outcomes. It offers suggestions to advance the state of science to validate or refine bereavement services. It brings to light the issue that bereavement service outcomes need to be carefully researched so that evidence can drive service refinement and expansion. It also highlights the importance of effective bereavement services.

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Evaluation of a British child bereavement service: The user's perspective

Abstract: The CBS is a viable organization that supports bereaved children as expressed in this article.

Cited by 7 publications

References 10 publications

Paediatric palliative care: a systematic review

Paediatric palliative care: a systematic review

Los niños ante la pérdida de uno de los progenitores: revisión de pautas de comunicación eficaces.

A scoping review of bereavement service outcomes

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