Evaluation of parental knowledge after establishing CAH clubs in Vietnam & Indonesia

We All Have a Role to Play: Redressing Inequities for Children Living with CAH and Other Chronic Health Conditions of Childhood in Resource-Poor Settings

“…Reflecting CLAN’s commitment to continuous quality improvement (CQI), indicators used to monitor and evaluate the use of knowledge at the individual, health professional and systems levels are numerous (see Table A1 ) and include measures of: Conceptual knowledge use—this includes changes in levels of knowledge, understanding or attitudes. Examples of indicators used to monitor knowledge use included: the CAH PepTalk Tool [ 53 ], developed to evaluate parental knowledge of CAH and its management; numbers of families and health professionals attending Club meetings and training sessions (reflected degree of engagement); nature of questions posed by families at Club meetings (a useful barometer of the general understanding of the community and tool for identifying widely held myths and misunderstandings); engagement of external partners and stakeholders; and requests to CLAN to scale CAH activities to other hospitals (in Vietnam and beyond) and health conditions. Instrumental knowledge use—monitors changes in behavior or practice (and most importantly, changes that translate into improved health outcomes).…”

“…Conceptual knowledge use—this includes changes in levels of knowledge, understanding or attitudes. Examples of indicators used to monitor knowledge use included: the CAH PepTalk Tool [ 53 ], developed to evaluate parental knowledge of CAH and its management; numbers of families and health professionals attending Club meetings and training sessions (reflected degree of engagement); nature of questions posed by families at Club meetings (a useful barometer of the general understanding of the community and tool for identifying widely held myths and misunderstandings); engagement of external partners and stakeholders; and requests to CLAN to scale CAH activities to other hospitals (in Vietnam and beyond) and health conditions.…”

“…Translation of CLAN’s model to type 1 diabetes (2007) and osteogenesis imperfecta (2011) helped raise the profile of paediatric endocrinology as a medical specialty in Vietnam, and the Vietnamese Pediatric Endocrinology Society was established shortly afterwards. Members of the Vietnamese Pediatric Endocrinology Society now actively engage and lead in regional and international professional meetings, and publish on CAH and diabetes in peer review journals [ 53 , 57 , 58 , 59 , 60 , 61 ].…”