“Even Though I Have Dementia, I Prefer That They Are Personable”: A Qualitative Focused Ethnography Study in a Danish General Hospital Setting

Toubøl, Annemarie Ginnerup; Moestrup, Lene; Ryg, Jesper; Thomsen, Katja; Nielsen, Dorthe Susanne

doi:10.1177/2333393619899388

Cited by 8 publications

(5 citation statements)

References 39 publications

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“…According to the stakeholders’ descriptions in our study, dementia friendliness in hospitals primarily concentrates around how to support patients with dementias’ ability to remain a person during hospitalization rather than focusing on the limiting consequences caused by the dementia diagnosis. This coincides with findings from a study describing how patients with dementia experience encounters with hospital staff in general hospital settings (Toubøl et al, 2020). This study indicates that the current dementia discourse seems to challenge how patients with dementia are recognized in hospital settings.…”

Section: Discussionsupporting

confidence: 89%

Stakeholder perspectives of the dementia-friendly hospital: A qualitative descriptive focus group study

et al. 2020

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The term dementia-friendly hospital is increasingly used to describe a variety of initiatives and strategies that are implemented to meet the challenges faced by patients with dementia during hospitalization. However, no definition of the dementia-friendly hospital currently exists. This qualitative focus group study aimed to describe stakeholders’ perspectives of the dementia-friendly hospital. Four stakeholder groups were included: people with dementia, relatives, hospital staff, and representatives from the Danish Alzheimer Association. The thematic analysis suggests that a person-centered approach is a key feature. This approach is described as a continuously reflexive awareness of how to see the person behind the dementia diagnosis. We discuss possible revision of the current dementia discourse and the implications of the findings for future practice and research.

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Section: Discussionsupporting

confidence: 89%

Stakeholder perspectives of the dementia-friendly hospital: A qualitative descriptive focus group study

et al. 2020

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“…Noting how people positioned themselves as “being a person who …” resonates with Hennelly’s review ( Hennelly et al, 2021 ), identifying occupational and social roles as important in enabling people living with dementia to maintain their personhood. Importantly, such strategies were more successful when others recognized, acknowledged, and built on the person’s own story ( Toubøl et al, 2020 ).…”

Section: Discussionmentioning

confidence: 99%

“The Dynamic Nature of Being a Person”: An Ethnographic Study of People Living With Dementia in Their Communities

et al. 2023

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Background and Objectives A dementia diagnosis can impact on social interactions. This study aims to understand how people living with dementia act as social beings within everyday interactions in their local communities. Research Design and Methods Focused ethnography informed by Spradley’s approach to data collection and analysis. Observations in community spaces. Results Twenty-nine observations were undertaken in everyday social settings with 11 people with dementia who were part of a longitudinal interview study. Data consisted of 40 hours of observation, and researcher fieldnotes. The overarching theme ‘The dynamic nature of being a person’ encapsulates participants’ exhibited experiences in negotiating to attain and sustain an acknowledged place in their communities. Two sub-themes characterized contexts and actions: 1 ‘Being me - not dementia’: participants constructed narratives to assert their ontological presence in social settings. They and others used strategies to mediate cognitive changes evidencing dementia. 2 ‘Resisting or acquiescing to ‘being absent in place’’: Participants were often able to resist being absent to the gaze of others, but some social structures and behaviors led to a person being ‘in place’, yet not having their presence confirmed. Discussion and Implications People living with dementia can actively draw on personal attributes, familiar rituals, objects, and social roles to continue to present themselves as social beings. Identifying how post-diagnosis people may self-manage cognitive changes to retain their presence as a person can help health and social care practitioners and families collaborate with the person living with dementia enabling them to have a continued social presence.

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“…A focused ethnographic study was employed for this study. This approach involves addressing a specific social phenomenon comprising common behaviors, shared experiences, and perspectives with specific groups (Knoblauch, 2005; Kramlich et al, 2018; Toubøl et al, 2020). The specific social phenomenon of this study comprised older patients’ perspectives on communication about medications across transitions of care.…”

Section: Methodsmentioning

confidence: 99%

Knowledge and Power Relations in Older Patients’ Communication About Medications Across Transitions of Care

et al. 2021

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Communicating about medications across transitions of care is a challenging process for older patients. In this article, we examined communication processes between older patients, family members, and health professionals about managing medications across transitions of care, focusing on older patients’ experiences. A focused ethnographic design was employed across two metropolitan hospitals. Data collection methods included interviews, observations, and focus groups. Following thematic analysis, data were analyzed using Fairclough’s Critical Discourse Analysis and Medication Communication Model. Older patients’ medication knowledge and family members’ advocacy challenged unequal power relations between clinicians and patients and families. Doctors’ use of authoritative discourse impeded older patients’ participation in the medication communication. Older patients perceived that nurses’ involvement in medication communication was limited due to their task-related routines. To reduce the unequal power relations, health professionals should be more proactive in sharing information about medications with older patients across transitions of care.

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“Even Though I Have Dementia, I Prefer That They Are Personable”: A Qualitative Focused Ethnography Study in a Danish General Hospital Setting

Cited by 8 publications

References 39 publications

Stakeholder perspectives of the dementia-friendly hospital: A qualitative descriptive focus group study

Stakeholder perspectives of the dementia-friendly hospital: A qualitative descriptive focus group study

“The Dynamic Nature of Being a Person”: An Ethnographic Study of People Living With Dementia in Their Communities

Knowledge and Power Relations in Older Patients’ Communication About Medications Across Transitions of Care

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