Everyday activities when living at home with advanced cancer: A cross‐sectional study

Abstract

Everyday activities denote what people do as individuals, in families and with communities to occupy time and bring meaning and purpose to life. They involve activities people need to, want to and are expected to do including work, leisure, social activities, mobility, household and self-care activities. In a study involving people diagnosed with advanced cancer (n = 977), 58% reported "a little" and 31% "quite a bit" problems with work and daily activities (Johnsen et al., 2013). In another study, a significant proportion of women with metastatic breast cancer (n = 163) reported difficulties with at least one self-care (43%) and household (74%) activity (Cheville et al., 2008). Moreover, in studies involving elderly people with various diagnoses and people with brain injury, it has been documented that types of everyday activities present in a person's life to some extend are determined by gender (Niti,

The Association between ADL Ability and Quality of Life among People with Advanced Cancer

“…[39]. Studies support that the ADL-I can generate valid and reliable linear measures of self-reported quality of ADL task performance in persons with long-term chronic diseases [12, 27, 28, 39] including advanced cancer [40].…”

Measuring self-reported ability to perform activities of daily living: a Rasch analysis

“…Later studies have supported the validity of the ADL-I to describe and measure self-reported quality of ADL task performance in persons with other chronic conditions e.g. depression [ 9 ], COPD [ 12 ] and incurable cancer [ 10 , 13 ]. Further, a study suggested that the ADL-I is sensitive to change in ADL ability among older persons participating in a reablement program [ 15 ].…”

“…The psychometric properties of the observation-based AMPS ADL ability measures have been established across gender and diagnostic groups [ 7 ]. Still, observation-based measures represent the outsider’s perspective which has limited relationship to the insider’s perspective i.e., the person’s perceived ability [ 8 – 10 ]. Until recently, an ADL instrument, based on self-report, focused on the quality of performance and providing linear measures, was not available.…”

“…So far, the ADL-I has been applied in research studies among various diagnostic groups e.g. rheumatic diseases [ 8 ], depression [ 9 ], chronic obstructive pulmonary disease (COPD) [ 12 ], advanced cancer [ 10 , 13 ], a mixed sample of chronic conditions [ 14 ] and in a geriatric population [ 15 ]. For each of these research studies, study-specific ADL-I measures have been generated based on Rasch measurement methods, verifying validity and reliability of the measures.…”

Disability in Basic Activities of Daily Living Is Associated With Symptom Burden in Older People With Advanced Cancer or Chronic Obstructive Pulmonary Disease: A Secondary Data Analysis

“…29 Comparatively, in a cohort study of 164 patients with advanced cancer living at home, heavy housework was found to be the most problematic of daily activities, and engagement in leisure and social activities was considered a priority. 30 We propose that functional assessment should include both basic and instrumental activities of daily living with a focus on individual activities rather than overall decline. Although there can be a hierarchical pattern in loss of independence in activities of daily living, the order can be affected by the sample studied, the choice of response options for each item, the selection and number of items in the scale, and the type of scaling procedure.…”