Experiences with and perspectives on goal setting in spinal cord injury rehabilitation: a systematic review of qualitative studies

Maribo, Thomas; Jensen, Charlotte; Madsen, Louise Sofia; Handberg, Charlotte

doi:10.1038/s41393-020-0485-8

Cited by 35 publications

(62 citation statements)

References 26 publications

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“…NMSOD-mediated spinal cord injury results in varying degrees of disability that requires rehabilitation[ 14 , 15 ]. Patients with spinal cord injury frequently exhibit motor and sensory dysfunction in the limbs, as well as lack of control over defecation and urination.…”

Section: Discussionmentioning

confidence: 99%

Rehabilitation and pharmacotherapy of neuromyelitis optica spectrum disorder: A case report

Wang

Xia

Yang

et al. 2021

WJCC

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BACKGROUND Neuromyelitis optica spectrum disorder (NMOSD) is a demyelinating autoimmune disease that affects the central nervous system. It typically manifests as optic neuritis or extensive longitudinal myelitis, with or without the presence of anti-aquaporin protein 4 autoantibodies (immunoglobulin G). CASE SUMMARY We report the case of a 45-year-old woman with a history of Sjogren's syndrome who was diagnosed with NMOSD accompanied by spinal cord injury and left calf intermuscular vein thrombosis. The patient received hormone shock and gamma globulin therapy in the acute phase and standard rehabilitation treatment during convalescence. Upon discharge, the patient was able to control urination and defecation, stand independently, and walk short distances with the aid of a walker. CONCLUSION This case suggests that pharmacotherapy and standard rehabilitation treatment can improve the prognosis of NMSOD patients.

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Section: Discussionmentioning

confidence: 99%

Rehabilitation and pharmacotherapy of neuromyelitis optica spectrum disorder: A case report

Wang

Xia

Yang

et al. 2021

WJCC

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“…The reporting guideline used in the software for Systematic Reviews and Meta-Analyzes can be accessed http://www.prisma-statement.org/. In meta-synthesis studies, the quality of the research is generally evaluated with the "Critical Appraisal Skills Program (CASP) Tool as a Screening Tool" [11]. The reporting guideline used in the software for meta-synthesis studies can be https://casp-uk.bcdn.net/wp-content/uploads/2018/03/CASP-Qualitative-Checklist-2018_fillable_form.pdf.…”

Section: Systematic Review/meta-analysismentioning

confidence: 99%

“…The reporting guideline used in the software for meta-synthesis studies can be https://casp-uk.bcdn.net/wp-content/uploads/2018/03/CASP-Qualitative-Checklist-2018_fillable_form.pdf. When Cochrane metaanalysis is done from randomized controlled studies, "Cochrane Central Register of Controlled Trials" (CENTRAL) should be used [11,12]. The reporting guideline used in the software for Cochrane Meta-Analysis from Randomized Controlled Trials can be https://core.ac.uk/download/pdf/145317582.pdf.…”

Section: Systematic Review/meta-analysismentioning

confidence: 99%

A Web-Based Software for Reporting Guidelines of Scientific Researches

YAĞIN

Yağın

Gözükara

et al. 2021

The Journal of Cognitive Systems

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It is very important to use accurate reporting guidelines when reporting a study in cognitive science and health. This study aims to develop a web-based tool that leads to a reporting guideline that includes checklists and flowcharts for relevant research by type of research designs (qualitative, descriptive, experimental, and methodological studies, etc.) Materials and Methods:The current study covers qualitative research, systematic review/metaanalysis, case presentations, case series, correlational (ecological), case-control, cross-sectional, cohort, randomized clinical trial, non-randomized clinical trial, field studies (for there are reporting guideline for primary protection measures), health care research (animal experiments, etc.), validity studies, consistency studies, simulation studies. For this purpose, the researcher is asked which epidemiological research design is useful and is directed to the reporting guideline for the relevant research type. During the development of the software, the DASH Library in the Python programming language was used. Results:The Scientific Research Guidelines Software developed in this study can improve the reporting quality of the studies by guiding researchers to the correct reporting guide. The webbased software developed can be accessed at http://biostatapps.inonu.edu.tr/BAKY/. The software has English and Turkish language options. Conclusion: Scientific Research Guidelines Software allows researchers to clearly state what they do and what they don't do in their study, how they do it, and what they find as a result.Besides, this software provides access to guides where they can learn about the meaning, strengths, and weaknesses of the study being done.

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“…Goal setting in rehabilitation need to be related to patient's everyday life, and there is a need for individualised approach and person‐centred goal setting. However, person‐centred goal setting often does not occur in rehabilitation (Lloyd et al., 2017; Maribo et al., 2020). From a patient's point of view, the meanings of goal‐setting situations have been identified as ‘trust in the rehabilitation situation, professionals, oneself, and relatives;’ ‘respectful presence;’ ‘confusing awareness;’ ‘disturbing pain;’ and ‘fear of unpredictability’ (Alanko et al., 2019).…”

Section: Introductionmentioning

confidence: 99%

“…Patients who felt they lacked participation tended to have shorter lengths of stay and lower functional status compared to those who agreed to participate in their rehabilitation programme (Wylegala et al., 2015). The professionals seemed to be more oriented to the physical and cognitive rehabilitation, while the patients are more focused on the return to their normal life (Maribo, 2020; Simeone et al., 2015). Knowing how patients experience their return to normal life may help professionals provide adequate treatment to the patients (Simeone et al., 2015).…”

Section: Introductionmentioning

confidence: 99%

From open to locked doors – From dependent to independent: Patient narratives of participation in their rehabilitation processes

Aasen

Nilsen

Dahlborg

et al. 2021

Journal of Clinical Nursing

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Aims and objectives The present study aimed to explore patients' experiences of participating in their rehabilitation process in the context of specialised rehabilitation in Norway. Background The rights of patients to participate in their care and treatment is an ideology that underlines newer international and Norwegian public documents. However, there is a gap between policy statements and clinical practice, and a discrepancy between patients' and professionals' statements about patient participation in rehabilitation. Design A qualitative approach with a narrative design. Methods Eleven patients were individually interviewed to tell their stories about the rehabilitation processes. We utilised narrative analysis with a three‐dimensional space narrative structure including temporality, sociality and spatiality. This study followed the COREQ checklist. Results The analysis identified two throughout plots: ‘person‐centred culture’ and ‘time’, and three plots which constructed how the patients participate in change through the rehabilitation process: (a) dependent—‘open doors’; (b) motivation from within; and (c) independence—‘locked doors’. Conclusions Patient participation in rehabilitation was dependent on person‐centred cultures in the unit and on different aspects of time. The dialogue and the power balance between the patients and the health personnel changed as the rehabilitation progressed. Motivation for rehabilitation had to come from within patients. The paternalistic ideology did not seem to dominate the specialised rehabilitation unit in the present study. Relevance to clinical practice This study gives new insight into how patients participate in change in the rehabilitation process. This can be valuable for healthcare professionals and governments. Insight into how the lack of person‐centred focus can harm the rehabilitation process, and a deeper understanding of the meaning of time in the rehabilitation process is essential. These results may provide a stimulus for discussions on how patients might participate in their rehabilitation process.

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Experiences with and perspectives on goal setting in spinal cord injury rehabilitation: a systematic review of qualitative studies

Cited by 35 publications

References 26 publications

Rehabilitation and pharmacotherapy of neuromyelitis optica spectrum disorder: A case report

Rehabilitation and pharmacotherapy of neuromyelitis optica spectrum disorder: A case report

A Web-Based Software for Reporting Guidelines of Scientific Researches

From open to locked doors – From dependent to independent: Patient narratives of participation in their rehabilitation processes

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