Exploring the intersection of human rights, health, disability and refugee status: an arts-based approach

Wells, Ruth; Murad, Mahmoud; Higgins, Matt; Smith, Louisa; Lenette, Caroline; Lappin, Julia; Dew, Angela; Boydell, Katherine M.; Bibby, Helen; Cassaniti, Maria; Isaacs, David; Raman, Shanti; Zwi, Karen

doi:10.1080/1323238x.2021.1882044

Cited by 10 publications

(2 citation statements)

References 42 publications

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“…Building on previous work conducted by the author and colleagues [15,16], and applying BenEzer and Zetter's [13] conceptual challenges to this previously unrecognized group, the aim of this study is to learn about the journeys made by people with disability from Syrian and Iraqi refugee backgrounds from their countries of origin, through transit countries, to Australia in order understand the impact of this "formative and transformative" experience [13] (p. 297) and better support people's inclusion and participation in Australian society. The aim of publishing this prospective study protocol is to provide a guide for others considering participatory action and life history research involving marginalized populations, including those from culturally and linguistically diverse backgrounds.…”

Section: Aimmentioning

confidence: 96%

Protocol Paper: Conducting Life History Interviews to Explore the Journeys of People with Disability from Syrian and Iraqi Refugee Backgrounds Settling in Australia

Dew

2021

IJERPH

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This paper outlines a research protocol to be undertaken with people with disability from Syrian and Iraqi refugee backgrounds settling in Australia. Since 2012, the numbers of people with disability arriving from these countries has increased with limited understanding about the impact of their refugee journeys on their settlement. The aim of this small-scale exploratory study is to learn about the journeys made by people with disability from Syrian and Iraqi refugee backgrounds from their countries of origin, through transit countries, to Australia in order to understand the impact of these journeys on inclusion and participation in Australian society. This participatory action research study employs a bilingual co-researcher with disability from a Syrian background to conduct life history interviews with up to five participants. Participants will recount their journeys with a focus on the impact of their disability on this experience. The study design is informed by BenEzer and Zetter’s 2014 seminal paper on the importance of the refugee journey to settlement. This study has the potential to foreground the voices and experiences of people with disability from refugee backgrounds who are often absent, silenced or excluded in research and, in so doing, hopefully impact Australian refugee policy.

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Section: Aimmentioning

confidence: 96%

Protocol Paper: Conducting Life History Interviews to Explore the Journeys of People with Disability from Syrian and Iraqi Refugee Backgrounds Settling in Australia

Dew

2021

IJERPH

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“…As researchers who have engaged in decolonial participatory research (e.g. Lenette, 2019; Wells et al, 2021), we wondered from the outset whether using a tool developed from a western perspective for application in clinical settings would preclude diversity among participants and pre-empt how respondents might engage with this method. Based on our application of story completion in a social health context, our findings suggest that the method captured some intersectional markers of identity such as gender and age in the narratives, but the lack of diversity in participants’ ethnic backgrounds and how stories were constructed pointed to limitations.…”

Section: Introductionmentioning

confidence: 99%

How can Story Completion be Used in Culturally Safe Ways?

Lenette

Vaughan

Boydell

2022

International Journal of Qualitative Methods

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Story completion is a narrative inquiry method where participants complete a story from an opening hypothetical scenario or ‘stem’ that researchers create. While interest in this method is growing across disciplines due to its emancipatory potential, the literature fails to address how story completion can be used in culturally safe ways. Cultural safety in research means that it is the participants who determine whether the process values and privileges their unique standpoints and perspectives. Culturally safe research approaches and methods are crucial to decolonisation efforts in the academy. To illustrate this topic, we draw from our experience using a digital version of story completion in May 2020 to prompt thoughts on the impact of the COVID-19 pandemic. We received 52 responses from Australian residents using a stem relating to a pandemic-related scenario. When we noted the lack of diversity in ethnic backgrounds in participant demographic information, we wondered whether story completion was reinforcing rather than disrupting norms about narrative inquiry and what constitutes a story, and we questioned our recruitment strategy. In this paper, we highlight the importance of decolonising research methodologies rather than merely adapting or validating methods by using them across different cultural contexts. We explain how our story completion project led to reflections on western constructions of storytelling, how to create the stem, and how to improve our recruitment approach. In response, we propose a rhizomatic perspective, which values multiple entry and exit points in research, to frame practical strategies that can improve the potential of using story completion in culturally safe ways. These include: embracing messy stories; exploring diverse notions of storytelling; favouring story fragments (rather than stems) and story assemblage (rather than completion); co-designing story fragments with target groups; and collaborating with local communities to co-design culturally appropriate and sensitive recruitment strategies and projects.

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Social Work

Hall

2023

Handbook of Social Sciences and Global Public Health

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Exploring the intersection of human rights, health, disability and refugee status: an arts-based approach

Cited by 10 publications

References 42 publications

Protocol Paper: Conducting Life History Interviews to Explore the Journeys of People with Disability from Syrian and Iraqi Refugee Backgrounds Settling in Australia

Protocol Paper: Conducting Life History Interviews to Explore the Journeys of People with Disability from Syrian and Iraqi Refugee Backgrounds Settling in Australia

How can Story Completion be Used in Culturally Safe Ways?

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