Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care

Kuo, Dennis Z.; Houtrow, Amy J.; Arango, Polly; Kuhlthau, Karen; Simmons, Jeffrey M.; Neff, John M.

doi:10.1007/s10995-011-0751-7

Cited by 667 publications

(530 citation statements)

References 66 publications

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“…125,126 The general principles of shared decision-making are as follows: (1) information sharing, (2) respect and honoring differences, (3) partnership and collaboration, (4) negotiation, and (5) care in the context of family and community. 125 The benefits include improved care and outcomes; improved patient, family, and clinician satisfaction; and better use of health resources. 126 It is advocated for by organizations such as the AAP and the Institute of Medicine.…”

Section: C Clinicians Should Use Shared Decision-making For Infantsmentioning

confidence: 99%

Brief Resolved Unexplained Events (Formerly Apparent Life-Threatening Events) and Evaluation of Lower-Risk Infants

Tieder¹,

Bonkowsky²,

Etzel³

et al. 2016

Pediatrics

142

154

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This is the fi rst clinical practice guideline from the American Academy of Pediatrics that specifi cally applies to patients who have experienced an apparent life-threatening event (ALTE). This clinical practice guideline has 3 objectives. First, it recommends the replacement of the term ALTE with a new term, brief resolved unexplained event (BRUE). Second, it provides an approach to patient evaluation that is based on the risk that the infant will have a repeat event or has a serious underlying disorder. Finally, it provides management recommendations, or key action statements, for lower-risk infants. The term BRUE is defi ned as an event occurring in an infant younger than 1 year when the observer reports a sudden, brief, and now resolved episode of ≥1 of the following: (1) cyanosis or pallor; (2) absent, decreased, or irregular breathing; (3) marked change in tone (hyper-or hypotonia); and (4) altered level of responsiveness. A BRUE is diagnosed only when there is no explanation for a qualifying event after conducting an appropriate history and physical examination. By using this defi nition and framework, infants younger than 1 year who present with a BRUE are categorized either as (1) a lower-risk patient on the basis of history and physical examination for whom evidence-based recommendations for evaluation and management are offered or (2) a higher-risk patient whose history and physical examination suggest the need for further investigation and treatment but for whom recommendations are not offered. This clinical practice guideline is intended to foster a patient-and family-centered approach to care, reduce unnecessary and costly medical interventions, improve patient outcomes, support implementation, and provide direction for future research. Each key action statement indicates a level of evidence, the benefi t-harm relationship, and the strength of recommendation.

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Section: C Clinicians Should Use Shared Decision-making For Infantsmentioning

confidence: 99%

Brief Resolved Unexplained Events (Formerly Apparent Life-Threatening Events) and Evaluation of Lower-Risk Infants

Tieder¹,

Bonkowsky²,

Etzel³

et al. 2016

Pediatrics

142

154

View full text Add to dashboard Cite

show abstract

“…FCC requires broad-reaching buy-in from all members of the health care team and the health care institution that may require changes in institutional design and policy. The multiconceptual nature (communication, respect, collaboration, and empowerment), consequent lack of accurate measures, and lack of direct financial reimbursement for FCC-related activities 7 are additional barriers. [3][4][5][6][7][8] Despite these challenges, family inclusion in the whole of pediatric patient care is a worthy goal, and an attainable one with multiprofessional and institutional commitment.…”

mentioning

confidence: 99%

Testing the Feasibility of Skype and FaceTime Updates With Parents in the Neonatal Intensive Care Unit

Epstein¹,

Sherman²,

Blackman³

et al. 2015

American Journal of Critical Care

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“…Compreendida como uma relação de parceria entre a família e os provedores do cuidado para a tomada de decisão em saúde, o cuidado centrado na família deve primar pela troca de informações de maneira aberta e objetiva, pelo respeito às diferenças social, cultural e linguística e pela adoção de planos de intervenções flexíveis, que melhor se adaptem às necessidades da criança e a de seus pares 18 . Questionar as percepções da família da criança sobre a terapêutica realizada é uma forma de valorizá-la e corresponsabilizá-la pelo tratamento.…”

Section: ▄ Discussãounclassified

Orientação comunitária e enfoque familiar: avaliação de usuários e profissionais da estratégia saúde da família

Paula¹,

Samico

Caminha

et al. 2017

Cad. saúde colet.

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Resumo Objetivo avaliar a presença e extensão da orientação comunitária e do enfoque familiar na atenção primária à saúde da criança em unidades da Estratégia Saúde da Família (ESF) de Pernambuco, sob a ótica dos usuários e profissionais. Método estudo transversal, com 431 cuidadores de crianças menores de um ano e 33 profissionais de saúde, realizado com base no instrumento validado PCATool – Brasil versões criança e profissional. Realizou-se análise descritiva e o teste ANOVA foi aplicado para comparar as médias dos escores entre os municípios, no software Stata 12.1 SE. Resultados os atributos orientação familiar e orientação comunitária foram considerados de baixo escore (< 6,6), mediante o julgamento dos cuidadores das crianças que utilizavam a ESF como fonte regular de atenção, diferentemente da avaliação realizada pelos profissionais (escores > 6,6). Não foram observadas diferenças estatisticamente significantes (p < 0,05) entre os municípios. Conclusão os atributos foram considerados aquém do ideal na perspectiva dos cuidadores das crianças e mais bem avaliados pelos profissionais de saúde da ESF dos três municípios. Esses resultados pretendem servir a gestores e profissionais de saúde para tomada de decisão no âmbito da Saúde da Família.

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Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care

Cited by 667 publications

References 66 publications

Brief Resolved Unexplained Events (Formerly Apparent Life-Threatening Events) and Evaluation of Lower-Risk Infants

Brief Resolved Unexplained Events (Formerly Apparent Life-Threatening Events) and Evaluation of Lower-Risk Infants

Testing the Feasibility of Skype and FaceTime Updates With Parents in the Neonatal Intensive Care Unit

Orientação comunitária e enfoque familiar: avaliação de usuários e profissionais da estratégia saúde da família

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