Family information needs about aphasia

Avent, Jan; Glista, Sandra; Wallace, Sarah; Jackson, Jerrold M.; Nishioka, Jennifer; Yip, Winnie

doi:10.1080/02687030444000813

Cited by 67 publications

(52 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This study comprised people who were at least six months' post-stroke. Different information needs may have been disclosed if they were one or more years post-stroke (Hangar et al, 1998;Rodgers, Bond and Curless, 2001;Avent et al, 2005). Overall, the needs our focus groups disclosed were consistent with the literature.…”

Section: What Information Do People With Stroke Want To See On the Wesupporting

confidence: 77%

“…These are similar issues to those identified in other studies (e.g. Hare et al, 2006;Hangar et al, 1998;Wiles, Pain, Buckland and McLellan, 1998;Avent, Glista, Wallace, Jackson, Nishioka and Yip, 2005). At the rehabilitation stage, Avent et al's focus groups expressed the need to meet a person with aphasia.…”

Section: What Information Do People With Stroke Want To See On the Wementioning

confidence: 49%

“…In particular, the need for information about emotional consequences and impact of stroke was raised by all our groups and has also been raised in other studies (O' Mahoney, Rodgers, Thomson, Dobson and James, 1997; Wiles et al, 1998, Avent et al, 2005Hare et al, 2006). The website did not include information about these topics and they have now been included.…”

Section: What Information Do People With Stroke Want To See On the Wementioning

confidence: 99%

See 2 more Smart Citations

Information needs after stroke: What to include and how to structure it on a website. A qualitative study using focus groups and card sorting

Kerr¹,

Hilari

Litosseliti

2010

Aphasiology

View full text Add to dashboard Cite

Citation: Kerr, J., Hilari, K. & Litosseliti, L. (2010). Information needs after stroke: What to include and how to structure it on a website. A qualitative study using focus groups and card sorting. Aphasiology, 24(10), pp. 1170Aphasiology, 24(10), pp. -1196Aphasiology, 24(10), pp. . doi: 10.1080 This is the unspecified version of the paper.This version of the publication may differ from the final published version. Permanent

show abstract

Section: What Information Do People With Stroke Want To See On the Wesupporting

confidence: 77%

Section: What Information Do People With Stroke Want To See On the Wementioning

confidence: 49%

Section: What Information Do People With Stroke Want To See On the Wementioning

confidence: 99%

See 1 more Smart Citation

Information needs after stroke: What to include and how to structure it on a website. A qualitative study using focus groups and card sorting

Kerr¹,

Hilari

Litosseliti

2010

Aphasiology

View full text Add to dashboard Cite

show abstract

“…20,40,45,47,61 Family members of people with aphasia have rated information about aphasia as their most important informational need post stroke, followed by psychosocial support and hopefulness. 62 It is important that health professionals routinely provide written stroke and aphasia information to signifi cant others. It was interesting to note that participants with more severe aphasia and/or reading diffi culties did not rate it signifi cantly more important for their signifi cant others to receive this written information compared to participants who had milder aphasia and/or reading difficulties.…”

Section: Did Participants Consider It Important For Their Signifi Canmentioning

confidence: 99%

Do People With Aphasia Want Written Stroke and Aphasia Information? A Verbal Survey Exploring Preferences for When and How to Provide Stroke and Aphasia Information

Rose

Worrall

Hickson

et al. 2010

Topics in Stroke Rehabilitation

View full text Add to dashboard Cite

A phasia can be defined as "the loss or impairment of language function." 1(p49) It is a multimodality disorder that manifests in difficulties with speaking, reading, and writing.1 Various studies have investigated the prevalence of aphasia resulting from stroke, estimating between 10% to 18% of stroke survivors will have aphasia long term.2-4 Given the language diffi culties encountered by people with aphasia, there is a growing recognition of the need to produce aphasia-friendly written health information.5-9 Aphasia-friendly information incorporates many of the recommendations for how best to format written information for stroke patients 10,11 but to an exaggerated degree. 12Preliminary research found that people with aphasia comprehended more health information when standard health information brochures and booklets were reformatted to contain simple words and short sentences, larger font, white space, and pictures. 6 Before further pursuing research in the area of aphasia-friendly text formatting, it is fundamental to determine whether people with aphasia wish to receive health information in written formats. "Virtually every variety of aphasia entails some diffi culty in oral reading or reading comprehension." 13(p60) Given this, and the wide variety of media available for patient education (eg, DVDs, Websites, verbal information), it should not be assumed that people with aphasia desire to receive health information in a written Purpose: Written health information can be better comprehended by people with aphasia if it is provided in an aphasiafriendly format. However, before pursuing research in the area of text-formatting for people with aphasia, it must be determined whether people with aphasia consider it helpful to receive health information in the written media. This study, therefore, aimed to determine the following: whether people with aphasia consider it important to receive written stroke and aphasia information; when people with aphasia prefer to receive this information; and what their preferences are for health information media. Method: Surveys were administered in a face-to-face interview with 40 adults with aphasia. Participants were purposefully selected using maximum variation sampling for a variety of variables including aphasia severity, reading ability, and time post stroke. Results: Participants thought it important to receive written information about both stroke and aphasia. They considered it helpful to receive written information at several stages post stroke, particularly from 1 month onwards. The largest proportion (97%) of participants identifi ed 6 months post stroke as the most helpful time to receive this information. Written information was the most preferred media at participants' present time post stroke (M = 39 months; range, 2-178 months). Videos/DVDs were the most preferred media during the 6 months immediately following the stroke. Conclusion: Despite reading and language diffi culties, participants considered written information to be important, hence people wi...

show abstract

“…Stroke impacts on the patient, their family and carers [47][48][49], particularly when speech is affected [47], so it is important to provide families of stroke survivors with appropriate information [38,48]. Difficulties arise because family members do not necessarily recognise themselves as carers, especially in the early stages following a stroke [50,51].…”

Section: The Information Needs Of Patients With Speech and Language Dmentioning

confidence: 99%

An assessment of the quality of information on stroke and speech and language difficulty web sites

Surman

Bath

2013

Journal of Information Science

View full text Add to dashboard Cite

Online healthcare information is used by patients, their carers and families (PCF) experiencing speech and language difficulties (SLD) after a stroke. This information may be of variable quality. Tools have been designed to assess the risk of poor information quality, evaluating both generic and specific concepts, yet none focus on stroke. The readability of information is also an issue when communication disorders are in consideration. The study investigated the quality and readability of information on 51 web sites pertaining to SLD following a stroke. These were assessed using two generic evaluation tools (DISCERN and the HON Code), readability tests (Flesch Reading Ease and Flesch-Kincaid Grade Level), and a specifically designed Stroke Tool based on the reported information needs of stroke PCF experiencing SLD. The tools themselves were then evaluated for their feasibility, reliability and validity. In common with previous studies, the information quality of the selected web sites was found to be extremely variable with only 59% achieving a score of 50% or more using HON, only 37% using DISCERN, and 49% using the Stroke Tool. Readability is generally very poor with only 6% of web sites scoring below the recommended grade 7. The tools did not correlate well, suggesting that they measure different domains of quality. The Internet may be a valuable resource for stroke PCF however the variable quality of information means that cautious use is recommended. The readability of information is a more serious issue that needs addressing by web site developers.

show abstract

Family information needs about aphasia

Cited by 67 publications

References 0 publications

Information needs after stroke: What to include and how to structure it on a website. A qualitative study using focus groups and card sorting

Information needs after stroke: What to include and how to structure it on a website. A qualitative study using focus groups and card sorting

Do People With Aphasia Want Written Stroke and Aphasia Information? A Verbal Survey Exploring Preferences for When and How to Provide Stroke and Aphasia Information

An assessment of the quality of information on stroke and speech and language difficulty web sites

Contact Info

Product

Resources

About