Family members’ lived experiences of everyday life after intensive care treatment of a loved one: a phenomenological hermeneutical study

Frivold, Gro; Slettebø, RN Åshild; Dale, RN Bjørg

doi:10.1111/jocn.13059

Cited by 39 publications

(69 citation statements)

References 33 publications

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“…Relatives described feeling overwhelmed by anxiety and stress related to their role as a caregiver (Söderström et al ., ; Ågård et al ., ; Gallop et al ., ). Many cited intense feelings of fear of the future and uncertainty about becoming a caregiver (Söderström et al ., ; Ågård et al ., ; Frivold et al ., ). Other emotional responses were feelings of isolation, loneliness, and guilt.…”

Section: Health and Well‐beingmentioning

confidence: 89%

“…Frivold et al . () reported how relatives had found their inner strength and appreciated anew their own capabilities and resilience.…”

Section: Health and Well‐beingmentioning

confidence: 94%

“…Qualitative studies (Dithole and Thupayagale‐Tshweneagae, ; Frivold et al, ) report changes in every aspect of life where relatives describe less time to engage in usual personal and social activities. A lack of time was commonly attributed to the practical demands of caregiving (Cox et al ., ; Dithole and Thupayagale‐Tshweneagae, ; Gallop et al ., ; Frivold et al ., ). A relative in Gallop et al .…”

Section: Employment and Lifestylementioning

confidence: 98%

“…Worryingly, Frivold et al . (, p. 398) reported how relatives felt their emotions and needs came secondary to the patients; one participant stated, ‘ what is bothering you is neglected. I have put it away… ’ Participants also described how suppressing their emotion was stressful and exhausting.…”

Section: Health and Well‐beingmentioning

confidence: 99%

“…A participant in Frivold et al . 's (, p. 397) study described how they were perpetually worried about their relative ‘stopping breathing during the night’. Similarly, a participant in Dithole and Thupayagale‐Tshweneagae's (, p. 34) study described how they watched over their wife ‘even in her sleep’.…”

Section: Health and Well‐beingmentioning

confidence: 99%

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Outcomes and experiences of relatives of patients discharged home after critical illness: a systematic integrative review

Stayt

Venes

2018

Nursing in Critical Care

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Background Patients discharged from intensive care may experience psychological and physical deficits resulting in a long and complex rehabilitation upon discharge. Relatives are also vulnerable to psychological pathologies and diminished health‐related quality of life following the patients' critical illness. Relatives often provide care during the patients' rehabilitation, which may influence their health. Aim To report the outcomes and experiences of relatives of patients discharged home after critical illness. Design Systematic integrative review. Methods Electronic databases Cumulative Index of Nursing and Allied Health Literature, PubMed, Embase®, and PsychINFO® were searched using keywords, synonyms, and medical subject headings. Reference lists of articles and critical care journals were manually searched. Studies eligible for inclusion reported primary research and were published in English between 2007 and 2017. Studies were appraised using the Critical Appraisal Skills Programme checklists. Data were extracted and then analysed according to framework. Findings Twenty‐five studies were included: 19 quantitative, 4 qualitative, and 1 mixed method study. Three themes were identified: health and well‐being, employment and lifestyle, and caregiving role. Health and well‐being reports the incidence and significance of psychological morbidity such as post‐traumatic stress disorder, anxiety, and depression. Employment and lifestyle describes the impact of caregiving on the relative's ability to work and engage in usual social activities. The final theme describes and discusses the caregiving role in terms of activities of daily living, knowledge and skills, and adaption to the role. Conclusions There is a significant and meaningful impact on outcomes and experiences of relatives of patients discharged home after critical illness. Relatives' caregiving is embedded within the context of their psychological morbidity and social adjustment. Relevance to practice If informal care giving is to be sustainable, there is a need to design effective strategies of supporting families through all stages of the critical illness trajectory.

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Section: Health and Well‐beingmentioning

confidence: 89%

“…Frivold et al . () reported how relatives had found their inner strength and appreciated anew their own capabilities and resilience.…”

Section: Health and Well‐beingmentioning

confidence: 94%

Section: Employment and Lifestylementioning

confidence: 98%

Section: Health and Well‐beingmentioning

confidence: 99%

Section: Health and Well‐beingmentioning

confidence: 99%

See 3 more Smart Citations

Outcomes and experiences of relatives of patients discharged home after critical illness: a systematic integrative review

Stayt

Venes

2018

Nursing in Critical Care

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Family members' satisfaction with care and decision‐making in intensive care units and post‐stay follow‐up needs—a cross‐sectional survey study

et al. 2017

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AimThe aim of this study was to explore family members' satisfaction with care and decision‐making during the intensive care units stay and their follow‐up needs after the patient's discharge or death.DesignA cross‐sectional survey study was conducted.MethodsFamily members of patients recently treated in an ICU were participating. The questionnaire contented of background variables, the instrument Family Satisfaction in ICU (FS‐ICU 24) and questions about follow‐up needs. Descriptive and non‐parametric statistics and a multiple linear regression were used in the analysis.ResultsA total of 123 (47%) relatives returned the questionnaire. Satisfaction with care was higher scored than satisfaction with decision‐making. Follow‐ up needs after the ICU stay was reported by 19 (17%) of the participants. Gender and length of the ICU stay were shown as factors identified to predict follow‐up needs.

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The Caregiver

Mellinghoff

Mol²,

Efstathiou³

2022

The Very Old Critically Ill Patients

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Family members’ lived experiences of everyday life after intensive care treatment of a loved one: a phenomenological hermeneutical study

Cited by 39 publications

References 33 publications

Outcomes and experiences of relatives of patients discharged home after critical illness: a systematic integrative review

Outcomes and experiences of relatives of patients discharged home after critical illness: a systematic integrative review

Family members' satisfaction with care and decision‐making in intensive care units and post‐stay follow‐up needs—a cross‐sectional survey study

The Caregiver

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