Feasibility of Comparing Core Data from Existing Trauma Registries in Scandinavia. Reaching for a Scandinavian Major Trauma Outcome Study (MTOS)

Abstract

Background: the organisationo ft raumac arei ns candinavia has several similarities, including trauma registries, but so far there are limited amount of research on efficiency and outcome. data and results from trauma outcome studies like the us mtos are not fully applicable to the scandinavian trauma population.Aims: to reveal the feasibility of usingd ata from existing trauma registries of major hospitals in scandinavia, for aminimal common dataset, in ajoint, prospective scandinavian mtos.Material and Methods: We collected data points, data point definitions, andinclusion/ exclusion criteria, from the major trauma registries of the swedish trauma registry standard, three university hospitalsindenmark, one university hospital in Finland, and the norwegian national tr auma registry.t he collected material was compared to reveal common data points, inclusion criteria, and the compatibilityofdata point definitions.Results: the median number of data points was 147 (range 71-257; interquartile range =90-205). Most registries lacked precise data definition catalogues. Only 16 data points could be considered as common, of which just afew were core trauma data. Four data points had the same data category options but were not considered having the same data point definitions. The inclusion criteria were not uniform.Conclusions: tr auma registries in scandinavia have few common core data and data point definitions. There were data points for calculating the Tr auma and Injury Severity score (triss) but the inclusion criteriav aried too much to ensure av alid comparison.

Collecting core data in severely injured patients using a consensus trauma template: an international multicentre study

“…Due to differences between trauma registries, the collaboration recognised that meaningful outcome comparisons were not possible. Similar conclusions were also reached in a contemporary Scandinavian report [9]. …”

“…The introduction of regionalised trauma systems has the potential to reduce preventable deaths [3], but an improved understanding of the benefits and limitations of different trauma care systems requires comparison across systems [4]. However, it has been shown that the datasets of existing trauma registries frequently lack compatible definitions of common data variables [5-9]. Consequently, the comparison and interpretation of trauma system outcomes has been hampered [10].…”

Developing templates for uniform data documentation and reporting in critical care using a modified nominal group technique

“…The difficulty of comparing trauma and critical care between centres and over time based on locally defined data variables has been illustrated in several recent reports [6-8,28]. Over the last two decades, several templates for standardised documentation and reporting in critical care have been published.…”

“…The quality of data collected routinely for other purposes may be of variable quality [4,5]. Even in cases in which the data quality is satisfactory, data that are defined and collected for other purposes can create uncontrolled bias and influence external and internal validity [6,7]. Uncontrolled bias and lack of external validity can make the interpretation of results challenging [8] and hinder systematic reviews [9-11].…”

Calidad y registros en trauma

“…En Europa, existen diferentes RT surgidos en las últimas décadas; muchos son unicéntricos, aunque algunos, como el alemán (German National Trauma Registry) 46 48 son multicéntricos y contienen gran cantidad de pacientes e información. Han surgido iniciativas para llegar a un consenso sobre los datos que debe contener un RT europeo, la forma de recoger esos datos y el manejo estadístico de los mismos (Utstein Template for Uniform Reporting of Data following Major Trauma) 49,50 , paso previo hacia un registro europeo, que es factible con mínima infraestructura adicional y usando un sistema basado en la web 51 , aunque de momento no ha avanzado suficientemente.…”