Female caregivers’ contextual complexities and familial power structures within Alzheimer’s care

Harrington, C; Witt, Cheryl; Cacchione, Pamela Z.

doi:10.1080/08952841.2022.2130655

Cited by 3 publications

(2 citation statements)

References 47 publications

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“…Harrington et al identified a significant policy gap in supporting female family caregivers who provide most of the care to persons with AD/ADRD risking their health and financial security [ 63 ]. They also found nuances of gender, power, ideologies, and compulsory altruism [ 63 ].…”

Section: Comprehensive Understanding Of Caregivers In Ad and Adrdmentioning

confidence: 99%

Comprehensive Understanding of Hispanic Caregivers: Focus on Innovative Methods and Validations

Sehar

Rawat

Choudhury

et al. 2022

Journal of Alzheimer's Disease Reports

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Alzheimer’s disease (AD) and Alzheimer’s disease-related disorders (ADRD) are late-onset, age-related progressive neurodegenerative disorders, characterized by memory loss and multiple cognitive impairments. Current research indicates that Hispanic Americans are at an increased risk for AD/ADRD and other chronic conditions such as diabetes, obesity, hypertension, and kidney disease, and given their rapid growth in numbers, this may contribute to a greater incidence of these disorders. This is particularly true for the state of Texas, where Hispanics are the largest group of ethnic minorities. Currently, AD/ADRD patients are taken care by family caregivers, which puts a tremendous burden on family caregivers who are usually older themselves. The management of disease and providing necessary/timely support for patients with AD/ADRD is a challenging task. Family caregivers support these individuals in completing basic physical needs, maintaining a safe living environment, and providing necessary planning for healthcare needs and end-of-life decisions for the remainder of the patient’s lifetime. Family caregivers are mostly over 50 years of age and provide all-day care for individuals with AD/ADRD, while also managing their health. This takes a significant toll on the caregiver’s own physiological, mental, behavioral, and social health, in addition to low economic status. The purpose of our article is to assess the status of Hispanic caregivers. We also focused on effective interventions for family caregivers of persons with AD/ADRD involving both educational and psychotherapeutic components, and a group format further enhances effectiveness. Our article discusses innovative methods and validations to support Hispanic family caregivers in rural West Texas.

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Section: Comprehensive Understanding Of Caregivers In Ad and Adrdmentioning

confidence: 99%

Comprehensive Understanding of Hispanic Caregivers: Focus on Innovative Methods and Validations

Sehar

Rawat

Choudhury

et al. 2022

Journal of Alzheimer's Disease Reports

View full text Add to dashboard Cite

show abstract

“…About 75% of patients with AD living at home received care from family and friends while the remaining 25% of patients received care from services paid for by the family [ 11 ]. Statistics reveal that family caregivers are predominantly female (91%), over 65 years old, and manage more complex medical conditions than non-ADRD caregivers [ 12 ]. Research shows that caregivers face distinct challenges that can be summarized into the following categories: psychological morbidities, physical morbidities, social isolation, financial burden, and institutionalization [ 13 ].…”

Section: Introductionmentioning

confidence: 99%

Understanding the Perspectives and Needs of Latinx Caregivers of Persons with Alzheimer’s Disease in the Appalachians: An Interpretive Phenomenological Approach

Moore,

Davis,

Dolins

et al. 2024

Journal of Alzheimer's Disease Reports

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Background: Alzheimer’s disease and related dementias (ADRD) disproportionately impact Latinx and other communities of color in the United States. The challenges for patients with ADRD and their informal caretakers can be attributed, in part, to the gaps that exist within health care services and systems. Objective: To understand the perspectives of barriers, beliefs, knowledge, and needs for the Latinx informal caregivers that take care of relatives with ADRD in the Upstate of South Carolina, region of Appalachia. Methods: This study was approved by the GHS-Prisma Health and Clemson University IRB, Study #Pro00086707. In-depth phone interviews were conducted with a sample of Latinx informal caregivers. A descriptive and interpretive phenomenological approach was used for analysis. Participants were recruited through community partnerships with local organizations. Results: Salient themes identified in this study included the relevance of caregiver’s degree of awareness about the disease and a perspective of Alzheimer’s disease as a progressive and degenerative disease. Critical moments identified encompassed challenges related to patient engagement with the outside world, their attitudes, and behaviors, as well as caregiver-related challenges with access to culturally and linguistically relevant resources needed to provide proper care. Caregivers identified several culturally relevant coping strategies used and motivators in providing care for their relatives with ADRD. Conclusions: Linguistically and culturally sensitive programs and resources that account for knowledge, assets, and needs of Latinx informal caregivers of ADRD patients are needed to improve the quality of care and decrease disparities in health outcomes for Latinx older adults.

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“We can’t allow ourselves to fall ill”: Health and (self-)discipline in female family caregivers from a gender perspective

Domínguez-Castillo,

Bonilla-Campos,

Pujal i Llombart

2024

Journal of Women & Aging

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Female caregivers’ contextual complexities and familial power structures within Alzheimer’s care

Cited by 3 publications

References 47 publications

Comprehensive Understanding of Hispanic Caregivers: Focus on Innovative Methods and Validations

Comprehensive Understanding of Hispanic Caregivers: Focus on Innovative Methods and Validations

Understanding the Perspectives and Needs of Latinx Caregivers of Persons with Alzheimer’s Disease in the Appalachians: An Interpretive Phenomenological Approach

“We can’t allow ourselves to fall ill”: Health and (self-)discipline in female family caregivers from a gender perspective

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