Frailty and frailty screening: A qualitative study to elicit perspectives of people living with <scp>HIV</scp> and their healthcare professionals

Clair-Sullivan, Natalie St; Simmons, Kiersten; Harding, Richard; Levett, Tom; Maddocks, Matthew; Roberts, Jonathan R.; Trotman, Daniel; Yi, Deokhee; Vera, Jaime H.; Bristowe, Katherine

doi:10.1111/hiv.13419

Cited by 8 publications

(12 citation statements)

References 49 publications

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“…Loss of cognitive function and dementia was a concern for many PWH. This is in line with previous findings that PWH appear more concerned about cognitive frailty and dementia than physical frailty [13]. Age-related differences to concerns were seen whereby some of the younger participants (<50 years old) felt it would unlikely be an issue for them currently.…”

Section: Discussionsupporting

confidence: 91%

Section: Discussionsupporting

confidence: 62%

“…The new validated measure (Positive Outcomes), informed by the experiences of PWH, includes concerns about CI (memory and concentration) with its items [17, 18]. Similar findings have been reported in other qualitative studies evaluating undiagnosed CI and dementia in the general population, and studies regarding other ageing‐related morbidities such as frailty among PWH [13]. Palazzo et al [12] found that older adults broadly support an early diagnosis of CI, perceiving the benefits to include time to adjust and plan for the future and to identify resources to assist in clinical management.…”

Section: Discussionmentioning

confidence: 73%

“…Studies in the general population suggest that people want to know early if they have CI [12]; however, there are no data on preferences for PWH and the views of healthcare workers on this. While other studies report that PWH are concerned about CI [5, 13], their preferences regarding screening are unknown. Moreover, little is known about how it is conducted in practice and perceptions on the benefits and harms of screening.…”

Section: Introductionmentioning

confidence: 99%

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People with HIV and healthcare workers views on screening for cognitive impairment in people with HIV: A qualitative study

Alford,

Sidat,

Bristowe

et al. 2023

HIV Medicine

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ObjectivesPeople with HIV are an ageing population with an increased risk of cognitive impairment. Although cognitive impairment is dependent upon assessment, the acceptability of screening for cognitive impairment is unclear. This study aimed to explore the views of people with HIV and healthcare workers regarding routine screening for cognitive impairment.MethodsIn‐depth individual qualitative interviews were conducted with purposively sampled people with HIV and focus groups of healthcare workers from a UK HIV service. Verbatim pseudonymized transcripts were analysed using reflexive thematic analysis supported by NVivo.ResultsTwenty people with HIV were interviewed and 12 healthcare workers participated in three focus groups. People with HIV were concerned about developing cognitive issues and were receptive to routine screening. Screening was seen as relevant and an important part of managing health in older age. Healthcare workers expressed concerns regarding the capacity of HIV services to implement routine screening and questioned the validity of screening measures used. People with HIV felt that screening and subsequent detection of cognitive impairment, if present, may help them to prepare for future issues and promote active management strategies and care pathways that would support cognitive health. People with HIV felt that screening should be brief and delivered by the HIV service and that they should be given a choice of administration method. Indications of cognitive impairment detected by a brief screening assessment should be discussed face to face and followed up with a comprehensive assessment.ConclusionsPeople with HIV are concerned about cognitive impairment and would welcome regular screening for this as part of the holistic care provided by the HIV team. Both people with HIV and healthcare workers would like more information on cognitive impairment, its screening and ways to support cognitive health.

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Section: Discussionsupporting

confidence: 91%

Section: Discussionsupporting

confidence: 62%

Section: Discussionmentioning

confidence: 73%

Section: Introductionmentioning

confidence: 99%

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People with HIV and healthcare workers views on screening for cognitive impairment in people with HIV: A qualitative study

Alford,

Sidat,

Bristowe

et al. 2023

HIV Medicine

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“…While significant resources have been expended on understanding HIV/AIDS pathogenesis and treatment, as well as its impact on individuals, groups, societies and healthcare delivery, so far little research has examined how HIV/AIDS affects the ability of older adults to maintain their daily needs [25,26]. Opinion of PLWH on the aging process and healthcare attention are not often considered as a variable to study, though this knowledge would help to direct health responses on dissimilar settings.…”

Section: Introductionmentioning

confidence: 99%

Identifying the needs of older people living with HIV (≥ 50 years old) from multiple centres over the world: a descriptive analysis

et al. 2023

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Background Older People Living with HIV (OPWH) combine both aging and HIV-infection features, resulting in ageism, stigma, social isolation, and low quality of life. This context brings up new challenges for healthcare professionals, who now must aid patients with a significant comorbidity burden and polypharmacy treatments. OPWH opinion on their health management is hardly ever considered as a variable to study, though it would help to understand their needs on dissimilar settings. Methods We performed a cross-sectional, comparative study including patients living with HIV aged ≥50 years old from multiple centers worldwide and gave them a survey addressing their perception on overall health issues, psychological problems, social activities, geriatric conditions, and opinions on healthcare. Data was analyzed through Chisquared tests sorting by geographical regions, age groups, or both. Results We organized 680 participants data by location (Center and South America [CSA], Western Europe [WE], Africa, Eastern Europe and Israel [EEI]) and by age groups (50- 55, 56-65, 66-75, >75). In EEI, HIV serostatus socializing and reaching undetectable viral load were the main problems. CSA participants are the least satisfied regarding their healthcare, and a great part of them are not retired. Africans show the best health perception, have financial problems, and fancy their HIV doctors. WE is the most developed region studied and their participants report the best scores. Moreover, older age groups tend to live alone, have a lower perception of psychological problems, and reduced social life. Conclusions Patients’ opinions outline region- and age-specific unmet needs. In EEI, socializing HIV and reaching undetectable viral load were the main concerns. CSA low satisfaction outcomes might reflect high expectations or profound inequities in the region. African participants results mirror a system where general health is hard to achieve, but HIV clinics are much more appealing to them. WE is the most satisfied region about their healthcare. In this context, age-specific information, education and counseling programs (i.e. Patient Reported Outcomes, Patient Centered Care, multidisciplinary teams) are needed to promote physical and mental health among older adults living with HIV/AIDS. This is crucial for improving health-related quality of life and patient’s satisfaction.

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Palliative Care

Stow,

Combes,

Dewhurst

2024

Frailty

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Frailty and frailty screening: A qualitative study to elicit perspectives of people living with HIV and their healthcare professionals

Abstract: and Bristowe, Katharine (2022) Frailty and frailty screening: a qualitative study to elicit perspectives of people living with HIV and their health care professionals. HIV Medicine. pp. 1-10.

Cited by 8 publications

References 49 publications

People with HIV and healthcare workers views on screening for cognitive impairment in people with HIV: A qualitative study

People with HIV and healthcare workers views on screening for cognitive impairment in people with HIV: A qualitative study

Identifying the needs of older people living with HIV (≥ 50 years old) from multiple centres over the world: a descriptive analysis

Palliative Care

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